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Not what I was hoping for


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Today is not the day I had hoped it would be. Ya, it's still Thursday like I thought it was, and Survivor is still on tonight for me to watch tonight after work, but I thought today might be a turning point for Patrick's recovery. Nothing went as I had hoped.

 

His first appointment of the day was at a different rehab facility with a therapist who is certified in the Saeboflex. We got there as scheduled, filled out the 8 pages of forms when his name was called. The woman told us to follow her, and as we did, she told us she would be his therapist. HUH???

 

We had spoken to the man who is the saeboflex therapist, and this woman was clearly not him. As it turns out, our physiatrist had written the evaluation script to PT, the saoboflex would be with OT. So the person who scheduled our appointment apparently read as far as "PT" and did not read the rest which read: Evaluate for use of saeboflex. There is only 1 therapist within 50 miles and you would think the person scheduling would have caught what the script actually said. And to boot, you'd think the person writing the script would have enough common sense to know if the device is for your hand, you probably need to see an OT! Oh well, they will get the script corrected and we have another appointment scheduled for next Tuesday. Patrick has literally been harrassing me about following up with the saeboflex though, and I know he was crushed when we had to turn around and leave.

 

So on to our next appointment an hour later...

Had to have a dopler done on Patrick's right leg to check for clots. It has been 6 months since the edima/clot he had in the hospital, and the doc wanted to see if we would be able to take him off his coumedin script. So we waited about an hour before we got in to see the tech, and finally it was our turn. The tech did his thing and about a half an hour later told us he still had a clot in his leg, it had not desolved. Tthe good news was that it had moved further down the leg into the calf, and the tech believed that there was alot less danger to having a clot in this area. So for now, there is still hope the doctor will take him off the med, but honestly, I don't have my hopes up anymore. Even if ther danger is signifigantly less, would I if I were a doctor be willing to take a chance? I doubt it. But alas, I am not a doctor, so I hold onto the thread of hope.

 

Tomorrow is a new day with new appointments. Hopefully we get some good news from them.

 

Kristen

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Good luck with the coumedin thing. I was told that because Lisa had blood clots she will more than likely never be off it. Better safe than sorry I guess.

 

I don't understand Dr. aapointments as well. We had one with her OB/GYN yesterday. I got her there 15 minutes early. We waited for 45 minutes in the waiting room, wait another 30 in the Dr office, and see him for 10 minutes. Why make an appointment for a specific time? Don't they think we have things to do?

 

Butch

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Kristen,

 

Both Don's heart doctor and internist insist that he needs to stay on coumidin for life. His irregular heart beat can throw out clots and nothing works as good as that drug to take care of them before they can do damage. The same reasons so many of us hate the drug is the same reason it keeps survivors alive. You just have to learn to live with the brusing as a minor side effect.

 

Butch,

 

That's another thing you'll have to get used to...doctors never being on time. OB?GYN's are the worst because they deliver babies at all hours of the day and night. Don has so many specialists that he has to see and we've learned not to schedule two back-to-back in the same day because it's too stressful wondering it you're going to make it on time to the second one.

 

Jean

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