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Life As A Survivor For Many Years


fking

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I had no idea I would be writing this kind of blog this early in my recovery process but we never know when our bodies will just give out or at least parts of our body gives out, gets weaker, where it is difficult to control that part of our body.... I have been in a survival mode since 2004 at the age of 62....

 

Now I made it to 74 this past July with a few bumps along the way like having my right knee operated on as a result of a fall while riding a shuttle bus in Las Vegas over a year ago.... That leg is alright however the left side of my body is paralyzed and has been since the stroke nearly 12 years ago... I have had therapy every year since the stroke from several agencies paid by my insurances.... Some were in home while others I had to go to their locations for my therapy which was OK for me since I can drive and haul my scooter every where I go....

 

In my case now the left side has given out or perhaps given up which has caused my walking to be very slow at best where I can barely get the left foot in front of the right foot like a shuffle to prevent falling knowing I can't get back up on my own power... I'm having to use the scooter more lately and honestly I think my walking days are very limited with my quad cane and my attending church on Sunday are already gone.... I haven't been going now for well over three or four month of Sundays... That really bothers me but I have to understand I must walk to be able to attend church services as there just isn't room for me or anyone else to use a scooter or wheelchair and block the narrow isles we have with the layout of the church building which was built many, many years ago plus there are several steps to get inside the front entrance of the church....

 

So I'm wondering now what is next for me surviving this stroke the way my body is giving out on my left side causing my walking to be very hard to accomplish.... It's even very hard for me to stand up from a sitting position in a chair at home or even the commode with the 5 and 1/2 inch raised seat on it otherwise I couldn't get up by myself.... I still got an attendant for one hour each morning but that's not helping me walk any better either....

 

I'm not giving up I'm giving out physically and that makes surviving real hard for me now so I thought I would express that point in this blog so all of you would know what happened in my case you don't see me posting and responding on the board anymore..... :roflmao: I won't be kicking this high but better than I am now....

 

I'm hoping I still got a few more years left as a survivor but that's the one thing any of us just don't know because it's not up to us..... Obviously I want to last long as I can but my body has slowed down and tonight I thought I would put it in writing so everybody reading the message board would know what happened to me.... I got to get lots of rest and move around as much as possible so I don't get any worse right now.... I will still try to blog when I feel up to using the computer but rest I feel is what I need now most of all.....

 

December 15th is the anniversary of my stroke in a few days so hopefully I'll be at home resting up some..... Anyway I'll be at home resting up and learning how to walk all over again and stand up from a sitting position too... :D God bless!!!

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You know Fred, I sort of gave up on Ray after he broke his arm last June and refused to walk anymore.  He got weaker and weaker resulting in this year ending up with pneumonia twice, so the second time I just let them put him in long term rehab as a last resort.  I didn't know what else to do at that point, it all seemed hopeless. 

 

Well three months later he is walking again, due to his bonding with the PT there.  I'm talking hundreds of steps!  Just to say, you never know.   I realize you're against going into a situation like that, but Ray seems to be thriving.  To my surprise!  It's not the Ritz but he seems to like the socialization too.  Please don't give up so easily, it may not be all that bad.

 

Hope your holidays are happy ones!!

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Hi Fred,

Hang in there and remember use it or lose it.  While rest and pacing yourself is vital, you also need to keep using what you have, try not to depend too much on the assists.  Try to do a little bit each day and ask for a new PT assessment and exercise program.  It sounds like the steps at church would make a really good goal to keep you motivated.  I'm sure there are people at the church who could park your car for you and who would help you up those steps.  Take it slowly for a while, but don't stop completely please.

 

Hugs ((()))

Happy Christmas

Bless you

-Heather

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