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Staff - Stroke Support
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About HostSue

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    Blog Moderator
  • Birthday 06/04/1947

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  • Stroke Anniversary (first stroke)
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    New South Wales
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  1. It is always such chaos when you go to the hospital, here too, and not having the right meds is typical. Sorry the home had messed it up too. Hopefully you will get the proper medication you need and be able to settle to a better life for a while.
  2. Oh dear what a lot of pain for you to bear, condolences on the passing of your brother, prayers for you and all the extended family. More (((hugs))).
  3. Fabulous news, grandbabies are precious. A bit of a surprise sometimes but always welcome. You will be a fantastic grandmother whatever the little one decides to call you. You can choose a name but they decide what they will call you. I am Granma to two families and Granny Sue to Alice.
  4. You are in a bad place right now, too much going on over which you have no control. All I can do is wish I had a magic wand that I could wave to make it all disappear for you. Many , many (((hugs))).
  5. Hope you get the job Kelli, I know is you will shine at whatever you do. (((hugs))).
  6. Very interesting. I have met couples who have chosen that life and at least one woman but that was in a caravan she had bought especially for that purpose. I think I am mostly content with my present circumstances and it is just that wishful thinking that if Ray had lived and was reasonably well we would have fulfilled our dreams of travelling most of the year.
  7. I guess we all long for a carefree life. I do have dreams of taking off in campervan and going round Australia, that was our retirement dream before Ray had his strokes and one of the things I could not revive when he died. Like you I enjoy the roaming life but as a widow that is not possible. So I live the reality of my life as it is and just indulge in the occasional daydream. Like you I know my limitations.
  8. Once a year the Stroke Club I belong to gets together with four other clubs and we have morning tea with a guest speaker. Today instead we had a group survey as a charity fund has given a donation so that the Sydney based group can supply two coordinators to help the other groups extend their services. It is a great idea and addresses the problem of resource poor clubs going out of business for lack of new members. Our club is a flagship club as we have a lot of people sent to us by medical professionals. I have been a member of WAGS since 2006 and still belong because I can support the other caregivers and survivors on their journey. I have some wonderful friends in that Club who have supported me in so many ways. The discussion group I was in all said that they didn't know how they would have survived as well as they had without the love and support they had received from fellow club members. I agree wholeheartedly. In the bad years being able to tell others exactly what was happening without fear of criticism made such a difference. We all need that, people who love us without wanting us to be perfect, or even rational at times. I am so grateful now for friendship. Just to know that people love me or simply care about me makes such a difference. When I am not well, when I am looking at my life and not liking what I see in the future, when I am looking at the mud not the stars is when I need to know that I am accepted by people just as I am. I support others as much as I am able to, I have always had a great love of people, all kinds of people, and that keeps me going. Today I had lunch by myself in the shopping centre and just sitting watching families eating, laughing enjoying each other's company lifted my spirits. My family do love me but their busy lives mean they don't support me day to day. I know that is typically the case for many others here, we are here, they all live some distance away. When Ray and I were both well and had the campervans there was no problem visiting family and friends but that decreased after his strokes. Now for me as a widow it is hard for me to decide to travel alone to see friends who are spread far and wide. And few come to see me. So it is easier to stick with local friends and leave those further away to be contacted by email or the occasional phone call which means we lose the closeness we once enjoyed. I had some good news last week when I saw the Melanoma specialist, my PET scan showed no hot spots so that is one clear test.I need four to be fairly sure I am out of danger. One down, three to go. I do have several other health problems to tackle so my specialist is making me an appointment with a neurosurgeon to report on the aneurysm in my brain. She said now she has seen it in the MRI she must take the step of involving another health professional. That is another set of appointments to add to my calendar. But knowing what I do about stroke it is better safe than sorry. I am doing a lot of hospital visits, people from the church as well as friends from the community. One of the members of another organisation I belong to has a brain tumour, another a broken shoulder from a fall. My special friend Lyn has been in hospital for four weeks from when his chemo caused his body to shut down. He is slowly recovering but three days on the floor without food or drink have taken their toll. That certainly is a warning to those of us who live alone to make sure others know what is happening to us. I am aware it could happen to me under certain circumstances. I am doing a short course called " Better Health Management" which emphasizes the need to keep fit and take care of ourselves. I know I need to exercise more and keep myself strong. Spring is slowly advancing, sadly with no rain and most of the Inland in the grip of drought. A lot of our wheat, sheep and cattle farmers are in dire straits. Meat prices are rising and the cost of vegetables as they are sourced from distant markets. But I have a roof over my head and food on the table. Really we have little to complain of don't we? That is why we need to be thankful for what we have and mindful of the needs of others.
  9. "Marriage is made in heaven but has to be lived out on earth" is an old saying Asha. We come together in marriage as human beings with faults. My Ray was not a great one for saying "I love you" but thought he expressed that in all he did for our family. I desperately wanted him to say the words but in the end decided that this was not his way. We lived in relative contentment for 44 years. I miss him so much still.
  10. Last Friday would have been our 50t.h wedding anniversary had Ray still been alive, instead I went through the day alone . We were together for 44 years although separated due to ill health for the last 15 months. I still miss him, always will I guess. I had no phone calls so I guess no-one else remembered. I put a wedding photo on my Facebook page and got some nice comments. I am glad some people do understand the sadness and regret the day conjured up.
  11. Happy Friday, hope the sleep made a difference. I have a few medical appointments too. Life goes on,just not necessarily life as we'd hoped it would be.
  12. It is common that people in nursing facilities take a while to find friends, I'm glad you have made some. Sadly because your best friend is older your time with her is limited. Enjoy her company while you can.
  13. Looking forward to warmer days

    I am surviving winter, in five or six weeks Spring will be here. This has been a cold winter but today was mild and most people seemed to appreciate the day, even saw some out in short sleeves. I am in my busy week, hospital visit today, birthday morning tea tomorrow, church women's meeting on Friday I still like to be busy just not too busy. I have started a new course called " Better Heath - Self Management" It is a free course, a government health initiative to tell us to meditate instead of taking pain medication, or is that my prejudices showing? When I talked to the group about my problems with Lymphoedema I got some blank looks from the nurse conducting the course so I guess she has some research to follow up on. Ignorance is not always bliss. I have an appointment next week with the Lymphoedema Clinic. What I am hoping to get from the course is some help with my gait since I am having trouble walking down stairs still. The family are doing well now, all the grandchildren back at school. I did get to see the three grandchildren from Adelaide but not Shirley and family as they were suffering from chest infections etc. I think we will all be glad when Spring arrives I don't know what plans to to put into place this year with all the restrictions of my health problems. I can only fly for three or four hours so my plan to go to England next year is no longer possible. I can't do international flights at all now. Such a pity with all my cousins in England and Canada. So what will I do when the warm weather comes? Think local. Be happy I am still relatively able bodied. You would think by now I had learned not to keep worrying about what I can't do and concentrating on what I can do. But moving forward through life changes is always hard to me. For me life settles into a routine I can live with, the next minute that routine is interrupted and I feel as if nothing works in my world. One thing leads to another and everything is wrong. It takes a while for me to see a way forward again and find my new normal. So my new normal now is venture somewhere within a more realistic distance from home. My life is still full with church and the Lions Club and the various forms of volunteering I do. Last Saturday the WAGS group had "Christmas in July" an Aussie custom that is just an excuse for a mid-winter get together. It wasa great lunch and a good afternoon of catching up and I really enjoyed the company. I do keep in touch with as many people as I can but old friendships do fade. Sad to see signs of strain on the faces of some of the older caregivers now and know that in a way I am fortunate that part of my life is gone now. I am glad I was in good health when I had Ray to care for. So I get the results of my tests next Wednesday and go to the Lymphoedema Clinic on Thursday. There is always some anxiety about the results but we all have that when we have tests. I will continue to take life one day at a time and get what fun out of each day that I can. I am looking at life ahead of me as calmly as I can. And yes ASHA I am trying to go with the flow.
  14. I hope all goes well with your Dad's treatment and he makes s good recovery. I think the anxiety attacks are fairly normal after a cancer diagnosis and should decrease as he gains confidence in the treatment. I am pretty anxious when it is test time again.
  15. Kelli well done with the knitting. I knit and crochet through winter as to me it is like repeating a mantra, the repetition relaxes me. I am a plain knitter so mostly I knit scarves which I put in the homeless box. Good luck with the job application. We all need something that fulfills us, if this is not it keep persevering.