• entries
    273
  • comments
    1,378
  • views
    91,954

Ethyl on Steroids


Ethyl17

1,023 views

I think most of you already know that I am a Type A personality. This helps with the organization and routine here and I do have to remind myself to rest. With Sue's advice early on, I always nap or rest when Bruce does, after lunch. And I found when I insisted that I do this every day, things started to even out. Certainly my attitude and focus.

 

Back in early March, I mentioned that my back-hip-knee were somehow injured. Very sharp, direct pain. Weird thing was this happened when I was standing. I felt no pain bending, lifting, transferring Bruce. Doing steps relieved it. Motrin, Tylenol, heat and ice offered no relief and I found myself slowing down and sitting most of the day, just to be out of pain. With the insistence of Julie and a friend at work, I knew something had to be done. With snow scheduled for today-LOL-after 70 degrees two weeks ago, I knew on Friday I had to get out and get the errands done. That being so, told Bruce we were going to the Walk-in Clinic. 2 1/2 hours. He was a prince. Tooled himself up to a magazine rack with his glasses and every once in a while, asked at the desk how I was doing. For the X-ray wait, I sat with him and then walked over to pick up sandwiches because I knew there was no way I was going to be able to do lunch. Would need the time sitting or laying down to relieve just the examination pain. Turns out a pinched nerve.

 

Dropped off the Rx, since later we were picking up Leo and then going to get the truck-yet again. By the way, Mechanic just put in a second catalytic converter, drove the truck around with his lap top connected until the computer came back, then ran it through Emissions. Charged me $20.00 for the Emissions. Leo and Bruce went off on errands for Leo. Leo made Bruce walk into the pet store. Bruce sat in a chair and then Leo brought the truck up, so the walk back was shorter. Bruce made Leo take him to dinner. Funniest thing about all this was Leo didn't ask me for the money for dinner-LOL. That was a first.

 

I started the Medrol dose pack at work. I have Tramadol for pain. And I caught up with the dosing this morning. Doctor warned me not to overdo. I am sure most of you know what Prednisone does to the body. We caught up with showers this morning. Usual routine, but then the Prednisone kicked. I am at 100 mph. Cooked up a storm-even made Bruce a birthday cake because this time next week, when it is truely his birthday, I will not be on Steroids! No nap and tonight did have to take a Tramadol because I did not rest like I was supposed to. Hope tomorrow to get some cleaning done because then the taper starts. I slept well last night because I was exhausted, but with the levels at their high tonight, we shall see. Will maybe washing floors at midnight! Bruce said at bedtime "I don't know if I could deal with this all the time." LOL But I can see now why my Mom used to beg me not to taper her.

 

I hope I can remain high enough to really help Bruce physically this week-maybe more pool. For all of us caregivers, Doc says this was caused by twisting. I had to really think about that one as I am always so conscious of my body mechanics. I am sure this is getting the WC lined up for in and out of shower. We are floor short about 3 inches for that last centering and I have to push or force the WC. Unfortunately the WC must be at 90 degrees to the shower in order for him to reach the grab bars. I could fit the travel WC, it is smaller, but Bruce has gained so much weight don't know if he can even sit in it anymore. However, I did mention that he could with his cane do the three or four steps from the sink to the shower. Getting back would not be a problem because the WC is set up without him in it. Bathrooms are always so scary. I may have Leo try this during the week.

 

If I ramble on this week, you all know the reason. Good week all, Debbie

8 Comments


Recommended Comments

You a type A personality? No! Say it ain't so! :)

 

I'm glad you finally had it looked at and it's no more serious than it is but please take it easy and do as the doctor asked...Prednisone...Just what you needed...:)

Link to comment

i know you are a nurse--- so my layperson advice is probably not wanted or needed but we all need to " take care of each other" watch out for that tramadol--- it affects everyone different. for me it knocks me on my butt. and i would be unable to help dan if need in middle of night. luckily i found this out prestroke. but i swear i darn near killed my self with it. it relaxed my throat so much i could barley breathe. this was after a major surgery ( my own bowel obstruction) and before dans stroke and my moms death. so my mom was here and able to help me.... now there is no one - yah i have people my kkids ect. i even have a friend that is a very good RN but in the end she has no idea about daily- daily caregiving. just a thought nancyl

Link to comment

Debbie, I guess I need to set myself up as an example. An example of what NOT to do!! Caregiving is rough on the back. You do not realize for a long time the many ways that lifting supporting is really taking a toll on our back. For years I pushed through the pain. But now I have permament damage. The weekness was soundly in place before I was t-boned in an accident almost two years ago. I am now more sensitive to the little things that hurt such as bending over to tie shoes or just supporting Dick as he walks. Those big things like showers and transfers can put me on my back for a couple days. So my advice is to baby your back a bit and give it a chance to heal. I too tend to go 100 mph when I have the right meds to curb the pain but that only makes things worse in the long run. So think about what you would make Bruce do if he had the same diagnosis!

Ruth

Link to comment

Debbie,

I am afraid of a twist. That can happen so easily. When I put the weak leg into the car. I bend and twist. That is not the easiest manuever. But, I am hoping that my swimming keeps me in shape.

 

Take is easy. I have never had steroids. But, I can just imagine if I got on some.

 

Ruth

Link to comment

My Mom too was heartbroken when the doctor took her off Prednisone. Sounded like a good one to me, although I never thought about the sleeping part! Now with Ray being on so many different meds, all with different side effects, I'm afraid of them all! The only thing I take is simvastatin and I beg the doctor to let me stop that even.

 

Our bathroom doesn't even have bars, I just put Ray in the shower stall on his shower chair (or whatever this thing they gave us is called). Our shower has a glass door and in the beginning, the home nurses freaked out when they saw it, said I had to take the glass down and replace with a curtain. Eeeewwww! so they refused to bathe him. I can squeak him in there myself somehow; he can stand on his one leg and pirouette around, then I tell him every time "..and they said it couldn't be done!!" Talk about living on the edge! I hold him up but if he ever collapsed there WOULD be some major trouble. My lucky thing is I've been going to my local gym for classes in yoga, Pilates and weight lifting for the past 5 years, long before he got sick. I still manage to sneak out for early morning classes a couple of times a week, and try not to feel guilty about leaving him sound asleep at home for an hour or so. So far, so good. I tell him all the time, if I get hurt, we're in BAD trouble........we have NOBODY that could help us.

Link to comment

Wow Debbie!

I know how you feel. I have been on long term steroids in the past for my Crohn's disease, Gave myself shots of ACTH every day. You're right, the energy is amazing, but who can sleep? And of course the crash when the dose is lowered is tough-- just take it easy so the ol back has a chance to recover, but of course you know that better than me. Take care, Bev

Link to comment

You can do it, I got faith in your abilities! For you there is no stopping your abilities and stamina!

Fred!

Link to comment

Debbie,Gotta thank you. I read the part where poor Bruce said that he didn't know how much more he could take, andIgot this image ofhim watching you run all over the place, talking 3000mph. Then Bruce sayihg, "What now?" Best laugh I've had in awhile.Thanks,Becky

Link to comment
Guest
Add a comment...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.