Stroke Survivor - male
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About Deigh

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  • Birthday 10/31/1929

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  • Stroke Anniversary (first stroke)
  • Interests
    Music, photography, campervanning, fishing, electronics, engineering
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  1. Problems this morning ,joined the chat late only to find it empty! everyone had gone home!. Mark had looked in a few minutes earlier but had also given up! Thought I'd reprint the letter I sent some while ago referring to the chat forum..... I'm in my sixth year of recovery and just taking stock of the situation. From a completely dead right side I can now walk without a stick, up to about 2K without problems. Bladder problems are more-or-less under control with the odd mishap. Uncontrollable tears are unheard of now but care has still to be taken not to have a recurrence. C
  2. Deigh

    Many of us had balance problems in the early days post stroke, most of mine have become minor as I've found ways of overcoming them but there is no expectation that things will ever become 'normal' again so I will continue to take care. What sort of exercises are you undertaking? I have a self imposed daily exercise regime and try to walk as much as possible. At this time I cover about 2k a day, most of it being on a slight incline and that makes things bit harder! Have you any loss of right or left hand dexterity? Deigh
  3. We accept that a stroke messes around with the brain but after 6 years of working out how to cope with the disadvantages I have to admit that there were some gains the stroke gave me. Firstly is my loss of tinnitus. This I had had since I was very young and had got used to its presence despite having music as my main hobby. It was some time after the stroke hit that I realised it had gone, and it has not returned. The second thing was headaches, again something I had regularly since about seven years old. It developed into raging migraine between twenty and forty and after that just becam
  4. Computers have a way of taking over don't they! Glad that my reply gave you ideas. You do not give us your name to address you with. If you click on my avatar you can get my E-mail address, I have a great little video I'd like to send you, I'm sure you would love it. Covid is not interfering with my music life but lack of fellow musicians is. There used to be a standard crowd of guitarist who could read music and were available for jazz sessions anywhere. Suddenly they all have vanished and what we are left with is a bunch of people who hang a guitar round their neck, learn half a do
  5. As a frustrated musician I can understand your predicament. To overcome the shortage of not being able to play with other musicians I have a program called Encore on my computer where I can record rhythms for my favourite songs and have them play back to me in real time. I play the lead part on my guitar connected to a small amp under my workbench. This is not as satisfactory as playing with others but it does keep my fingers active and my brain alive. There are several other similar programs on the market. I also play keyboards and many years ago needed to get one to carry on my c
  6. Deigh

    I'm in my seventh year of recovery and have many problems under control, One which keeps repeating is sleep loss. I get this sorted out and all is well for a while and then for no reason at all it fails again and I find myself awake when I should be sleeping soundly. It is difficult to understand why, I have a very comfortable bed, the room temperature is acceptable, there are no extraneous noises to cope with and there is no justifiable reason to be awake. I have lost the ability to read in bed but have overcome this problem by installing a pillow speaker which is plugged into my bedside
  7. Deigh

    Don't think so Keli. I'm expecting an hour earlier! Deigh
  8. Deigh

    I'm have trouble understanding time differences, I live in the Southern hemisphere in New Zealand. Today the chat forum will change its time by moving the clocks forward an hour. We do not change just yet so tomorrow when I want to chat I will have to do it an hour earlier than my norm. I will soon get used to this, BUT, in a few weeks we will move our clocks back an hour and again I will have to find a new time to chat. I will now be two hours different from you in USA and I'm having problems getting around the logic of this! I'd welcome a logical explanation. Deigh
  9. Deigh

    Alan, it is now a month after your treatment, have you had any signs that things are improving for you? I know you said it could take months but we are all interested in the procedure and keen to find anything new. Deigh
  10. I have spent a lot of my life inventing things but there are some things I'd like to do but they are out of my range. If you know anyone who could design a device to do them I'd appreciate you passing the requirements on. 1. When listening to the radio quite often a short statement of seemingly importance is uttered. Since the radio is only background I miss the announcement. I would like to have a button on the radio that if pressed would re-play the last 30 seconds! 2. Apart from the news everything I watch on TV I have previously recorded. A lot of the conversation in a program I
  11. Deigh

    Thanks Will, yep I got the link but havnt pursued it yet, Will have some spare time over weekend to do it.
  12. Deigh

    "just take it easy" or "just calm down" . I know exactly what you mean by people throwing those quotations at you. Trouble is that they mean well and it is not easy to get annoyed with them. Equally upsetting is those who finish up my sentences for me. I used to get very upset at people saying "You look well", again with the best of intentions. To my surprise I found this was a common reaction by other stroke survivors. I have a friend who overcomes this by greeting me with "You look terrible!" That's what friends are for. I'm amazed by your mathematics. I was petty
  13. Deigh

    Thanks for that Will, fascinating reporting by you explaining your background and your attempts to pick up again. I am fortunate that the stroke left me enough to get back to playing at all. I'm also very fortunate that my 91 year old hands do not have any rheumatism or arthritis. I can use all my electric hand tools although with the new battery driven ones I've had to modify the safety button that requires me to depress with the thumb when using the first finger to power on. This action is beyond me and it is dangerous to take the left hand away from its responsibilities of securing the job.
  14. Deigh

    Brilliant reporting Allan, looking forward to next phase of your treatment! Deigh
  15. Deigh

    Will, my fault entirely. I composed the mail using another program but when I did the copy/paste trick it did not come out very satisfactory. I submitted it but was unhappy about the outcome and returned, cancelled it and tried again with some extra trickery. This was better but still no way near good enough so I returned, dumped it and started again. This time the finish was good enough and I left it. You must have read one of the dumped ones!........anyhow thanks for getting back. I'm looking forward to reading your reply. My submission was extracted from a lengthy article I'd wr