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will2

Stroke Survivor - male
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    28
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About will2

  • Rank
    Associate Member

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  • Stroke Network Email
    Yes

Shared Information

  • Stroke Anniversary (first stroke)
    11-07-2007
  • How did you find us?
    Website Link

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  • First Name
    will
  • State
    florida
  • Country
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Recent Profile Visitors

1,134 profile views
  1. Deigh, this is what I see just out my front window 365 days a year...No changes in seasons, just always green, green, and green..
  2. This is what is currently working for me, though still learning how to use it!
  3. Janelle, I've been here in South Florida now going on 65yrs and I never got used to the humidity. It's thick from July thru early Sept. At night when you open the door during these months the heat and humidity is so thick you feel that you'd be able to cut through it with a knife. It's our Tropical weather seasons. Pattern rain and thunderstorms here along the SE Coast day and night. I'll likely be draining water out of the pool today as once in many years the downpours will fill it to the top, very rare but a few seasons have achieved it. Usually the Sun and the intense heat evaporate the water quick enough to keep the water level balanced. Some years I've had to even add water. Not so this year, it's been stormy consistently. I'm ok with the tropical downpours and lightening/thunder but not fond of the strong Tropical Storms or worse Hurricanes. Since I'm a stones throw from the ocean, the Hurricanes come on land at full strength because there's nothing to slow them down coming off the water. Been thru a couple bad ones over the many years here. The last one was in Aug 1992 Hurricane Andrew a Category 5. It literally destroyed my previous home and to stay in this area a couple miles from my Service Center where I work. I moved here and used the insurance money from my destroyed home and fixed this one. This one just had roof, windows, and doors damage. Clean up was a mess and no electricity for almost three months but ran the necessities on portable generators. Since post stroke, preparation for approaching Hurricanes is a lot of work to install all the aluminum shutters and secure the home and pick up supplies can be a bit daunting and neighbors will pitch in to help as well as my Sister and BIL. I don't mind the Category 1 or even 2 storms, but when the get above Category 3 there's a lot of clean-up and water damages. Physical home damages are certain from Category 4 and forget Category 5. Almost everywhere you live may have Storms, Severe Floods, Hurricanes, Tornados, Earthquakes, and even Volcanoes! Whatta ya going to do?? So every year living in the heat and humidity isn't so bad, it's uncomfortable at best, but thats where having air conditioning comes to play. Here in South Florida, I'll be lucky to open the windows anytime from very late October thru January and early February..if I'm lucky!
  4. Hello James. You're quite welcome. With that said, they're so many here with so much great information and experiences to draw from. One of the few places on the net that I enjoy visiting and participating where I feel kinda in the pack. Stroke survivors are indeed a rare and fine bunch of folks, willing to share and exchange ideas and information that hit's home. A place to feel welcomed and kick off your shoes, just relax, be yourself, and most importantly understood. I can certainly relate to the heat and humidity. I live in a deep south coastal town here on the SE Florida coast. We're currently in the 90º heat and almost 100% humidity with rain and thunderstorms day and night. Hopefully the hurricanes and/or tropical storms will miss us for another year..
  5. jwalt, as I've basically just come out of the shadows to post. Been a member for some time but mostly just to pop-in and read some threads. As of late I'm more homebound and can spend more time here and make a small contribution if I can. I too have swallowing difficulties, not so much speech unless I'm using a cell phone where I tend to ramble a bit, more in the delivery than any speech type impediments. I do have a gag problem time to time where saliva just goes down the wrong pipe and I start with the coughing until I can smooth it out with a sip of some water or like fluid. It's a bit annoying at times. Like you and what seems as many others here, I'm afflicted with left side numbness, though my short term memory has taken a hit. Long term is fine, but the short term can be a problem. I'm over ten years post stroke and still discovering some limitations and/or deficits. Many possibly attributed to normal aging, but sometimes I get the feeling that others like mobility and pain have progressed at a quicker pace due to the physical constraints and limitations put on the body from the stroke. I think if I had the chance for a do-over, I would have tried to remain more active physically. One of the main things that slowed me down a notch or two was breathing. I first noticed getting a bit more winded doing repeated tasks but, I mentally attributed this reaction to being in pain management and prescribed morphine or other opiates round the clock. I finally had enough with the side effects of opiate type drugs and went cold turkey. However, even after a few years since I quit using them, the breathing problems persisted. Thus my slow down physically. In retrospect, maybe I should have pushed harder to remain active, but heart problems like you, changed that. And getting back on the horse physically now, I'm a bit more reluctant a cautious. But there will always remain the do-over mentality. I've just adapted more quickly these days and have learned to let go of the "I wish I did" kind of thinking and move forward and make slight adjustments to help improve what I can. I wish you well, and know your in good company here. Even those who are in the shadows and just read like I've been in the past benefit from the experiences we share. Thanks for sharing.
  6. will2

    Deigh, I for one am delighted that you brought this up about aspirin. Aspirin, like coffee have been both hailed and criticized depending on the flavor of the month. I've never been to compliant about taking any meds over a period of time. I will however be making an inquiry about the prescription duration with my PCP next appointment and see what he recommends. I'd be happy just taking it for the two years my Cardiologist at the hospital recommended. Or at least hope so. Thank you for the topic and wish you well and good health
  7. will2

    Becky, I glad you mentioned this. I have a similar story to relate. When I returned from the hospital my wife and a couple good neighbors had a small party for my home coming. My dear next door neighbor Lisa, baked a great little cake for the occasion. When they knocked on the door I answered and it was just reflex that she handed me the cake and I took it with my left very numb hand and you know the rest of the story...as Paul Harvey would say! The most embarrassing part was I broke one of her nicer china platesas you could imagine being a stroker. A lesson learned and not forgotten. Wil, it was nice chatting with you!
  8. It was only after hearing this PBA advertisement on TV that I gave any thought to what the medication was stating that it helped those who displayed some of the stated symptoms. One thing that changed in my case after my stroke was that I would find myself tearing up and embarrassed if I found myself in a highly charged emotional situation. I've pretty much always kept my emotions in check, so this was something new and at least now among others who suffered strokes having these emotions also, I don't feel so odd about it. I still have a very difficult time talking about my hospital experience, the air lift, the ER and blacking out. Finally coming to with all those tubes down my throat and trying to pull them out. It was a real shock mentally and emotionally, not to mention the long road to recovery ahead..
  9. will2

    Thank you jwalt. I'm so often surprised by the things that I get used to. These days I'd prefer to just have something if needed to manage pain if it get's extreme. I'm a believer in miracles too...as corny as it may sound from a scientific approach. Just having a smidgeon of faith has got me through many difficult times in my life. I really just try to exercise staying in the present and having the faith to go the distance no matter what is in store. We all pretty much have this in common, one day at a time.
  10. will2

    Deigh, My Cardiologist recommended taking the prescription drugs Metoprolol ER and the 81mg Aspirin for at least two years post heart attack. I wasn't told directly that I'd be taking it daily thereafter. It is in fact a good question to ask my PCP on my next visit though. Both my Cardiologist from the Hospital and my PCP are aware of my brain injury and the endovascular surgery to repair the ruptured brain aneurysm thru the use of coil embolization to stop the bleed. It is my basic understanding of coil embolization without getting too complicated, that in my case 19 various sized platinum coils were inserted into the ruptured aneurysm to clog (for lack of better words) the blood flowing into my brain. It was a concern of mine with my limited understanding and knowledge of the repair and methods use, that I won't have any complications down the road with any blood squeezing around the coils and into the brain again because of the blood being thinned out...or what I would imagine in my mind. I was reading, and reading can have it's drawbacks, that the use of aspirin post embolization has been studied and it had to do with the data collected with specific cases and the coil material, the amount of coils used and the various sizes of the coils. Too much information! Both the Hospital that did the heart repairs and my primary care physician have all my documented health records from the brain surgery to repair the ruptured aneurysm. So, I'm taking a leap of faith here that they understand all this and prescribe the proper meds and the determined period of use. It hurts my brain to even think of all these possible effects and outcomes of current or any possible future health situations. The internet is like the abyss and the longer you stare into it, it may start to stare back at you! (I heard this recently on a TV show!)
  11. will2

    I'm kinda late to the topic but, I would add that I had a minor heart attack Sept 2018 and just a stent and roto router job on a valve. Before I was discharged my Cardiologist from the hospital prescribed a couple of meds that I need to take daily and among them an 81mg Aspirin that needs to be taken daily. That was one of my concerns having read in the past of it being a blood thinner.
  12. will2

    Speaking of family. Yesterday my wife and I visited my sister and BIL and not a thing mentioned about how I looked or my condition. More importantly things were focused around my BIL who just returned home from the hospital after having a heart attack, stents, rotor-router job on the valves etc. So the conversation's never turned to my condition. The only time somebody mentioned anything my way was when I tried to get off of her sofa with those long soft cushions that you sink into but I had to actually roll off onto my knees and push myself up by my arms to stand. I'm glad in my case it was just us four and no additional guests to see the acrobatic's just to get up off a sofa. I did hear hear my sister in the adjacent kitchen where everybody was sitting if I needed help but, that was it. It was actually kinda satisfying that the focus wasn't on me for a change. I'm 67yrs and most folks my age all have equal stuff in their lives happening. My BIL was very healthy and active. Went weekly to the gym, plays golf, enjoys mowing his lawn and landscaping etc. Eats well, doesn't smoke etc. Unfortunately some in his past family did have some history of heart problems and may have played a major role in his attack. Just another good day to be alive and enjoy life and family...
  13. will2

    Paul, my current standard reply when friends say "You look great" is "It's a good day to be alive" and move on conversation wise. The only obvious distinction being mobility, aside from that, the visible symptoms appear normal and I can blend in. If they ask "How are you feeling these days?" my standard reply is "Cautiously optimistic!" which I remain. For the most part these days my family don't comment on my condition and really don't bring it up unless I make any comment about medicines or doctor appointments.
  14. will2

    You're welcome Willis. Your symptoms stated above in fact mirror mine. I have the mobility on the left arm and hand but honestly couldn't tell the difference of a baseball or a fountain pen in hand if my eye's were closed because of the numbness. Additionally, to add, the only real downside to the medical cannabis products here in the dispensaries are prices. Not to mention that insurance does not cover cannabis products and it's strictly a cash business due to Federal laws and banking. So no credit cards or checks. Like mentioned, I'm guessing that as many more states get on board with legalizing medical marijuana, antiquated Federal laws may change, but for the time being it is still considered illegal and keep restrictions in place. For example, a bottle of THC/CBD capsule may cost up to $50 or oils that applied under the tongue with a syringe, both considered in the oral category. Whereas a bottle of prescription 30 day supply of opioids would be zero or a small co-pay using insurance.
  15. will2

    I live in one of the states that has legal cannabis as of 2016, and the forms allowed have evolved in the last several years. Currently as of late 2018 smokable flower is now available in the dispensaries. Of all the products available since 2016, the smokable flower seems to have the greatest benefits known as the "entourage effects" whereas you receive the benefits of the full flower in potency of the THC/CBD combined. We currently do not have as many available cannabis products in the dispensaries as some states, to especially include Colorado. I have a longtime childhood friend who lives there and she tells me they offer such a variety of cannabis products in both the orals, edibles, and smokable flower. In the few dispensaries located around here in South Florida, they really don't offer any edibles like the candy flavored, or chocolates and baked goods. They do however offer orals in the capsules and oils. The state is still evolving in their available offerings. The states governing officials did get involved to limit the potency of the THC% content of the flower, or at least thats what I last heard. My primary care doctor is also involved in making recommendations for medical cannabis, as many more doctors are getting on board to be licensed to make recommendations. Maybe just to round out their practices and attract new potential patients. And as scottm stated, there's still the looming Federal Laws that still consider it an illegal substance. I think in the future that may change just as the number of states pass new medical marijuana laws. Many states already have adopted recreational marijuana laws. Medical Cannabis may be a precursor to this in many states, or at least lower restrictions, fines and/or penalties for possession. In my state one of the biggest arguments against medical cannabis was "it is a gateway drug!" I thought a lot of fear mongering especially since in my case I was already being prescribed opiates around the clock for neuro-pain. Though those medications would make a days worth of pain a little more manageable, the side effects were awful in my case. I'm all in for more natural alternatives and if medical cannabis works...more power to it for those who have it available to them. I think that any legitimate pain sufferer should have exposure to any products that can help to reduce or eliminate real pain. I say, why not cannabis if it works. There is a lot of evidence to support these claims as the products become more readily available, and not just from the the stereotypical hippie dope smokers from the 60-70's. Many of those that I see visiting my primary care physician look to be older respectable folks, if those fall into the demographic. I was referred to him because he's a close family friend and my previous PCP office was overcrowded and long waits and visits in the waiting rooms. I didn't even know this new primary care doc was even licensed to recommend medical cannabis until we had in-depth discussion's of my medical history and frustration experience with pain medications. I'm a supporter of cannabis if it fact works for you. Lord knows I've tried so many other prescription pain meds that had their downsides. I say go for it!
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