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I have read that phantom smells are common after a brain injury. Have you experienced any?

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Absolutely. When I being wheeled down the hall to get a brain scan about a half hour after I stroked I had the most delicious smell of a fresh peeled orange. When I was in ICU, rehab and then 1st came home about 5 weeks post stroke I could barely get my fill of oranges, There were other odors over time that have come and gone but that one stands out.

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Absolutely. Though forget about the direction that is was coming from real or imaginary. The strangest disconnect is the first sniff  of a dish or food and finally bitting into it to find that the taste was very different. And don't get me started on trying to scratch those phantom itches:raising-cane:

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That darn Leprechaun itch I call it. Mine jumps around on my face, left side. Ear, nostril, eye, ear again, neck, cheek. The arm, leg and torso at other or the same time. So I'm wondering as when you have a cast on the limb itches as the bone heals, it this a slight healing possibly.

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I do not have phantom itches but the smells.. Oh boy I smell cigarette smoke and I , not meaning too, think my mom has forgave me but when she cooked her famous ( to us) pot roast I told her it smelled like garbage . I had to leave the house

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smells I haven't had, but I certainly know those itches. The weirdest ones are when the bone itches not the skin and you really can't scratch it!

Will, fingers crossed the itches mean that a nerve that hasn't been communicating with the brain has started to and the brain is not sure where to file the signal/sensation so it could be a sign of healing, the trouble is without knowing the source of the sensation it's hard for you to direct your brain on how to file it.

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Wouldn't a little healing be wonderful heathber? So hard to say though. We have those days when we can't believe how good we are doing and then bam the tank is totally empty an hour later. Kelli the smoke smell would bother me. It has been years since I quit. The best is when we do go out to eat we don't ever smell it. Early on when I 1st came home my sister in law was sitting me while April was at work. Her husband burned a bagel in the toaster because she said he likes them that way. That was the worst ever. I thought I was going to be sick for sure.

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I have no trouble believing a smell can make you feel sick, or that brain insult can "create" smells. Pre stroke I used to get migraines. Not just the bad headache lots of people think is a migraine. One of the ways to know a true migraine is that one or more of your main senses becomes hyper sensitive, that combined with gut hypostasis which really sucks and means oral medications don't work. The most common migraine hyper sensitivity is lights and noise, but I used to get taste and smell migraine. Thankfully my stroke seems to have "cured" my migraines, although it's not a cure I'd recommend I'll take it as a bonus 🙂

 

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Well right not a prescribed cure per se but that is really nice that you don't have to deal with that along with our daily challenges. Years ago a friend of mine had them and it was tough for her not knowing when the next was coming. She had the seems to be more common light sensibility migraines.

 

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Yep thankfully I never got the semi regular migraines my Mum and sister lived with, and that they now control with the new daily preventative medications, mine where only a couple of times a year but it would wipe me out for a week.  Current problems are not fun but in some ways easier to deal with (more predictable for a start)

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On 4/13/2021 at 3:14 PM, Willis said:

 Kelli the smoke smell would bother me. It has been years since I quit. The best is when we do go out to eat we don't ever smell it. 

Yes, I quit right after my stroke and they say ex smokers are the worst. But I can admit EVERY once in a while, I don't mind the smell of a menthol. Crazy.. I'd never smoke again though. 12 +  cold turkey as they say. I'm not sure if a doctor or nurse or a mental  Hallucination  but I was told if I smoke again I'll die.  So.. stopped for I was sacred to die....

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On 4/15/2021 at 12:28 PM, ksmith said:

Yes, I quit right after my stroke and they say ex smokers are the worst. But I can admit EVERY once in a while, I don't mind the smell of a menthol. Crazy.. I'd never smoke again though. 12 +  cold turkey as they say. I'm not sure if a doctor or nurse or a mental  Hallucination  but I was told if I smoke again I'll die.  So.. stopped for I was sacred to die....

It took me a while but I did finally quit in the mid 80's. April quit a few years before when we agreed we would. I cut way down but still was cheating some. I worked an hour away at a major university in Detroit and my boss smoked Kool Milds, My brand and he was always willing to share. I probably was smoking 3 or 4 a day total back then. What I learned about situations triggering my craving and addiction was interesting to me. When I was making that 50 mile commute as I got closer to work smoking a coffin nail would pop into my mind and a stop in to see the boss and "borrow" a smoke was almost automatic. How ever as I would return home after work smoking never entered my mind. Now days how does anyone justify that habit? You would think the price would inspire a person alone but somes addictions are stronger and harder to break. I really do get that.

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