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HOPE


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It isn't quite 8 a.m. and I haven't finished my first cup of coffee and I'm out of sugar and had to use Splenda. Ah well such is life some mornings..... I was wandering in the older entries of blogs and read one by Givincare about reaching goals. It distinctly reminded me of a time on my journey to acceptance where the question begged to be answered. "When does having huge amounts of hope, turn out to really be denial in disguise"? As many know, hope can be a persuasive thing, it seduces one into a passive state of mind.

I used to sit and wonder if I had such blind faith in hope and my recovery, was I really trying to accept in realistic terms how different I was? Cause back then I had blind faith in myself that I would recover but I also hedged my bets and set realistic goals, I never strived for 100 percent recovery. I knew the odds weren't good. I said if I got 100 percent back that would be a bonus to the whole deal. But I wasn't setting myself up for a lifetime of beating myself up. Nah, I knew better. So I had blind faith in hope. But if I wondered I have this blind faith in something that was as yet undefined and completely understood by me, wasn't it really just denial? Putting off dealing with the harsh realities of stroke recovery? I drove myself in circles with that question. In fact I am having a hard time writing about it.( this morning, it must be the Splenda)

 

Now, I hope that no one replies and brings God into this cause God had no part in my acceptance journey and God isn't going to be given credit for the easy part. Can any one answer when hope morphs into false hope and therefore becomes denial? Is the line between them much more distinctive for some then for others? I know to have one I had to have parts of the others. It was like a having an equal parts cocktail.

 

Alright my thoughts are already in shambles, seems the tracking problem and word retrieval problem is rearing their ugly little heads. I forgot what I was trying to say or the point I wanted to make. Can't even remember why I wanted to write about this in the first place, the trail has grown cold of why I thought it was important. :(

 

I know I found hope was an important ingredient in my recovery. But I guess one may have to get philosphical and ask "what is hope" and then ask "what is false hope"? I guess knowing the difference between the two would be helpful, so denial ( which isn't just a river in Eygpt) can be fought off. To me that is a dead end trail that just saps your energy and wastes your time. I found it was a tightrope to walk and being my balance is shot, not an easy feat.

 

Sorry, I wasted your time reading this, I cannot get myself back on track, I may just delete the whole entry. I think the PMS Barbie has gone bad and I should go back to bed and start over today.

Pam

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ok Pam:

 

I will blame it on your PMS and not on my IQ to understand such a deep thing. In school we had learnt 1 beautiful scripture and it has stayed with me for 20 years, I remember only line but I think it does make lot of sense. without hope man can not win any race in life, he is basically handicapped without hope.I know for me that false hope or true hope was one of the reason to give shot at life, ofcourse other reason was my kido

 

Asha

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Sister Pam

 

i can follow this blog without a problem. in fact, i can follow everything that you've said to me or posted on strokenet without a problem. please stop beating yourself up for your alleged cognitive difficulties, because they are not nearly as bad as you think they are.

 

that being said, your question is, when does hope turn into denial? i think that this question can be answered only on a case-bycase (individual) basis. what is denial in one person is realistic hope in another, given the person's situation, progress, age, stroke severity, etc.

 

only you can answer that question for yourself. however, i have seen a tremendous amount of growth inyou in the last several months, so i believe that your hope is reasonable.

 

sandy :cocktail:

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Pam

 

If we deleted every blog that rambles as we---the writers---work through our thoughts, the blogs would be nearly empty. Reflection is the whole purpose of writing and rambling gets us to that reflection point quicker than anything.

 

When does hope (for a 100% recovery after a stroke) turn into a form of denial is an interesting topic and I believe it's a question that each of us has to answer for ourselves to find true acceptance of this particular life situation---caregiver and survivor alike.

 

Asha,

 

I love your quote. The point being, in my opinion, is that we can't win any race if we don't enter the contest. We can't get even get to the half way point, which for some of us is it's own reward....just being in the race. The race being a metaphor for building a full rich life.

 

Jean

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Hey Sandy,

Thanks. I am now munching M&M's, so the PMS beast is feeding right now, we all may be safe for a short period of time. Bill and Petey have disappeared, smart guys........ can't blame them, I'd like to hide from myself too.

It isn't beating myself up over the cognitive deficits, it is holding myself up to high standards. Forcing myself to think like I once did. No worries in a few weeks I'll be fine.

Pam

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Guest lwisman

Posted

Hope is a strange thing. It does play an important role in stroke recovery. Without hope many of us would not be here, or a least would not be participating in this message board.

 

Intuitively I have always been looking for ways to build my life from where I am now. Only for a very short period did I believe that I could go back to the life I had before my stroke. If I'm really truthful with myself, I am glad that I can't go back. There are many in things in that old life I am glad to have left behind.

 

Seems like everyone faced with a changing life (which happens to everyone several times in their lifetime) must make decisions that direct the future.

 

Guess it is possible to totally give up. But, I'm not ready for death yet. Some decide to go that route. It is their time to go.

 

Hope helps to carry us on. :forgive_me?:

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Pam

 

i think that the experience of having o stroke or caring for a survivor is such a life-changing experience that it alters how we think independent of whatever brain damage we have secondary to stroking. experience changes or neural circuits, sometimes as much as having a brain injury. sometimes the way we think now works better for us than the way we thought before we stroked.

 

BTW, i prefer chocolate chip cookies with super chunk peanut butter to feed that beast you talked about these days.

 

sandy

 

 

 

 

 

 

 

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I responded to your blog...I don't know what happened to it. I also PMed you I "HOPE" it will make you feel better. I would re-issue the blog response but thanks to the stroke I don't have a clue what I said...but I'll promise you it was positive :big_grin: . The way my mind has been working lately someone else might find it in theirs and not have a clue what I'm talking about.

 

sgriffin :forgive_me?:

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