Stroke Survivor - male
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About ken27

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  • Birthday 07/03/1965

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  • Stroke Anniversary (first stroke)
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    sports,history, enginnering and helping people
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  1. BENNI you are a inspiration the more you do the better you will get Stretching and exercising are so important. FOR alot of us it is not easy but if you can move do something try to exercise it take time but you can improve and you will feel better too.
  2. After I work out I am moving better and am able to do more things but I have side effects. When I workout hard it is tuff to talk, this is not from being tired but the left side of my face is on fire and it is hard to move my mouth. This last for only a couple of minutes then it goes away. However, when I walk up the stairs to my bedroom my cps seems to go from my legs to my head by the time I get up the stairs. This is very strange does anyone else have this happen. When you walk do you ever have cps or muscle tightening go through your body to your head. When I stop I return to my normal self. This is very hard to explain I hope you can understand what I am saying.
  3. Pam I am so sorry that this happen to you. People just do not understand the pain we have. Was this done on purpose or a mistake, just not thinking either way you should never be touched that way. You may want to reach out for legal help, if anything to make sure it never happens again. I think documentation is the key, good luck to you.
  4. Benni, I purchased exercise gloves with cut out half fingers, these gloves keep your fingers straight just put them on and of is good exercise for your bad hand.
  5. This is very interesting, you never know what can help open up new pathways. Thanks for the links.
  6. When I woke up today the left side of my face hurt. It felt like my skin was going to peal off the left side of my face, when I got up and dragged my left leg around, then stretched the pain in my face went away. Of course I have pain in my left leg, calf and foot, the farther down my leg the more pain there is and the heavier it feel. While typing this I am having sharp pain in my left rips, crazy. When I workout it seams to calm down my cps with the pain going to my left foot and hand for 3or 4 days. I worked out Monday so my cps is moving around today, time to go to the gym and workout.
  7. ken27

  8. My CPS moves all over my left side. I is always in my foot and ankle and hand but now it is sometimes in my chest, neck, elbow, face, head and leg. It is strange but it hurts at first I thought it was stiffness but there is pain. Has anyone had cps move around there effective side.
  9. Scott it took me over two years to get hydrocodone for my dr they wanted me to try different drugs first then I broke my right fibula or arm and they gave me hydro. It helped with my cps and my arm. Doctors today just do not want to prescribe drugs that can help people like us we have to deal with cps and the doctors.
  10. ​I am still getting better, I am working toys for tots distributing toys to organizations that give the toys to needy kids. I am working in a warehouse were marines drop off toys and I organize the new toys into different piles using pallet jacks to move the toys around. I am also picking up boxes and walking around this big warehouse. Olmsted Center for Sight my employer has been doing this for awhile but this is the first year that I have done this. It feels great to help kids in need and I am still getting better 8 years after my stroke.
  11. ​Betsy, ​I know what you are going through, my left side is always in pain too. The only way I get some relief besides meds is by stretching and exercising. I have been going to the gym for five years now and found that when I work out it helps my left side but just like everything else with stroke it takes along time. If I do not stretch for a day or two the pain is back big time I do not know if the pain will ever leave but we have to do the best we can and live life so I a very happy that you are doing things for your self, good for you.
  12. ​HI Tracy, ​Sometimes love ones say things they do not mean they are just frustrated. I try to keep things simple when explaining my limitations like there is a carton of milk on the table, some days I can pick it up and pour a glass of milk in 30 seconds, some days it takes 60 seconds, some 120 seconds and some days I cannot do it. It may take me a minute to read a page in a book one day the next day it may take two and so on. It is not easy for someone who did not have a stroke to understand what is happening to someone who had one, slow motion, no energy just plain tired but it is hard to explain and it is always there it does not go away. Good luck stay strong.
  13. ​Hi, ​It is never to late to start improving. It is great that you are back to work and going to PT. I would ask your PT instructor for some things you can do at home with your hand. Then do them everyday, the more you repeat the exercises the more your brain gets use to them and new connections are made. This does take time and effort though it with not happen fast. I am 8years post stroke and still improving. Good luck keep us updated.
  14. ​Hi Tracy, ​I take Gaba 600mgs 4x a day for CPS pain. I have been taking it for 7 years and it helps me.
  15. Happy Anniversary ken27!