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Staff - Stroke Support
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About HostSue

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    Blog Moderator
  • Birthday 06/04/1947

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  • Stroke Anniversary (first stroke)
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    New South Wales
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  1. I got that way for a year or so after Ray died, I put it down to anxiety attacks. It passed after a while. It could also be related to the stroke in your case. You might mention it to your doctor, maybe there's a solution. In my case it was easier once I got my head around being alone. I rarely get that now.
  2. Thanks Pam and Kelli. I really value you both. Got to keep on keeping on, the only way we can go is forward.
  3. Asha, I hope you have soon pain free too. Pain takes away the joy in life.
  4. Prayers coming your way. So sorry your doctors don't "get" your disabilities. I found that with Ray too, I was always asked to help him stand, sit, climb up , hold still. I know that is what caregivers do but what happens to those who come without a caregiver?
  5. I can't comment on the aspect of living in a disabled body but on the subject of loss and disbelief I have been known to hear a noise and call out to Ray, who has been dead over five years. I do know he is not here but still waking out of sleep think he is. Some things we can never truly get over or as Heather says can't internalise.
  6. Kelli, that is amazing, you just walked into the woman's life just when she really needed someone like you.I am glad she took up the offer of free classes, hopefully your friendship will blossom there. You have so much to offer as a friend and may be a way of helping give her new enthusiasm for life.
  7. Happy Birthday, hope you and your twin enjoy every minute of your time together. You are right, a little practical help is the best present. Hope you have/ had fun together.
  8. You know how much you mean to me Pam, and how much you have helped me on my journey. I am one of those strange people who do remember others are worse off than me. When I am in pain people like you inspire me to be brave and stronger because my suffering is only temporary. Keep on being you my friend and in the process educating and empowering others.
  9. We say: "Keep on keeping on." I guess that is the same thing. Asha you always have an inspirational thought that resonates with me. Thank you.
  10. Heather our experience of traveling "travel assisted" were mixed, often no wheelchair came to the plane so we disembarked late , well after everyone else did. On one memorable occasion the flight crew came up behind us and one of the pilots pushed the wheelchair. Depending on others to look after us never worked for me although others in our stroke recovery group praised one or another of the airlines for good service. And similarly for cruise lines my advice would be always ask for help and have a Plan B in place in case that does not happen.
  11. The doctors told Ray he couldn't fly in 1999 with his two major strokes. Then in 2006 our daughter and family moved to Cairns and we decided it was worth the risk and had some lovely winter breaks there with family. The awkward part was pushing the wheelchair as I had to cope with our bags and the chair but we managed and it was worth it because it was a way of spending timers other our grandkids.
  12. Hope Spring happens for you soon, just sitting out in the sun can raise your spirits and make you feel better. Mum used to give us lemon juice and honey for sore throats, much better than steroids. Some viruses seem very hard to shake off so hopefully you are better soon .
  13. Thanks for reposting this Steve, we all need a challenge. Come on bloggers - I am sure you can do a 100 things blog.
  14. Hi, I am Sue, the blog Moderator, and I have very little to do as new blogs are rare now. Why not start a blog? You can use it as a record of your progress, as a day to day journal, or to record the good and bad things that have happened to you because of your stroke. You can also tell us who cares for you or who you care for if you are a caregiver. You can post a poem or a picture. A blog is a way of expressing yourself and getting feedback from others. It is a way of connecting to the other people who make up the Blog Community. And bloggers of you haven't been on for a while it is time to update us on your activities too. I like to keep up with you all. You feel like family to me.
  15. Seven weeks ago...

    I had my operation to remove my lymph nodes on the left side of my trunk seven weeks ago, now I am finally healing. With my usual routine unavailable I was glad I found a few new things to do. I also had a lot of visitors, some of whom had never been to my house before. I am not a very tidy person and was a bit worried that some of my friends might judge me on that. I soon realised that most of the people I call my friends love me just the way I am, a very comforting thought. One of the ways I kept busy was a form of pruning where I just cut what I could reach without bending or stretching, I figure I can go back later and cut back the rest. A friend came on Saturdays and watered the garden for me. I wanted to tidy up inside so found one way was just sweeping everything off cupboards and then putting back only what I needed to, leaving more space. It wasn't really productive time but nor was it wasted. And it has certainly made me appreciate the flexibility I think of as"normal". I had community nurses come to dress my wounds so enjoyed a few minutes chat with them and with the women who came to do some domestic chores. Going through this period has made me more aware that it is okay to accept help when I need it. I am in a community that considers anyone over 70 "elderly" so help is available for a price. And accepting that reduces the strain on my daughter and the worry the boys feel because they cannot be here to help. Since my diagnosis with melanoma in August last year I have talked to a lot of people about my case and melanoma in general. Like the support we find here among those experiencing strokes those who have experienced melanoma love to share their experiences. Everyone has a story, some are happy with a good outcome, some are sad. Many people are interested in my experience because our beautiful sunny climate makes melanoma a common occurrence. Some of them understand the implications others still have the head-in-sand approach. Some of the nurses took photos to show a partner the consequences of not going to the Skin Clinic. I am useful as a bad example! I picked up two of the ladies I take to church this morning, I am slowly getting back into routine. One is coming up to her 101st birthday in May, I love her way of enjoying life. She is still living in her own home and manages most of the tasks of everyday living. The other lady is in her nineties and legally blind but manages with some help. They are from a tough generation having come through the Depression and second World War. My third lady is on hospital unfortunately. The school holidays are in another week and I will have Trevor and Alice here for six days. I am so looking forward to the visit but aware I will have to have to pace myself as I will not be back to my fully energetic self and five year olds are a little demanding. Hopefully the weather will still be mild enough to enjoy being outside a lot of the time. There will be opportunities to get together with the other cousins too. So plenty look forward to in the weeks ahead. I just have to stay well enough to enjoy it.