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Staff - Stroke Support
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About HostSue

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    Blog Moderator
  • Birthday 06/04/1947

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  1. HostSue

    Thank you for posting this Kelli. We need to pray for all the people affected by this horrific event. And then keep praying for our own neighborhood that this may not be repeated among those we know and love and never want to lose. My heart goes out to all affected by this tragedy. I too have friends in New Zealand and this is another reminder that out of sight should not mean out of mind.
  2. HostSue

    Me too, prayers for your Dad and you too. Being on a list can be frustrating because they seem to move slowly but at least you have hope now. I am glad to hear you are enjoying chat. Keep up the good work.
  3. HostSue

    Welcome back Sarah, as I said in my message I worry when people disappear from the Blog community. Glad you finally got the shower in too, much easier on your back and with summer coming a shower will be quicker and easier from now on.
  4. HostSue

    Thanks everyone, I am just going on every day in my usual way until a decision can be made. Lovely autumn weather now so all is right in my world.
  5. HostSue

    Thanks Tracy, got an appointment with a specialist in thyroid problems today for the 29th March, which is pretty quick. I hope that will give me a range of options including the operation. I like to have full knowledge of what is going to happen next, and some knowledge of ongoing care before I make a definite decision. Then when everything goes wrong at least I know what should be happening...lol.
  6. HostSue

    Hard decision time

    I was diagnosed with thyroid cancer this morning, my melanoma specialist Prof Saw will find me a throat specialist who can see me locally but who operates in one of the Sydney hospitals. Then the throat specialist will liaise with the neurosurgeon who wants to operate now on my brain aneurysm to see who gets to operate first. Not a good day. I wrote that to a few friends yesterday. I was in shock, I had gone to the doctor to discuss some options and he read out the biopsy report and there it was, the biopsy had shown a tumor in the node that had doubled in size. A bit of a surprise as the last report a year ago had said the nodes were all benign. But my mother had had her thyroid out in her fifties so I guess it is familial. Dash it all. Another operation to endure. I know it is my age, for some of us reaching 70 is one bridge too far. So it is a waiting game again. I will hear from the melanoma specialist again with the information on the throat specialist, he or she will get in touch with me, maybe get some more tests done and then book me in for an operation. It would be nice if I had a choice but I don't. Remember I had the other operations in order to see my grandkids grow up? I guess the same applies. The aneurysm in the brain operation is more serious of course, no laughing that one away. But an aneurysm is a small unexploded brain bomb and it is either get it tied off or live with the uncertainty of when or where it will detonate and blow. That is indeed a dilemma. So I will have to screw up my courage for that one. It is a pity somone else couldn't make the decision for me but I am still in my right mind so the decision is all mine. So how do I feel? Not confident that I have a future. I say that knowing the side effects of both operations, the downside of doing hospital chaplaincy. Some people come through operations so well, recovering fully, some people don't. Either way it is a long recovery and life will be different to what it is now. But that is the good news in what may be an end-of-life experience. I say that because one of my younger friends (58) from my stroke recovery group died this week after two massive bleeds, one on the left side of the brain one on the right side. Life is uncertain. Where does my Christian faith come into all of this? I don't know. I have always known life was uncertain, I was a caregiver for all those years and watched Ray have strokes, falls, fits and seizures. I saw how very brave he was and how he struggled back each time. I want to be as brave and determined as he was. I want to go into the operations knowing that things can go wrong but be brave enough to be able to take that chance. That is what living by faith is all about. So if I write a few down blogs or put comments on Facebook that don't sound like my normal cheerful self you will know why. The rain falls on the just and the unjust alike so don't feel sorry for me or worry about me. But do keep prayers and positive thoughts in your mind for me for the next couple of months as I deal with some of these awkward decisions. And help me to keep smiling when there is not a lot to smile about please.
  7. HostSue

    So true ASHA, whatever you do if you do it in the right spirit is an offering up of something special, if you like it is a prayer. So much of life is selfish pursuit but whatever you do with pure motivation is bound to bring you joy. Keep on widening your mind to embrace the positive possibilities in life.
  8. Please say a prayer for Pam, she has had a really bad time the last few months, with tremors in her hand that make typing problematic, swelling in her legs that has caused great pain and ulcerated and the medication for which has caused many unpleasant side effects. She has finally got some professional treatment and is slowly recovering but there are many other problems still to overcome. Those who know her in the Blog Community please send her a personal message as she feels very isolated right now.
  9. HostSue

    Your Dan certainly has a way of getting his message across. Nice to hear from you. Hope you are doing okay. For me it is one day at a time but I do enjoy life, always something happens to make me smile every day. Today it was two little girls sitting at the next table having a milkshake and blowing bubbles, typical four year olds. Hope you feel great when your Spring comes, I'm sure you will as you've had such a harsh winter
  10. Mark, I have made many friends due to Ray's strokes and our stroke recovery joirney together. When I posted this topic my grief was still fresh and painful but now going on for six years later what I felt then is still true. I deliberately reconnected with old friends and I am so glad I did. Now some of them are closer in heart than family. I am so grateful to my Strokenet family too particularly the Blog Community for always being there for me. Sorry you lost a good friend. I hope you make many more.
  11. HostSue

    ASHA, going through the last year of uncertainty has not been easy for me. I felt as if my life was on the line. Then there were all the deaths through the year, I got sadder with each person that passed. Of course we do expect our older friends to get incapacitated, even to die but in reality this robs us of their support and guidance in our lives. Life can be sad when you are older. But I try not to dwell on that now but to enjoy each day.
  12. HostSue

    Unfortunately the stockings are for life, lymphoedema never goes away. And after I pass this latest set of tests I still have two more years to go to be declared free of cancer. So I have to be patient.
  13. HostSue

    Thankfully very few changes

    I have a lot to be thankful for. My daughter Shirley took me to see the specialist in Sydney today. Luckily the heat of yesterday was replaced by drizzly rain but as usual that just made the traffic worse and so our two hour journey took half an hour longer. I know why I love my part of the coast so much, it is because I would much rather listen to the sound of waves rolling in to shore than the sound of squealing brakes and the horns of impatient drivers. Or park by the lake instead of trying to find a parking spot among the high rise city buildings. I have several tasks to do when I get there. I filled in the research paper I usually do on my post operation feelings which becomes part of a national survey, then I was interviewed by one of the associates which is part of their training and then I can see the Professor herself. It seems there is not any sign of further melanomas, no signs of secondaries. I do have some age related problems which the young doctor explained but these can be seen to one at a time. I don't have to see the specialist again for twelve months pending two more tests to come, one a biopsy and in March there is the brain scan and the visit to the neurosurgeon. I am so grateful for everyone's prayers. It was a tiring day but just to know I have passed the first year without a recurrence of the melanoma and no secondary sites is a great relief. I still will have some residual pain from nerves damaged during the operation but that is a small price to pay. I have been given another year and will make the most of it. My word for this year is enjoy and so far there have been few days I haven't enjoyed. My life may be shortened by this past year's troubles but it is still a good life. The week leading up to today was busy with all the tests but even then it was an interesting week. After one of the tests a woman friend picked me up and we went to lunch, a thoughtful gesture on her part. I am blessed with good friends. I don't have family close but Shirley is only and hour and a half away. I also had lunch out with my ex-daughter-in-law and caught up with her news. She is the mother of my grandchildren who live in Adelaide with my son and his new partner. I am lonely still, really no getting around that. I have plenty to keep me busy, I have friends locally I can connect with as I do, but when Ray died the centre went out of my world. But we widows and widowers just have to rebuild our lives and I have done that. Like any rebuild it includes things from the past as well as relationships which are more recent. The friends I have now are from different parts of my journey. It is inevitable that relationships change when your partner's dies and some friends drift away and new friends take their place. And of course at my age many older friends die. It was nice to have my daughter stay overnight and to and from Sydney we talk of so many things. She told me she now uses a lot of the sayings she heard from me and her father and her kids say: "where did that come from?" It is good to have a laugh together. I know she is busy and am glad she feels she can spend the time with me. It means a lot to me. Now it is onwards and upwards. No, I am not fixed or cured or guaranteed a future but for now I have a good feeling about the year ahead of me.
  14. I haven't had a stroke, so I just blame my lapses on my advanced years. You will work it out in the end. I know you have a fine intelligent mind so it is just a case of retraining it. Though I guess you must be sick of people saying that to you.
  15. HostSue

    Kelli, you are a champion.