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my mind is like a merry go round


Aussie Ken

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it just keeps going round and round and round, at times i feel like i'm winning but lately i feel like i've gone backwards, when i first stoked i was so determined that i would be up and running by now but alass i'm still stuck in the wheelchair, wondering if i should just give up or keep on fighting. The worst part is that not long a go i was almost walking by myself the one thing ofter another my partner didn't have the time to go through my daily home physio programme but i really enjoy going to the pool for hydrotherapy and still do. my other form of physio was to walk on the treadmill which i can still do every fortnight, we were able to discuss with the physio any problems i was having but now it's there's the machine go for it.

hopefully when i see my hosptal doctor next month i want to see if i can get back onto there programme.

 

the other thing i would like to know if i can get into a research programme, whether it be stem cell, using a walkaide etc.

 

well i must keep battling on, have a good week

 

Ken

 

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Ken,

Keep searching for the clinical study on physical therapy. I don't know if you are near a large reasearch hospital. BUt, if you are..you should call them. WE have one in Houston. I called and they have a clinical pilot study that I am trying to get my husband into. Yes the stem cells...I would really like that. But, they are a little harder to find here in the USA.

We do the hydrotherpy every day. But, he is still in a wheelchair. Almost a year from the stroke.

 

Ruth

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You are not alone in that thought. Don't give up, keep fighting as I am doing. My walking (knees) has gotten real bad but I ain't giving up. It's bound to improve sooner or later.

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YES THATS IT KEN, KEEP AT IT, IT WILL COME BACK ONE DAY, MAYBE NOT LIKE BEFORE, BUT ENOUGH TO GET AROUND. YES, I AM BANKING ON STEM CELL TO GET THE AUTOMATICITY BACK UP TO A CERTAIN LEVEL, I AM NOW ABLE TO REASONABLY WALK ABOUT AND STARTED DRIVING SHORT DISTANCES. BANKING ON RENEURON OF THE UK, PERHAPS NEXT YEAR

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keep going and moving ken! believe me, i felt i did better after my stroke than i do now. i m 22 months. everyday i think geez another day of strggling, fustration, angier, depression but i get up and move and its hard but i do it.what am i going to do..lie in bed and cry while the world goes on!!don t give up. i went from a wheelchair to a evolution walker. i have big balance issues but with the walker, it leeps me steady, to walk, shop, laundry ect..so please never give up. you can always e mail me if needed!! patty

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Hi Ken, keep your spirits up, summer is here and Christmas just around the corner so don't sweat the small stuff, just go on with life.

 

I imagine this is my retirement and do as many things as I would have if Ray and I had retired. You can tell by my blog that Ray and I keep pretty busy. Imagine if we had not got on with our lives, it would have been ten wasted years.

 

I think you have to appreciate each day as much as you can. A day may contain a lot of peace and happiness that we will miss if we keep on looking back over our shoulder to what might have been.

 

Ray cannot walk any distance but is content to be in the chair with me wheeling him. He hears a lot of growling from me as I do so of course...lol. He has learned that it is the journey, not the mode of transport, that counts.

 

Keep smiling, (((hugs))) from Sue.

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Ken:

 

keep on fighting the good fight. I am sure one day you will walk & you will forget all this frustrations. life is a journey not a destination. you can't decide that you will be happy when you walk or use hand. I know its frustrating, but I realized I wasted valuable year of my son's life by being depressed about my then predicament So now I have made promise to myself that I will enjoy each and every day to fullest.

 

hugs

Asha

 

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