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who's problem is it?


swilkinson

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We just went away for five days' holiday, a coach tour to a town about three hours drive from here. It is part of the biggest horse breeding area outside of Kentucky. The day tours were centred on horses but included historical homesteads and places where breeding horses for racing first started in that area and we visited the most fabulous stud full of the loveliest horses imaginable. I am not a horse rider but have been involved in the racing industry a long time ago and the sight of those brilliant creatures was like a glass of champagne for the soul.

 

Four out of five days were pretty good. As other caregivers of wheelchair bound partners will testify nowhere apart from home is easy, the further from home the harder it is to get around. The local government area we were in seemed to have gone to no trouble to comply with the disabled persons guidelines so none of the places we visited had ramps, wider doors, proper disabled toilets etc.

 

The motel we stayed in, at my request,did install a flexible hosed shower head but that was their only concession. I still had to haul Ray's wheelchair up steps to the dining area, moving chairs and tables out of my way as I went. If you go on holidays here you have to do a lot of that. Most establishments aren't upset by this, just a bit surprised that you would be bothered to take a disabled person on holidays with you. It's not deliberate negligence, just apathy that stops them from complying with the guidelines.

 

So I hauled Ray through foot long grass, up muddy driveways, up sets of steps, around the backs of buildings when I couldn't get him into the front door with everyone else. As usual I cut up his food so small it was hard to see what it actually started out as. I supervised his showers, medications etc, I did all the things I usually do at home apart from cooking meals and answering the phone, but I still enjoyed the first four days.

 

But this morning I did not check to see that he put on his incontinence "underwear" with his other clothes, the first inkling that he did not was when he went into a toilet and didn't come out for 20 minutes. Then I could see he had made some attempt to clean himself up but he was a real mess. We were in the middle of a forest at the time, not a water supply in sight so I "wrapped" him up as well as I could and got back on the bus. I cleaned him up at our next stop after requesting his suitcase from the driver. I am hoping the obvious mess didn't distress the other passengers and spoil their holiday.

 

Who's problem is it when something goes wrong? The caregiver's, for not supervising every waking moment of her survivor's life? The survivor's, for not accepting the fact that he/she needs incontinence aids, and special equipment etc to live a life as close to the "norm" as possible? The rest of the community for not raising standards so that a person with or without a disability can enjoy the beauties of nature without discomfort and embarrassment?

 

I know who felt it was their problem - me.

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Dear Sue

 

Don't be so hard on yourself, I think you and all caregivers are saints, I certainly wouldn't have the strength to do what you all do. I know that when on holiday, Greg worked just as hard as he does at home, making sure I was ok. I'm sure Ray appreciates everything that you do.

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Sue,

 

I'm glad you at least enjoyed the first four days of your holiday. The only solution to the access problems is to continue to educate hotels, motels, restaurants, and all others in the travel industry that they need to accommodate the disabled. I can't see that happening if the disabled are stuck at home.

 

We're getting ready for another adventure the first week in March, and as difficult as I know it will be to get Gary out to fly to Phoenix, pick up a rental car and drive to Sedona, AZ and stay at a resort there, I'm prepared to speak up and ask for what he needs to be able to enjoy the trip. Who knows how many more chances we'll have to travel? We don't sit around waiting for a miracle cure to do what we planned to do when we retired .....and that was to travel.

 

 

Sarah

 

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hey Sue:

 

really don't be hard on yourself, you can do your best. when we were on holidays in europe, Imade sure the whole bus is not delayed on my account, so in our room my hubby always woke me 1/2 hour early which generally we have lot of headaches & fights on that issue, but I guess I was on my best behaviour in europe &all of us had great time together, & my hubby is looking forward to our next trip together

 

 

Asha

 

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Sue, Sarah....

 

 

I admire both of you for having the guts and energy to even attempt the mini-vacations that you do. Don and I did a few in the first few years post stroke but for ME, the effort wasn't worth the rewards.

 

Jean

 

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Sue

 

don't be so hard on yourself. you are human and you are allowed to forget like everyone else. Ray haas cognitive issues and is allowed ot forget things as well. i think that you were both very adventurous and brave to take this holiday and i'm glad that most of it went well.

 

sandy :friends:

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Sue,

It sounds like you still had a good time. Accidence happen, and it's not your fault nor Ray's. Rod just got done going through a difficult time while he had the bladder stones.

We spent last summer traveling in our trailer and I think that is the best way to travel. When he gets tired we can stop and he can rest. We went to PA, Washington DC, Ohio, MD and every where we went we had some difficulties. Just before we left I realized that if I had to push Rod in a wheelchair It wasn't going to work so we got him a scooter. It was the best money I have ever spent. We were better able to get around in more places. We saw Longwood gardens ( here they supplied scooter for their visitors). At our Nations Capital we ran into a few things that really surprised me. You could not use out of State handicap tags, and may of the locations we visited we had to use a back door to get inside. We still had a great time and even with the problems I can't wait to do it again this summer.

Lynn

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