Stroke Survivor - female
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About heathber

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    Senior Mentor
  • Birthday 05/23/1965

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  1. heathber

    A house with one or more cats HAS to have empty boxes scattered all over, it drives my Mum nuts, but...
  2. heathber

    Hi Deigh, my Doctor many years ago used to "prescribe" me a 3 week course of ACE+Zinc and Echinacea at the start of winter. These days I rely on ArmaForce which I take for only 2 weeks once I get a sniffle, it does seem to stop a cold in its tracks, it is not recommended to take Armaforce as a daily supplement so don't be tempted and a significant number of people don't tolerate andrographis, so best to take a low dose for a couple of days when you are otherwise well to test your reaction. Once you are on the mend some outside exercise actually helps you to get rid of the dregs of
  3. heathber

    Absolutely Will, nothing like a four legged listener.
  4. Many of us relate to what you describe here. It sounds like you are probably no longer the doting parent able to adjust your life to his whenever he wants you to. This is normal and healthy, you are allowed to be a bit "selfish" at this stage of your recovery. But do remember that stroke will change all sorts of relationships and patterns within a family, and he may just have to learn to adapt. Although your changes will also have a tendency to trigger his anxiety too, so you'll both need to adjust to new patterns. Welcome to the roller coaster. As I just said in another thread, don't be asham
  5. heathber

    So true Will. Sometimes it helps to lie on the floor and howl for a while. Whether that's from despair, frustration, horror or hysteria I never could tell. But the reality is eventually you pull yourself together, crawl up out of the "slime" and carry on, and for a while the burden is lighter.
  6. heathber

    yep trick with a sling is to wear it correctly. Everywhere we went in rehab the staff would take one look at you and say "can I" and reposition your sling. Make sure you get the physio to teach both you and Wayne to know where it should sit. The damn things don't stay still, especially when you are in and out of them all day for therapy. Should be OK at home where you can set and forget.
  7. heathber

    My only way to cope with long term hospital and having to give up all privacy etc. was something a disabled friend said to me early on "check your dignity at the door, with a bit of luck you can pick it up again on your way out" In other words surrender to the process, its a fight you aren't going to win. I'm not saying there weren't times I hated it or tried to avoid things but overall, Bron's strategy was the easiest and most successful.
  8. heathber

    A reminder that stroke brings out the worst in some of us,
  9. Hope the nap was restorative. Part 1 is certainly very readable and coherent. I agree with you about the living in fear thing. Do what needs to be done to stay safe but try not to let that turn into fear.
  10. heathber

    It is so hard to give up the visits, but Sue you can do this, disappointing as it is. Covid and these restrictions are particularly hard on location split families. However with so many people still not vaccinated and this nasty strain of the virus on the loose we don't have much choice. Stay safe and try to stay sane, video calls are not the same, but they are better than no contact. Fingers crossed for the next visit. Hang in there -Heather
  11. heathber

    Hi Janelle, it's called Shoulder subluxation. Very common for Stroke survivors. The shoulder joint has very little bony structure because of it's huge range of motion so it relies on muscles to hold the joint together unlike every other joint in our body. You need to learn to pull the shoulder together consciously, your body has forgotten to do it on it's own, and arms are actually very heavy, and gravity sucks. Unfortunately once it happens the muscles get stretched and it happens again much more easily, this is one reason why in the first months after a stroke they usually make you wear a
  12. heathber

    Nicely put Will.
  13. So disappointing when the so called expert denies the reality of our lives, so glad you found understanding here.
  14. Hi Kathy, another one who can only offer a welcome and hope that everything goes well from here. I had a carotid artery disection that healed closed, so I no longer have a right carotid artery, they decided they was no point in trying to do surgery. Over time my other brain feeding arteries have enlarged slightly to accommodate the blood flow change. I've lived fine like this for 11 years and the only time it caused an issue was when I had internal bleeding from a surgical procedure and was fainting every time I stood up. The emotional stuff is probably due to the stroke it can do lots o
  15. heathber

    I'm living near Trentham at the moment and it does snow here, when the conditions are right. Many people here wear down coats and jackets, I guess that is the same as taking your doona 🙂