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Tuesday, July 3, 2012


SandyCaregiver

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Yesterday I did what others have prompted me to do - took care of myself. Time to put away the Cinderella attitude. When my husband was in the rehab and after he first got home, I always tried to look my best, look like me. I wanted to make him feel better when he saw me, and I wanted others to know I was happy my husband was home and I COULD do it! Somewhere along the line, I quit looking after me. I think it came about because once I was the one doing all his grooming and dressing, my brain checked those things off for the day, and the prompt to do them was gone. It never noticed that I had done them for someone else, instead of me, it just checked them off. So yesterday, I dyed my gray roots, showered, shaved my armpits, put on a light splash of make-up, dab of perfume, earrings and it really took very little time.

 

Another thing, Friday, after 2 weeks of blood, sweat & tears, I submitted hubby's Disability Application & Report. Monday July 2, was the phone interview. Well, I have no idea if it will sink or swim, but I feel good not having to work on it again and can get all those papers off the table!

 

I have to say that it is wearing to pass mirrors of yourself and see yourself looking haggard. You feel a little worse everytime you see that pitiful version of yourself. Today I'm groomed again and I have to say I feel on top of it all!

 

Yesterday, husband was wincing and I FINALLY was able to discern that it appeared to me he was having sciatica pains. I told him to get up, he was on his butt to long, and we'd do the driveway walk. After we came in and he watching watching tv again, in just a little while he said, "you know, I haven't felt that pain since we walked(well, I understood what he said) :)

 

We were up in the middle of the night, like usual from about 2-4am. We ate our cereal, nana, blueberries and got breakfast out of the way, since meals on wheels comes around 10:40 with lunch! Hubby started the day by sitting in the screened in porch till it got too hot, where we drank our juice. Then we went to the front and did his practice walking up and down the driveway. The lunch arrived, then he watched just a little TV and it was naptime for him. I need to pay some bills and check on some disability stuff from his work.

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hi sandy :

 

welcome to our blog world, I have found blogging hugely therupetic for my soul. Stroke affects whole family, survivor as well as caregiver. I am so greatful for my husband who held the fort till I collected pieces of my life. I stroked at age 34 in 2004 which left me paralysed on my left side, it retired from the job I loved. I struggled for first few years but with loving support of my family & friends I have able to rebuild my life again today I can look back & view stroke just as speed bump in my life's journey. when you feel you are drowning in ton of paperwork, just hold on & remind yourself this shall pass too, keep on doing what is required for that particular day. post stroke I have realised you have to take one day at a time & do right things & things will work out for both of you

 

post stroke life is different not necessarily bad or good its just different & you will realise soon different will become new normal soon, though first year is the hardest of all.

 

Asha (now 41 year old survivor)

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Thanks Asha. I have a vegetarian blog, and also a crochet/knit blog that I kinda stopped posting to when I found out about ravlery.com - it's the best place to keep all your projects and details of what you used to make them and find new projects. Also, have a site about my fav Latino singer, but haven't worked on it in a couple of years, due to us getting very busy. Also, I keep a journal in wordpad, just because I like to remember stuff later. So, I guess I'm an over achiever when it comes to these type things, ha, ha!

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Sandy: I agree, it does make a difference. My sister got a nice job about a year after Bruce's stroke and came and picked up most of my good clothes, shoes. I am so happy someone is getting some wear out of them. I wear a uniform to work and with all the lifting, dragging and carrying I do, comfortable, clean baggy jeans and a nice cotton shirt do me just fine for the daytime. and of course, with the ramp, sensible, safe shoes are a must.

 

My sister gave me some very nice skin care for my birthday and I have been faithful to that regime for six months now. But a shower, shave, moisturize is always the best. You just feel like a person. Funny, today I scheduled a caregiver for me - not for me to go to work. Going to hairdresser and masseuse. Good week, Debbie

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