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disappointing changes


swilkinson

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I am finding some disappointments in life in my forward planning. Because forward planning has always been one of the joys of my life. I was the kind of person who had goals, who looked ahead to well-planned holidays with all the right clothes packed. Who could tell you the date of Easter and all the long weekends in the year and what I hoped to do on any of them.

 

All my childhood I looked forward to weekends, those wonderful two days with no school, when the world was open to do whatever you wanted to do. Right? Wrong. I lived in the days of chores and being the elder of two daughters had plenty to keep me occupied Saturday mornings and church on Sunday mornings. So that left Saturday afternoons and Sunday afternoons. Right? Wrong. Sometimes my parents had plans for that time too. And I had a younger sister so was supposed to look after her as well.

 

But I did have some spare time, nothing like kids do today, and I walked to friends places, read, rode my bike,watched other people play tennis, sometimes just hung around. That was until my parents bought a small mixed business when I was aged eleven and had me as the assistant and then I only got Sunday afternoons off. When was fifteen we sold the shop and moved but then I was old enough to work in other people's shops. I guess you get the picture.

 

When I went out to work I did get those magical weekends and they got filled with a lot of things I am not going to disclose here. But I did have some fun, did learn a lot about life and did plan ahead some. Then I got married and planning had to do with what Ray wanted to do, then where the kids fitted in etc. Then for just a few years we had those wonderful middle aged years when we had finally raised the kids who had gone off to make their own way in the world. Then we did go away for a few weekends, had some holidays including two overseas holidays, some further education for both of us and a lot of fun.

 

Don't get me wrong, there had been some good times since Ray had his first stroke in 1990. We still had a fifteen year old but he was mostly raised so I went back and got some more certificates in administration and went out to work again. Ray was considerably slowed down but he went back to work after six months. I worked, he still worked and we still managed to do some extra things we wanted to do, like walk the nine miles around the base of Ayres Rock, we didn't climb it as the Aborigines who are the custodians ask you not to, and respecting their rights, we didn't. And maybe I accepted the changes as being part of middle age, a sort of natural slowing down of life.

 

But then in 1999 Ray had the two major strokes and life changed and never changed back. Even since the major strokes some good things have happened to us, the coach tours we have enjoyed, the family gatherings, the birth of our four grandchildren among them. But then came the other two strokes and little by little because of his deteriorating health I have had to do more for Ray as he has been less able to do things for himself. My ability to plan forward no longer exists past the end of next week and even that could be a problem.

 

Tonight I had to tell my daughter I couldn't have her children for a week of the school holidays. That is, in two weeks time. I would love to, this time last year I would have been able to but tonight I said I couldn't. I can't have a six year old and a two year old and Ray to look after for a week. It is a bitter pill to swallow. I would love to do it but I can't do it. I can't describe how that made me feel. Desperately disappointed is close, but so , so sad also. I love being a Granma and love having the kids here. But with Ray's failing health even thinking in terms of a week is sometimes too much.

 

I guess I will have to leave the future to God. Maybe He can see it in a brighter light. That I myself can not see right this minute.

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Sue,

 

Isn't it amazing how the nasty strokes not only disable the person having the stroke, but also the caregiver who loses their ability to function normally as long as they are caring for the survivor? I cried when I read your blog as I can relate all too well how it feels to lose that ability. I still have days when I wake up and think today will be different, but it's always the same sh**t, different day!!!!

 

Sarah

 

 

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Simply put Sue, although it hurts, you've paid your dues. Your present "duties" are hard enough, a 2 and 6 year old would be too much. Perhaps a weekend at Grandma and Grandpa's but even that may be more than you now can take.

 

A caregiver doesn't have to be old to be tired; it's a very difficult job as you know so this is not in any way calling you old. I hate to tell you this which I'm sure you know; you are only human.

 

My thoughts and love,

Phyllis :friends:

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I guess I will have to leave the future to God. Maybe He can see it in a brighter light.

 

Dear Sue,

 

I understand your disappointment and sorrow about past traditions. Our lives are certainly changed when we become caregivers aren't they? We try to continue on as before, but the reality is things really are changed forever. I'm just thinking that the survivor's reality is immediate. The survivor must come to terms with the new life immediately, but somehow we live in denial a whole lot longer. As you said, we wake up each morning thinking that maybe today it will be different - somehow the night had erased our new "reality".

 

Whenever I get out into the future I am faced with a depression I've never known before. I loved what you said about leaving the future to God. Maybe we are coming to the place we always thought we were. I know one thing for sure - we place our husbands in the hands of God everyday. I guess maybe He wants us to crawl into those big hands too!

 

Love,

 

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:

Ann and Sue your blogs sure brought tears to my eyes. I can relate to doing what you can for your loved one and then putting the rest in God's hands... I have this clipping on my fridge that says :::

" I know God won't give me more than I can handle. I just wish He didn't trust me so much... "

I know we all try to do the best to care for our spouses but get very worn out and find it hard to carry on some days... It is very hard to explain it to others who do not live with them as they don't see the limitations of the person needing the constant care...both physical and mental,as one never seems to be able to rest without worrying about how to cope... I think we should let Jesus put his arms around us and craddle us as he will when we ask him ,and let him take up our burden and give us the rest that we so desperately need in these trying times.....I'm ready....Sue sorry to hear that Ray is not doing so good and that you are worn out...I think that you should talk to your doctor about more care for him and some more help even if it's in respite for a few days or more..when a caregiver gets sick the survivor is not being taken care of and all suffer in the end...God bless you both and I'll keep you in my prayers.... :: :cloud9: : :cloud9: ::

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I negotiated a four day weekend with just our grandson for the last four days of his school holidays so will get to spend some time with him.

 

It seems as if we have to "choose" between our survivors and our families sometimes. It is hard but I hope I will be able to look back at this time and appreciate the love we all shared.

 

Sue.

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