• entries
    273
  • comments
    1,378
  • views
    91,954

New plans and new developments


Ethyl17

1,360 views

So, I made the decision last week to get Bruce back on the therapy treadmill. We plan, God laughs.

 

He was decerted from PT on Wednesday, my last day of instruction on the Estim bike. I am so thankful and appreciative that his PT was able to keep him paid for since January. I don't know how she did it, but am so thankful. Bruce's next Botox is June 6th and OT wants him back. PT, I am pretty sure, is out of the question.

 

Bruce is not doing well. He is now refusing to do anything with the Caregivers here while I am at work. Leo can usually coax him into his duties, but with Cathy, Bruce walks all over her. When I question him, it is always "I don't know." He knows that regardless of whether he is in bed or not, when I get home, if he did not do his teeth and toilet before going to bed, I am getting him up. Nevermind that I have been at work and the extra work he is giving me, he just refuses to do it.

 

I was thinking of this last week. There is no way I can take him to work out every day and still go to work at night. I have to be with him in the pool and hold his right leg in the bike; plus everything else. But my thought was to try it for a couple of weeks and see how it goes: two days on the bike and two in the pool and then maybe Saturday in the pool.

 

Things are good here in the house. We are in a good routine and I am on top of stuff here. Plus Cathy does a lot with the cleaning and I can leave cooking for Leo, with hopefully extras to spell off other meals.

 

So of course at 1:15 am Friday, I wake up out of the blue, no warning-coughing and sneezing like a maniac. I have never had allergies, but that is not to say one can not develop them. I kept both of us up all night, finally took a Mucinex D, which just opened me up more-I feel like a mucous faucet-lol! We got through Friday-did paperwork. I did go to work.

 

The weather is just wonderful-warm days, cool nights. Mary Beth suggested I shut the windows and turn on the air, but I am the same in or out. Bruce chooses to stay in-with his TV-if we are not going out in the vehicle. And I am just too sick to argue. I did manage to walk today, but no go with getting him out.

 

So of course, we now have a tropical storm to deal with Monday through Wednesday. I am hoping to get him out tomorrow. We don't have to go to the grocery store, but we can always use milk and fresh produce. I am cautious with my new back issues taking him down the ramp in wet weather. But if I remind him that he needs to have a "heads up", he is usually on deck. I did slip last Tuesday, but he caught it and we were OK.

 

We have a 9am time slot on the bike Monday and Wednesday mornings. And I want to do the pool at least on Tuesday and Thursday. So far, in conversation at least, he is on board. The one thing I do know is that Bruce is fully aware of his role in all of this and if it takes me to make him happy and comfortable in doing it, I have to at least give it a try. I will make adjustments as to my own schedule as needed.

 

I do have plenty of Vaseline to offset the nose-face soreness. Have been through three boxes of tissue in 24 hours. One thing I do know is pool group frowns on mucus output-LOL. Will let you know, Debbie

4 Comments


Recommended Comments

did dan and bruce change places or something? dan has been more receptive of things and bruce less ( i think).... what the heck.... the things in stroke world we cant explain... I'm sure dans receptiveness will run its course and i'll be back at step one again... like you said, we plan and god laughs.... your the best debbie never forget that...... nancyl

Link to comment

Its a switchback ride sometimes and your direction or that of your care recipient seems to change so many times. Reading back in my blogs over the last six years I see many time when Ray starts therapy, exercises more, gets better, slacks off, settles for TV etc, gets less fit. It seems as if there is a time of good results followed by a less active period and maybe that is how it needs to be. We are not training Olympians we are helping stroke survivors get fitter, a very different scenario.

 

Debbie, remember to plan for some good times too, take Ruth and William as your example and try to get out and about as well as just going to the pool. We all need to put some time into simply enjoying summer.

 

Sue.

Link to comment

Debbie, you are always thinking of ways to help Bruce regardless of your own health. For that I applaud you. You are so organized and ready to step up to the plate for anything.

 

We have been having gorgeous weather here and had a much needed downpour yesterday. The weather is getting hotter tho this week.

 

Enjoy the time out with Bruce or just walking for yourself. Leave the housework and cooking to Cathy and Leo. Also, don't forget one of the best remedies for a cold - chicken soup!

 

Julie

Link to comment
Guest
Add a comment...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.