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lots of tests that are TOP SECRET!


avantgardener

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Larry had a long day today in the cardiac care ward at Memorial. Stress test with Adenosine to see how his heart is working, then CT stan to check for clots because of an elevaed d-dimer test (I looked it up on line, it means they are looking for clots in the legs and/or lungs). Finally done about 5PM, ate a decent dinner but not much in the mode for conversation. I am not sure the realizes that he sounds like a Golden Retriever when he taks: "Booooow owwww ooooh wooooowwwww". Lots of finger pointing thrown in for emphasis, but it does not help - I just am not getting what he wants to say. He really does seem to think he is less impaired than he is, and hs tried to get up on his own a couple of times. What a strange phenomenon to be that out of touch with reality.

 

I printed out all the emails and cards that he's received since the stroke and took them with me to the hospital today. He very carefully scanned each one - I put some ringers in that were upside down, but he turned them right side up and really did seem to be reading them. He smiled where appropriate, rolled his eyes at some of the very religious ones, and in generally seemed to get it pretty well. Encouraging!

 

The stress EKG was good. They also did a CT scan to test for clotting issus because of a high "D-Dimler" reading; I had to google to find out what that is; the RN had no clue. Essentially means you're at risk for clotting. Dependeing on how that goes he may or may not be discharged to the SNF tomorrow. We shall see.

 

He ate well again today, and that is a good sign. Tired when I left so no "bye", but that's OK. He had a pretty good day.

 

I walked around the block and didn't melt down until about half way through whe I started feeling extremely sorry for myself again. Grow up! Life is not pretty, and tragedy happens to everyone at some point. Don't be a baby about it, you are 50 years old and it's time to do credit to your husband and yourself and be an adult. That's how the self-talk goes, anyway. I stopped at the edge of the park and sat down in the grass...right in a big clump of you-know-what form one of our canine friends. So much for taking myself too seriously. Even I, the queen of depression and self-pity, had do laugh! Sometimes it really is out of your hands.

 

So, a long day, but could have been worse. Tests are OK. Larry is Larry, and progressing at his pace. I'm eating a little, sleeping a little, mising the old life and knowing it's gone. Trying to come to grips and not lose my mind (some woudl dispute that there was very much to lose, but let them have their fun).

 

Hope to all for a good recovery, and for a new life that, althought different, can still be good.

xxxoo

-Janime

 

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Hi Janime

 

ewwwwww sitting in dog poop, haha sorry to laugh, I'm sure it was not funny at the time.

 

I know from experience, like you, that being the wife of a stroke survivor is not always easy. Yes, life as we knew it does not exist anymore. I have found through my experience that you have to find something each day to smile/laugh about!!! If not the depression does take it's toll. You have to find SOME time each day to do something for yourself... take a bath, read,garden, go for a walk try not to sit in dog poop :) ... I know it is easy to sink into caregiver burnout... and I'm sure that there will be times where you have a pityparty for yourself I have and still do from time to time, and that is normal, but WE have to pull up our socks and remind ourself that the cup is still half full and we are grateful for the babysteps that our husbands/partners conquer.

 

Through everything that my husband Dave has been through we still manage to find humour and a silver lining in things, as hard as it is at times. Dave had a brain stem stroke about1.5 years ago, triple bypass 4 months and congestive heart failure, stents put in 6 weeks ago and a angioplasty 2 weeks ago. Seems like you spend more time at the hospital then at home doing chores and upkeep.

 

I give you encouragement and hugs, I know the road that you and Larry are traveling is not easy, but with time your new life does get better and easier babystep by babystep. Remember to take care of you as well. Try and get rest ( i know easier said then done)

 

Hugs, prayers and good thought to you

 

Anne

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Janine,

If there's any truth to that stepping in dog poop is good luck, then you hit the lottery. I'm sure that's just what you were thinking at the time.

 

Try not to beat yourself for crying and getting down. You're not being a baby, just human. What you're going through is very stressful and emotionally draining. It would take its toll on anyone especially now while in the thick of it.

Keep chugging along things will get better!

Maria :friends:

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Janine,

 

I too had to chuckle at the thought of sitting in the dog poop. Didn't your Mom teach you to look before you plop LOL? Glad it did get you to laugh though - that may have been the reason you sat in it in the first place.

 

One of the hardest things for a survivor is not being able to communicate. May I suggest a communication board until such time as Larry's speech improves to be able to communicate effectively. Music has also been used to help those with speech deficits - a person may be able to sing when they cannot talk and use the singing to work into verbalization. I was fortunate to have no speech deficits but have heard about the above.

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Congratulations on your first blog and I hope the best for Larry, he is hanging in there and you are too.

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Janine:

 

I know it's hard being caregiver, I always thank my stars for having strong caregiver by my side. now is the time to be strong for both of you. just remember to do your best and rest leave in God's hand he will take care of rest. get Larry good books on tape like "still me" by christopher reeves " miracles happen". my sister constantly played those tapes, they used to sooth my anxiety in the hospital. things will get better, trust in God, and keep stepping on dogpoop that does give good comic relief

 

hugs and prayers,

Asha

 

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