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A Somewhat Better Morning


avantgardener

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I walked into Larry's room this morning with trepidation, not sure if I was entering a peaceful room of healing or a bomb factory, and prepared for either eventuality. Fortunately Larry was feeling better this morning - he was half way through breakfast and ate a good part of it, after having eaten pretty much nothing all day yesterday. He smiled at me and did not point at the door or make loud sounds to indicate that I should leave. I did not bring up home repairs, car problems (there was one today), the mouse in the house that I had to catch and dispose of, the big black widow spider that I found while trying to trap the mouse, or the weird giant cockroach that I found sticking out of the heater vent in the living room and had to catch and destroy. (It was a big day for me in terms of vermin, spiders and car problems - my 3 most favorite things in the world!).

 

I spent a lot of time telling Larry that he is doing an awesome job on his treatment plan and is far ahead of what the original goals are (this is true on some of the things, like being able to navigate the wheelchair on his own). He was still pretty depressed, and I have a meeting tomorrow with is case manager, the PA, the physical therapist and the head nurse to assess where he is in the treatment plan and find out if his anti-depressant needs to be tweaked. At least he was better than yesterday and cooperated with his therapies. They had him standing between the parallel bars again today, and that's about the toughest thing for him physically right now, and he did it.

 

I went to a seminar today about elder law and learned a lot. For going to the seminar you get a free one-on-one consultation with an elder attorney, so I'm getting my questions together about Medicare, Medi-Cal and VA benefits. After that they want to you to retain them, but it's several thousand dollars and they will really have to convince me that they know something pretty big before I will do that. The seminar was interesting though, and I learned a lot.

 

After that I went back and saw Larry again. He was napping, so I did not stay too long.

 

I went tonight to the annual awards dinner at his university. His department chair had done a PowerPoint about Larry's academic carreer, grants, awards, publishing, and pretty much everything he's done professionally, and she had lots of pictures that she borrowed from me. She did a great job, and they presented him with a lifetime achievement award. I felt very honored to be able to accept it for him, and tried my best to say a few words; I knew I was going to cry, so I kept it pretty short. Tomorrow I'll take the award to him, and his chair agreed to email me her PowerPoint so that I can put it on the laptop and show it to him in the SNF. I know that will mean a lot to him. It was wonderul to see how many of his colleagues and students came up to me asking how he is doing and were genuinely concerned, and how clearly beloved he is as a teacher. I know that will make him feel good. Fortunately he was retiring anyway, so I don't think he will construe this as being forced out because he's ill - he would have been honored at this banquet regardless, because he won the award before all this happened, and because his retirement was already scheduled.

 

So, it was full day, and better than yesterday. Getting things done is good, and seeing Larry willing to eat and do his therapy is even better. He's not 100% up to speed, but I think he'll be doing better again tomorrow.

 

xxxoo

..jm..

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Janine, nice to see you write about Larry and life in such a positive way. I detest unarmed combat with vermin and pests too, but it is a part of life you can't run away from. You should see the damage you can do to a saucepan trying to kill a trapped mouse with it!

 

Larry deserves the praise you are heaping on him but make sure it is based on fact. "You made me so proud today when you....." he will like it better if he can find out what he has done to achieve the praise I suspect.

 

It sounds as though Larry is progressing at about the same speed as Ray did after his majors strokes, he had 4 1/2 months in hospital and rehab unit so a fair way to go yet.

 

(((Hugs))) from Sue.

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Janine:

 

I am so glad you are liatening to Jean and following her advices. In my mind she is one of the best caregiver of he world. I do think I married my soulmate but I don't think even he can beat Jean in caregiving. Caregiving is inherently hard. you have to do so many things outside of your comfort zone. take over half of the workload of your partner, and in all these situation you can decide what attitude you will take. I just want to tell you we understand and are very proud of you the way you are trying everything. and along the way thre will be mistakes but hopefully you will learn from those and help Larry get most in this window of opportunity. getting lifetime award wow congratulations. Larry must be well respected & loved in his academic circle.

 

Asha

 

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Hi Janine,

 

I just caught up on your blogs of this week. You are a truely amazing woman. You have obviously read and absorbed so much about strokes, you are already becoing a "seasoned caregiver" without even realizing it.

 

I think it is good you are working on Larry's anger issues from the very beginning. I am fortunate in that Bill hasn't ever experienced any of the anger outbursts I've read about so often. It is good to find out whether it is a result of the stroke damage - and from your other posts I suspect it is.

 

Congratulations on you successful hunting...you are almost ready for big game now, aren't you? I think it is good for you to analize how much information is too much information for Larry right now. He is early in his recovery and information overload is always a consideration, I think. I know for Bill it took all he had in him to work on rehab so I felt like it was better for him if I just took care of the home front. Of course, one difference between Larry and Bill is that Bill really could get overloaded pretty easily with home issues anyway!

 

You just hang in there girl. We have to remember that there are some things that are gone, but life goes on. Larry is still very early in recovery. You are experiencing the ups and downs of recovery. I think I've said before that I quickly learned to have no expectations about Bill's condition when I went to visit that I based on the previous day's condition or mood. No two days are alike. If anything, I expected less when he'd had a good day. I don't know why, but that's the way it's been for him.

 

Love you

 

Ann

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Jean, asking Larry first if he wants to see the award and/or the PowerPoint is a good idea. You are right - it could be very painful to him to be confronted so dramatically with his "old" life if he's not ready for it. I had planned to take the award with me today when I go to visit him, and show him the PowerPoint once the dept. chair sends it, but instead I think I will just ask him this morning if he wants me to bring the award. If he's not enthusiastic I'll wait, and if he is I can bring it this afternoon when I go back. I can do the same thing with the PowerPoint.

 

Trying to figure out what is best for Larry, and what will help him, is like a mine field sometimes. It is SO EASY to say or do the wrong thing and cause harm instead of helping. I suppose I will get better at navigating this as time passes and I learn more, but I hate that my trial and error has to be at Larry's expense sometimes. Well, we all do the best we can.

 

-Janine

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Janine,

I always love hearing about good days! Today my reaction was the same as Jean's. I think you are wise to take it slow in showing him the presentation. Survivors of stroke have extreme emotions so even after three years I still have to tred down memory lane carefully. I know how hard you are working at getting this caregiving thing figured out. You deserve a lot of credit for being open to new ideas and giving them a try. Here's to more good days!!

Ruth

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Jean:

 

you hurt my feelings.now you know those are truthful feelings I have for you regardless of your boss status. Though I have been always lucky in my bosses, they usually all are wonderful. I hope Steve is reading this :D

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I've been off line for a few days...the wireless router that my dear step-son installed has been a little buggy, and I'm not very good at figuring out how to fix it. A friend was over today who go it up and running, so I'm back in business. I need to learn more about how this works so that I can be more self-reliant.

 

Anyway. Larry's sister and I took the award with us when we went to visit Larry yesterday. He seemed very pleased with it and wanted us to put it on the table right next to him so he could see it. We both told him how proud we were and how much his students and colleagues loved him and were sorry he wasn't there. Several students got up an talked about what a great teacher Larry is, and it was clear that he is beloved by many. Congrats, baby.

 

I don't have the PowerPoint yet, but when I do get it I'll make sure to ask him carefully if he wants to see it before I just bring it over. He may not be ready, but actually I think he does want to see it. I"ll just make sure first, and if it doesn't seem like he's enjoying it I'll find a way to stop it. So much just depends on his mood.

 

So thanks to all for helping me navigate that and find the right thing to do. It helps a lot to have other more seasoned than I am , like Jean, to bounce these things off of, otherwise I know I would get into trouble, even with all good intentions.

 

xxxoo

..jm..

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