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Stroke Survivor - female
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About whotheheckamInow

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    Associate Member
  • Birthday 06/16/1970

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  1. Hi Darin, Nice to e-meet you. I'm Sandra and I had my stroke last December at the age of 46 (turned 47 in June). I'm tired all the time too, concentration and short term memory are impaired and speech isn't great when I am tired. I'm glad you found this group. I'm a newbie here myself and have found everyone here so helpful.
  2. Hi Jan, I also have trouble finding words. I know what I am thinking about, can see the item but just can't find the word. I know what a bus is but when I was asked to repeat the word bus after seeing a photo of it during a test I just couldn't find the word, I knew it had people in it and transported them but that was it. I have this problem quite a lot but I am trying to work my way around it by describing the thing I can't find the word for. I couldn't remember refrigerator the other day so I just said the cold place where people keep food. My husband eventually got it. That's just one example. Having to deal with new people or new situations causes me severe anxiety as I am afraid of not being able to communicate or make myself understood. Some people are very tolerant and others aren't. I really appreciate it when people go out of their way to try and understand as it does make things easier and I feel less stressed. Like Linnie said, the more upset I get the more difficult things become. It is annoying at times though.
  3. Hi all, here's an update. The case worker was very negative when she first arrived, standoffish and in a bad mood. Talked more about what they couldn't do than about what they could do but my husband kept telling her what I needed, what we needed and what was important to us so that we can have a functioning day to day life. At the end of the conversation they have granted me a 6 month trial period of assistance with various things, we're going to see what I need as I go and see how the team can help me best. In Sweden there are two laws that concern social services and assistance and this assistance I have been granted is under one of the two laws. The other assistance, which is more what I need, transport to medical appointments, someone to accompany me to them and be my assistant is covered under the other law. The case worker told us she would get her colleague that deals with the other type of assistance to contact my husband and then set up a meeting with us. Don't know how fast that will happen as Swedes go on holiday during the summer and a lot of things are shut down or run by a skeleton crew (we have 5 weeks statutory vacation here). So that's where we are now. I don't really feel great about having to ask for help but there is no other way forward right now. Husband is starting a new job and I will be home alone quite a lot of the time and some weeks all week long so I have to be certain things get done and that help is there if I do need it. I received a letter from my neurologist this week and will be seeing him on 31 August to get my sick leave extended, still waiting on an appointment with the specialist memory clinic but things are shut down there too over the summer.
  4. Don't have sleep apnoea. Am just tired. Have masses of vitamin and mineral deficiencies, iron deficiency due to gastric bypass so that plays a role in the tiredness. My doctors are working on getting all that under control but it is going to take some time.
  5. Hi Steve, yes I take anxiety meds and anti-depressants. Just changed to a stronger anxiety medication 3 weeks ago and it helped quite a bit. I have a great mental health team who are supportive and helpful. It's taken a while to find them but they are amazing. Having the right people to give help makes all the difference. :-)
  6. whotheheckamInow

  7. Hi Scouter. Newbie here too. Had my stroke in December 2016. I can relate to the no energy. I hope you have a fantastic time in Hawaii and enjoy your trip.
  8. Amazon or Ebay ;-)
  9. Hi all, So Friday I have a support worker and a person who will be allocated by the municipality as my assistant coming to the house for a first meeting and assessment to see what I need and what they can offer me. I'm really stressing out about it because many of my meetings with medical personnel have not been pleasant experiences or productive. My husband's going to be here but I am having massive anxiety over having to ask for help from someone besides my husband and a few close friends. Hubby got a new job so he will be travelling a lot and I need help attending medical appointments because I can't remember what people tell me, help with transport to and from places and help with some day to day things. Have any of you had to involve outsiders or social services to get help? How did you deal with it? I just feel really frustrated about not being able to handle things on my own anymore. It's a hard pill to swallow. Admitting to myself that I am not that independent person I was before the stroke is rough. I also feel stressed about having to deal with strangers because I have social phobia and severe anxiety. I know things are usually worse in my head than they turn out to be but right now it's tough. Any advice or experiences would be appreciated. Thanks Sandra
  10. Hey all, thanks for the good wishes. Lin, I'm on anxiety meds at the moment. Don't know what I'd do without them at this point. Going to see the nurse in a couple weeks to check on how I'm doing with the anxiety meds and anti-depressants. I feel like I've finally found a level that works for now so I'm happy about that. Tracy, I'm tired all the time. Not like the kind of tired you can sleep off but so tired I sleep 13 hours and wake up tired kind of tired. I'm hoping that gets better over time too. Thanks for all the advice and reassurance. It's good to know that what I feel isn't unique. I just wish we had better resources where I live and more information available. We have a local stroke association and their next meeting is in August. I have it in my calendar so I don't forget to go. :) I'm thankful I found this community and all of you.
  11. I had a gastric bypass 5 years ago. Didn't lose a lot initially for various reasons (PM me if you want to know more) but have currently lost 220 pounds with 55 left to lose. I'll get there when I get there even though I get crap from the doctors here for still being fat. I was originally a size 34 US and can now fit into a size 12/14 top and size 16 bottoms. My mind hasn't caught up with my weight loss. It's a strange process.
  12. I have all medical people or people involved in social services phone my husband because he is better at communicating than I am. He deals with the practical stuff that I can't handle. Sometimes the doctors or social services send us letters instead. I have an easier time with that because I can read it as many times as I need to. I e-mail because I can take my time formulating responses, save drafts and go back to it when I have the energy and then send off the mail. If I have to have a conversation I prefer either FaceTime or face to face because when I see the person's facial expressions and read their lips I find it easier to stay focused (I still have problems maintaining focus this way too). I used to love talking on the phone for hours before my stroke but I'm just not that person anymore. Those who are a part of my life accept that if they want contact they have to do it in a way that suits me. Sometimes if my phone rings I just don't even bother picking it up. It's a stress factor I just don't need to add to my everyday life.
  13. Hi all, been away on vacay for a few days in Malta. Thanks Janelle for the welcome. Deigh, I have a hard time focusing on things for more than a couple minutes so I don't attempt things that require masses of concentration. My husband says that having a conversation with me is like a roulette wheel spinning, sometimes the ball goes in the little hole and then it pops out again and the wheel starts spinning. Makes for good entertainment though because you never know what you get. Asha, thanks for the welcome too. I will try and set a reminder about the chat room. Might be a bit difficult for me to join because of the time difference but thanks again for the invite :-)
  14. I had a stroke last December at the age of 46. I have emotional outbursts, get angry at insignificant things, am super sensitive to light and sound. I have a short temper and am learning how to deal with it. My husband is extremely supportive but I know I try his patience on a daily basis. I was recently given tablets for anxiety by my doctor and they have helped me chill out a bit. I'm waiting for an appointment for a neuropsychologist but won't be hearing from them until after summer. I'm new to all this too but I would have to say I agree with the posts above, seek help from medical professionals and from whatever other sources are available to you.
  15. Hi all, thanks for the replies. Aanaruk - Swedish, Danish and Norwegian to English (mostly medical and technical). Someone in the local stroke group asked me whether I had problems finding words in all languages and the answer is yes. for example, the doctor showed me a photo of a bus. I could tell him it was yellow, people sat in it and it had wheels but I couldn't find the word bus. I find I have that problem with a lot of things. I just can't find the right word, but I am getting around it by describing what I mean. Many of you mentioned being tired and I am tired all the time. I sleep a lot. I have been put on antidepressants and anti-anxiety medication. They have helped to some extent. Just had the anti anxiety changed from one kind to a stronger one 10 days ago and it felt like a weight was lifted off my chest. I was offered CBT therapy but the problem is that I can't remember things so the therapist asked me to read a book for homework and once I turn the page I've already forgotten what I just read so I have decided not to stress myself out with psychotherapy or CBT right now. I need to take time to see what happens with my memory and then I can look at a strategy to move forward. One of the good things about living in Sweden is that we have a good social welfare network and medical care system (sometimes we have to wait for access to things but it is usually granted) so I won't have to worry about becoming uninsured or the financial aspect. On the medical front nothing much is going to happen over the summer because people go on vacation and things won't be up and running again until September. My doctor has enrolled me in a group mindfulness class starting mid-September. She thinks it would be good for me to get out and meet people and to be able to use mindfulness as an everyday tool to help deal with things. Has anyone else had any experience with this? I'm very fortunate my husband is a big help and supportive. My parents are supportive too but they are in California. We chat via FaceTime on a regular basis. I've discovered that regular phone calls where I can't see a face or lips moving are very difficult so I have my husband deal with phone calls from doctors and medical staff. I try to minimise the things that I find to be stress factors for me. I know I will have to start dealing with these things at some point but for right now they will just have to wait. Again, thanks for all the advice. :-) Sandra