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Stroke Survivor - female
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About NikalPikal

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  • Birthday 01/04/1969

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  1. NikalPikal

    Update on the ovary issue. On December 21 I went to the ER because the pelvic pain was unbearable. They did another ultrasound and CT scan, said the ovary wasn't twisted, and sent me home. They refused to treat my pain beyond one dose of pain medicine in my IV. I saw my family doc a few days later and he gave me enough pain med to get me through until I saw the gynecologic oncologist on January 8. To make a long story somewhat shorter, what initially looked like a solid mass was most likely a blood-filled cyst. So, almost definitely NOT cancer! They just want to do a follow up ultrasound in 3 months to keep an eye on it. That's great news. The only problem is that I'm still having a lot of pain which no one wants to treat due to all if the new prescribing laws. Thank you junkies for screwing it up for the rest of us! I have to go to the pain management clinic next week. The pain may not even be directly from my ovary; it may be adhesions. I've had lots of problems with them in the past. The only thing that will fix my pain is surgery, but the gynecologist is reluctant to do it yet because it's only been about 7 months since my stroke. I just feel like my whole life has been put on hold until this issue is resolved.
  2. NikalPikal

    Thanks so much for sharing your experience. I'm sorry you had to go through all of that! I've got worries, but at least I'm not bleeding to death. I had an endometrial ablation about 3 years ago for dysfunctional uterine bleeding, so I don't bleed at all anymore. Right now I'm just like, I've got this thing inside me cooking and we don't really know what it is and I want it out of me NOW. I'm trying to stay positive and not worry too much. Easier said than done, but I'm trying.
  3. Last month I went to my gynecologist to discuss the little bit of stress incontinence that I have as most mothers do. It got worse after my stroke and I wanted to see about getting a pessary. My doc ordered a pelvic ultrasound and they found that my left ovary is twice its normal size and there is a tumor growing out of it that is the size of a normal ovary. Then my doc ordered a CA 125 cancer marker blood test and it was normal. Apparently, that doesn't mean much except that I don't have that one particular type of cancer. The only way to tell if the tumor is malignant is to biopsy it. So, now I have to see a gynecologic oncologist on January 8. This issue has put all my stroke issues on the back burner. I can't do much in the way of physical therapy due to the pelvic pain. I didn't have much pain at all until the ultrasound. The tech had to really push with the probe to get a good view of my ovary. She said it was hiding behind a loop of intestines. This was a transvaginal ultrasound, so you can imagine how that felt. She was able to push my ovary over to where she could see it. I have had terrible pain ever since. When I see the oncologist next month, they'll schedule my surgery. I will be so glad to get this thing out of me! My gynecologist said the chances of it being malignant are small, so I'm keeping my fingers crossed.
  4. NikalPikal

    Oh yeah, I still can't see far away worth a crap. I'll be interested to hear what your neurologist says. I couldn't get in to one until February 1.
  5. NikalPikal

    I completely understand about wanting to paint your toenails. I couldn't wait until I was steady enough to go get a pedicure. That's always been the one little thing that I do for myself once a month. Now I get a manicure as well because I can't take care of my fingernails myself anymore. With your aversion to strong smells, the nail salon might not be the best place for you. Though, they do usually keep them well ventilated.
  6. NikalPikal

    Sorry to hear your bad news.
  7. NikalPikal

    Yes, please do let us know. I hope you get good news! I think my vision is the problem that I'm most anxious about.
  8. NikalPikal

    I know what you mean. I just got new glasses and I still can't see! The optometrist said my problem has to be neurological from my stroke. My family doc said that my brain is having a hard time interpreting what my eyes are seeing. I see the neurologist February 1. Have you seen a neurologist about your vision problems? If so, what did he say?
  9. NikalPikal

    Hi Mike! I'm glad to meet you. I'm also very glad that you missed the big bullet. I wouldn't wish this on anyone and I don't have it nearly as bad as a lot of stroke survivors. I do worry some about the possibility of having another stroke, but not excessively. I can't drink anymore because of some of the meds I'm on. I only used to have a few beers on Friday nights anyway. I've lost enough weight to come off my insulin and I'm still losing. I call it the stroke diet lol. I try a lot harder to eat healthier. I still smoke, though. I know it's the worst thing I could possibly do besides put a gun to my head. The problem is that I love smoking and I've got a hard core addiction. The stupidest thing I ever did was start smoking. I'm so glad that you were able to quit. I wish you the best! Nicole
  10. NikalPikal

    The other day I was sitting in my chair and my boyfriend's 16 year old son comes to the doorway to tell me something. He was holding one of those little cheese sauce cups from Little Caesar's with the top pulled up but still attached and he was licking the sauce out of it. I said, "Dude, are you seriously eating cheese sauce?" He said "no" and walked away. He came back a few minutes later to tell me something else and he was still licking away at the cheese sauce. I said, "Isn't that gross to eat just plain cheese sauce?" He said, "Nicole! It's a CUPCAKE!" He walked over and held it out to me so I could see it better. Sure enough, it was a cupcake. He'd been licking the icing off it. So I said, "And now you see why your dad won't let me drive." That really is a perfect example of the brain not being able to interpret what the eyes are seeing.
  11. NikalPikal

    Thanks, Becky! I googled it and there are some neuro ophthalmologists in Indianapolis. That's only a few hours away.
  12. NikalPikal

    Yeah, I'm going to my PCP tomorrow and ask for a neurology referral. Right after my stroke I asked if I needed to follow up with the neurologist and was told no. I've only got to see my own doctor once since my stroke. Everything in my part of Indiana is owned by IU Health and it kinda sucks.
  13. NikalPikal

    YES! We're a bunch of stubborn bad a$$ biotched.
  14. NikalPikal

    Yep, I think all of us who have had a stroke have to be stubborn or we'd never get any better.
  15. NikalPikal

    My vision problems don't sound nearly as bad as you guys have it. I don't have dry eye or nystagmus. I just want to drive and I can't see well enough to do that yet.