whotheheckamInow

Stroke Survivor - female
  • Content count

    23
  • Joined

  • Last visited

  • Country

    Sweden

1 Follower

About whotheheckamInow

  • Rank
    New Member
  • Birthday 06/16/1970

Contact Methods

  • Stroke Network Email
    Yes

Shared Information

  • Stroke Anniversary (first stroke)
    12-15-2016
  • How did you find us?
    Google Search

Registration Information

  • First Name
    Sandra
  • State
    Sweden
  • Country
    Sweden
  1. Don't have sleep apnoea. Am just tired. Have masses of vitamin and mineral deficiencies, iron deficiency due to gastric bypass so that plays a role in the tiredness. My doctors are working on getting all that under control but it is going to take some time.
  2. Hi Steve, yes I take anxiety meds and anti-depressants. Just changed to a stronger anxiety medication 3 weeks ago and it helped quite a bit. I have a great mental health team who are supportive and helpful. It's taken a while to find them but they are amazing. Having the right people to give help makes all the difference. :-)
  3. whotheheckamInow

  4. Hi Scouter. Newbie here too. Had my stroke in December 2016. I can relate to the no energy. I hope you have a fantastic time in Hawaii and enjoy your trip.
  5. Amazon or Ebay ;-)
  6. Hi all, So Friday I have a support worker and a person who will be allocated by the municipality as my assistant coming to the house for a first meeting and assessment to see what I need and what they can offer me. I'm really stressing out about it because many of my meetings with medical personnel have not been pleasant experiences or productive. My husband's going to be here but I am having massive anxiety over having to ask for help from someone besides my husband and a few close friends. Hubby got a new job so he will be travelling a lot and I need help attending medical appointments because I can't remember what people tell me, help with transport to and from places and help with some day to day things. Have any of you had to involve outsiders or social services to get help? How did you deal with it? I just feel really frustrated about not being able to handle things on my own anymore. It's a hard pill to swallow. Admitting to myself that I am not that independent person I was before the stroke is rough. I also feel stressed about having to deal with strangers because I have social phobia and severe anxiety. I know things are usually worse in my head than they turn out to be but right now it's tough. Any advice or experiences would be appreciated. Thanks Sandra
  7. Hey all, thanks for the good wishes. Lin, I'm on anxiety meds at the moment. Don't know what I'd do without them at this point. Going to see the nurse in a couple weeks to check on how I'm doing with the anxiety meds and anti-depressants. I feel like I've finally found a level that works for now so I'm happy about that. Tracy, I'm tired all the time. Not like the kind of tired you can sleep off but so tired I sleep 13 hours and wake up tired kind of tired. I'm hoping that gets better over time too. Thanks for all the advice and reassurance. It's good to know that what I feel isn't unique. I just wish we had better resources where I live and more information available. We have a local stroke association and their next meeting is in August. I have it in my calendar so I don't forget to go. :) I'm thankful I found this community and all of you.
  8. I had a gastric bypass 5 years ago. Didn't lose a lot initially for various reasons (PM me if you want to know more) but have currently lost 220 pounds with 55 left to lose. I'll get there when I get there even though I get crap from the doctors here for still being fat. I was originally a size 34 US and can now fit into a size 12/14 top and size 16 bottoms. My mind hasn't caught up with my weight loss. It's a strange process.
  9. I have all medical people or people involved in social services phone my husband because he is better at communicating than I am. He deals with the practical stuff that I can't handle. Sometimes the doctors or social services send us letters instead. I have an easier time with that because I can read it as many times as I need to. I e-mail because I can take my time formulating responses, save drafts and go back to it when I have the energy and then send off the mail. If I have to have a conversation I prefer either FaceTime or face to face because when I see the person's facial expressions and read their lips I find it easier to stay focused (I still have problems maintaining focus this way too). I used to love talking on the phone for hours before my stroke but I'm just not that person anymore. Those who are a part of my life accept that if they want contact they have to do it in a way that suits me. Sometimes if my phone rings I just don't even bother picking it up. It's a stress factor I just don't need to add to my everyday life.
  10. Hi all, been away on vacay for a few days in Malta. Thanks Janelle for the welcome. Deigh, I have a hard time focusing on things for more than a couple minutes so I don't attempt things that require masses of concentration. My husband says that having a conversation with me is like a roulette wheel spinning, sometimes the ball goes in the little hole and then it pops out again and the wheel starts spinning. Makes for good entertainment though because you never know what you get. Asha, thanks for the welcome too. I will try and set a reminder about the chat room. Might be a bit difficult for me to join because of the time difference but thanks again for the invite :-)
  11. I had a stroke last December at the age of 46. I have emotional outbursts, get angry at insignificant things, am super sensitive to light and sound. I have a short temper and am learning how to deal with it. My husband is extremely supportive but I know I try his patience on a daily basis. I was recently given tablets for anxiety by my doctor and they have helped me chill out a bit. I'm waiting for an appointment for a neuropsychologist but won't be hearing from them until after summer. I'm new to all this too but I would have to say I agree with the posts above, seek help from medical professionals and from whatever other sources are available to you.
  12. Hi all, thanks for the replies. Aanaruk - Swedish, Danish and Norwegian to English (mostly medical and technical). Someone in the local stroke group asked me whether I had problems finding words in all languages and the answer is yes. for example, the doctor showed me a photo of a bus. I could tell him it was yellow, people sat in it and it had wheels but I couldn't find the word bus. I find I have that problem with a lot of things. I just can't find the right word, but I am getting around it by describing what I mean. Many of you mentioned being tired and I am tired all the time. I sleep a lot. I have been put on antidepressants and anti-anxiety medication. They have helped to some extent. Just had the anti anxiety changed from one kind to a stronger one 10 days ago and it felt like a weight was lifted off my chest. I was offered CBT therapy but the problem is that I can't remember things so the therapist asked me to read a book for homework and once I turn the page I've already forgotten what I just read so I have decided not to stress myself out with psychotherapy or CBT right now. I need to take time to see what happens with my memory and then I can look at a strategy to move forward. One of the good things about living in Sweden is that we have a good social welfare network and medical care system (sometimes we have to wait for access to things but it is usually granted) so I won't have to worry about becoming uninsured or the financial aspect. On the medical front nothing much is going to happen over the summer because people go on vacation and things won't be up and running again until September. My doctor has enrolled me in a group mindfulness class starting mid-September. She thinks it would be good for me to get out and meet people and to be able to use mindfulness as an everyday tool to help deal with things. Has anyone else had any experience with this? I'm very fortunate my husband is a big help and supportive. My parents are supportive too but they are in California. We chat via FaceTime on a regular basis. I've discovered that regular phone calls where I can't see a face or lips moving are very difficult so I have my husband deal with phone calls from doctors and medical staff. I try to minimise the things that I find to be stress factors for me. I know I will have to start dealing with these things at some point but for right now they will just have to wait. Again, thanks for all the advice. :-) Sandra
  13. Hi all, I had my stroke in December at the age of 46 and was hospitalised for a week, woke up one morning, didn't know my name, where I was, time of day or the date, the right side of my face was paralysed and I couldn't speak properly. I had major confusion and was scared so my husband took me to the hospital and I was transferred to the stroke rehabilitation ward after 13 hours. The neurologist initially thought it wasn't a stroke and was due to thiamine deficiency (I'm gastric bypass operated). I had all sorts of scans (with and without contrast), they did a spinal tap and many other blood tests. I eventually saw a memory specialist who administered loads of tests and determined it was a stroke but they can't really localise it. At 6 months later I still have right sided facial paralysis on the lower half of my face, confusion, short-term memory loss, problems with spacial perception, time, dates and things of that nature. I have a hard time focusing on things, can't remember how to do things or follow directions when they are complex, I write down everything on a pad of paper, keep everything I have to do in my iPhone and set alarms and have a husband who is very supportive. I feel depressed a lot of the time, have severe anxiety and am having trouble finding my place in the world post stroke. The prognosis for me to return to my job as a translator is not very good and so I am currently on sick leave until October. I will be re-evaluated in September by the memory specialist and a neuropsychologist to see what to do with me next. From what I have read online anxiety and depression are common after a stroke, but it's difficult not to be hard on myself. I have found a local stroke group here in my town and have been to one meeting so far. I find that leaving the house is a challenge. My husband can't always be there and I worry about what to do when I get confused. I'm wondering whether the depression subsides after a while or whether it is something I can expect to continue, is it the same for the anxiety? My entire world has been turned upside down since December and I just don't know where to start finding myself again or who I am now. It's all very confusing. Any advice would be greatly appreciated. I try to take it day by day, but sometimes I just feel scared and alone. Thanks for letting me join this group. I look forward to hearing about the experiences of others and learning tips on how to cope.
  14. Welcome to StrokeNet. Please feel free to browse around and get to know the others. If you have any questions please don't hesitate to ask.