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  1. Today
  2. SueC

    Mid July - a Tuesday Morning

    So here I am, almost 2 years since my stroke. I can't believe how much life has changed. For the better. There is a saying that when one door closes, another door opens, and I have certainly experienced that in a big way. My stroke was August 29, 2018. And now, I have finally finished all the stages of grieving. And the stroke to me is the equivalent of going for a hike, and tripping over a root. I now not only stopped laying on the ground with dirt all around me, I have stood up and I am continuing my hike. While I was laying the ground, I had a chance to see all the life teeming around me that I wasn't aware of. In other words, I became more aware of my life, what I had, what I lost, and what I was afraid I wouldn't regain. I can't begin to say how grateful I am for this site. I don't think anything has helped me as much as being able to share my experiences with others who have gone through the same thing. The rehab centre helped, but didn't pull me out of the hole I was in mentally. Making friends with new people who really understood what life was like after stroke. That's what made all the difference. I wasn't alone in my feelings, my fears, my frustrations and grief. I learned different ways of coping. I learned the brain is amazing, that some recovery is possible. That new experiences and learning new things is really exciting. This is something I would have taken for granted before the stroke. What amazed me the most was how much my art has improved. The part of my brain that was damaged by the stroke made it impossible to pick up a paintbrush. To see with an artist's eye. To want to use colour again. Then a friend on the chat suggested I use a app to do paint by number. My brain went crazy - I was in heaven, and wanted to paint again! And I am . A lot. And it's more fun all the time. I found a website in Germany that teaches a loose style of painting, and I love it! I joined the club, bought a one year membership. And there are lots of videos on painting. In German. German is my first language, although at age 62 I hardly have an opportunity to speak it. After watching a few videos, my ability to understand it is coming back. So here I am, painting, and relearning a language. Would this have happened had I not had the stroke? I doubt it.
  3. I find deadheading the flowers in the morning very therapeutic. It gives me a chance to have a visit with all my plants, and see how they are coming along. With my dog at my side, and the birds singing, I am in Paradise.
  4. Not seeing life in them yet. Did some clipping off of flowers. Gave a little water. Now that I've remedied the water situation.
  5. heathber

    Fingers crossed they manage to bounce back, these things happen, I tend to kill plants with kindness, especially in pots.
  6. heathber

    Nice to meet others who understand
  7. Yesterday
  8. Hello everyone I just wanted to invite everyone to come and join in at Room #2 Stroke Survivior Chat. I will be hosting Mondays and Wednesdays from 3-4 EST! 🙂 http://www.strokechat.net/
  9. That's how I view it and I like it. Seems soothing.
  10. alansd

    we were sitting on the porch of our new "cottage" home enjoying the dog walkers going by when we saw a young muscular guy with a huge great dane in solid grey.Beautiful hound. we waved at the guy and complimented his dog. On his way back he came across our lawn to speak to us, but though his lips were obviously moving no sound was heard, when he came close enough I could hear his almost perceptible words, He showed us his cell phone where he has a text that explained he is Bob who suffered 3 strokes at age 28 after a mosquito bite gave him encephalitis. So wow! I remarked at his physical condition and he said he works out at the nearby gym.Looking like a bodybuilder, and walking quite well.We spoke about my stroke and my tiny Yorkie who stood up to his massive Dane.She's such a tiny beast!or thinks she is, ha! I invited Bob to stop by and chat anytime.
  11. swilkinson

    I am glad that you had the celebration for Gary and it was great that so many could be graveside with you. Carmen and RED were special to make that effort and that shows you how much they appreciated Gary and you. Stay cool in that hot weather, we had those temperatures when we lived at Narrandera and a night swim in our above ground pool was a real blessing.
  12. SarahR

    Mini Memorial

    I traveled to Colorado last week for a mini memorial, celebration on what would have been Gary's 73rd birthday. His former caregiver, Carmen, who came up from San Diego to go with me helped with most of the driving as it was a long trip. We didn't make it all the way through NM without a stop, but nobody insisted we have to quarantine for 14 days (even though the signs along highway in Albuquerque were stating that all visitors must quarantine). We weren't really visitors there, just passing through - only stopped for gas and a sleepover along the way and always wore our masks outside of the car. On Tuesday, the 7th of July, we took flowers to the grave site and placed them in the vase provided with headstone, which was at the site, but not yet fully set in the ground. We met a few long time friends (over 40 years each) at the cemetery and sang Happy Birthday (in Heaven) to Gary, then headed to local restaurant for a lunch with them. Wednesday, the 8th of July, we headed to the cemetery to meet up with about 10 family members and another former caregiver of Gary's. I had scheduled that meeting for an hour later and it was already getting up in the 90s in the area, so we tried to keep it short. Our oldest son, Vince, brought a huge American flag to put in ground above the headstone and cued up TAPS on his car stereo to give his Dad the proper military honors. We gathered, with masks on, in a semi-circle and had each person give a short memory of Gary, as a brother, a Godfather, a Dad, a patient, and a husband, his sister read a beautiful poem, and I ended with a reading of the poem "Remember Me." Then Gary's former caregiver in Colorado, Red, started us off in singing Happy Birthday to Gary. It was a small group: a brother and sister, two Godchildren, two former caregivers, our oldest son, two grandchildren and their significant others and myself. We headed to lunch at Perkins after the gathering and then back to hotel. Carmen and I were up and out on the road by 5:15 a.m. the next morning and drove straight through to home in Arizona. It was a long day and we finally got home around 10:15 that night. Dogs are happy to have me back home, and I'm staying in for at least the next three weeks after hearing how the COVID-19 cases are still spiking in AZ. It's up over 110 all week, so better inside with AC than outside sweltering. I might hit the pool at night or early morning, but even the dogs don't want to go out in this heat.
  13. Hi chris i see this is a old post. It i dont get here much being so busy but i can feel for you. 10 years ago i had a ischemic stroke in thw middle of the night it Effected my ballance bad at first and my speech. Ballance is better but im older now so that sucks. My speech is better but still bad like ordering a “pupu playter” is near imposible. I was divorced and moved to florida with my older brother and live together. Then 5 years ago now he had a stroke that paralized his right side and was in rehab were id did come back some but not great. But he was doing good we boated together he ever was riding seadoos but as time went on he stamina for walking went down so he sends me in everywhere he needs me to get bis pills out and refused to do it himself he takes about 10 differnet pills i have to cook and he isualy says it sux and dosent say what hed like i clean up after him and rhe house and usualy it lisses him if im doing it around him we bave two dogs i care for and if i fo out to work in rhe yard or take rhe trash to the road the dogs will bark wantj g out with me and my brother *beep* and i hear about rhat. so your not alone ive seen it from both side As im just a caregiver. Unapreciated jjust exspected after my stroke my adult son cane down here to help. But decided he really didst want to help he nust was looking for what he could get and not has nothing to so with me and bavnt seen bim in going on 10 years. So it could be worse hang in there.
  14. heathber

    Thanks Becky, It has been repeatable although it still doesn't feel quite real and is sort of scary. Last week we ran down the driveway 10 times (using the slope momentum to compensate for my lack of push off strength) Not happy that it looks like I'm going to be excluded from physio this week. as I'm off for another Covid swab test. I know things here are a lot better than many places, but it is starting to get to me.
  15. Last week
  16. I used to be a full carry everything/hike camper. But with a dodgy leg and only one useful arm am yet to return to it. Putting up a tent on my own is currently beyond me, and bringing one down and packing/rolling it tight enough for hiking is even harder. But, I have done a few experimental camps (in controlled environments) with a friend to do the actual pack/unpack setup the tent bit. A campervan is on my one day list (have to win the lottery first, and that's not likely as I don't buy a ticket 🙂)
  17. HostAsha

    Mark : This sounds like good therapy hour nothing wasted here, glad you are keeping yourself entertained in your garden Asha
  18. becky1

    Heather, Congrats on your progress in running! I know that's been a goal of yours for some time, and you've worked very hard to achieve that goal. Well done! Becky
  19. Last evening I had to go on defense mode. We have these planters and this year I over watered with all the heat. Well more the drainage system I discovered had the drainage hole still with the punched out hole still in it. I think it's too late for the petunia's this year. The rest may come back. Petunia's I doubt. The little mini shears I find much easier since I did most dead heading by pinching. Petunia's are sticky. These are great and I have to wash them but its a game for me to clip the dead flowers out. Not always perfect. Have to mentally think use my right as I favour my left so much more now. I find it very relaxing to snip off the dead flowers. Now that its summer time its become one of my daily routines. I almost treat it like a game seeing how many I can snip in repetition. Left hand always wins. Might try one of these days to turn my tens unit onto my right arm and see it that helps. Anyhow wasted too much of my morning trying to do this. The planter that drowned out the petunias is now working fine. See if they recover.
  20. I wrote on another comment you had posted and somehow deleted it.. I think. Regarding my light side of writing. Discovered font and size and quoting so if I duplicate it sorry. Still trying to wrap my head around the methods here.
  21. Madade

    Its really confusing for me Asha. Its not easy I've found. Even blogging here is a bit confusing with my abilities.
  22. swilkinson

    Some nice pictures, love the sunflowers, they always remind me of our family's time out west. They did suffer damage from birds though.
  23. swilkinson

  24. Liam

    Thanks for the feedback Kelli, did you find any exercises that helped as my stroke has affected my cerebellum?
  25. ksmith

    I was doing the exercises for a few years. In therapy 3x a week and home exercises too. Unfortunately none of them worked. That was mainly for the areas in my brain that were effected more from the stroke. Those exercises were good for eye coordination and balance and , yes, I had eye issues but no exercises were able to fix them. I had to have surgery to realign my eyes. Some problems are from inner ear issues. Again, mine were fine but my cerebellum, controls balance amount other functions, was damaged so none of the things I was tasked in doing would've helped. It sounds like something I had to deal with. The muscles in my eyes weren't fully stretching to allow my eyes to remain level and focused. I used prisms to help with the gaze to keep better focused. With the nystagmus, my eyes bounce and still bounce so no matter the prisms to see one image, together, i still had issues, My neuro ophthalmologist and I had decided that I , either, wear a patch over my eye or a contact to block my sight , when wearing. I'll admit I'm vain so I chose the patch. I still have balance and dizziness problems, especially when I'm tired or bad weather. It's been over 11 years so I've come to adjust. It's not sun all the time but I can manage. I walk like I'm drunk but it is what it is
  26. HostAsha

    I have never even tried uploading pictures here part, you are techie guy who is fearless in exploring technical features Asha
  27. Willis

    All I can do is sit and look and enjoy your talented creations! Thank you
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