Stroke Survivor - female
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About heathber

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    Senior Mentor
  • Birthday 05/23/1965

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  1. heathber

    It might help to work out what the trigger for your balance problem is? loss of balance and falling can be a combination of many things is it propriaception, is it sight, is it vestiubular, is it strength/control? or a combination of all of them. It's just easier to target your exercises to the main source of the issue. Most of my balance issues come from weak ankle control combined with slowed propriaception (knowledge of the body in space) So my left ankle is very bad at micro adjustments needed to keep me upright and my brain is slow to work out that adjustments are needed. Knowing this
  2. This week I had a quick trial of a new toy. It's an active estim device for wrist and fingers. That actually senses the muscle movement under the skin and fires only when you manage enough activation, and the assistance continues until you manage to relax the muscles enough (not like a classic estim that does timed pulses), I'm now trying to setup a 1 month in home trial to see if it helps enough to be worth getting one of my own, both the trial (unit rental and extra OT sessions) and the unit purchase should be funded under NDIS but as it's not already in my plan we are going to have to jump
  3. heathber

    Spot on Sue, we will all keep muddling through, one foot in front of the other
  4. Hi Susan rehab in the home works well if you are able to do your exercises unassisted between visits, stroke recovery is about balancing repeat repeat repeat against the inevitable fatigue (brain fatigue is different to body fatigue as he is learning with respect to reading) I didn't have anyone at home to help so I actually did 3 months of inpatient rehab before coming home to RITH providers. inpatient rehab of course has it's own frustrations and limitations, particularly home sickness and being at the mercy of overworked nurses. Also be aware that stroke can also affect your immune system r
  5. Hi Susan, so many parallels in this world. When I had my stroke I was on the other side of the world from home (Scotland from Australia) and I too have lost a very large section of my right side brain. I completely lost my whole left side at the time. thankfully minimal impacts to speech and memory and over time I have re learnt those things and am now working full time and living independently again. His active lifestyle pre stroke should help with recovery and regaining function, especially if he can tap into his inner stubborn. A lot of this seems to be linked to determination to keep goin
  6. No need to apologise Kelli, we all have our challenges, the thing is to live our own best lives despite them. We worked it out and you shared both are good things! -Heather
  7. Thanks Sue yes it makes a huge difference having someone with me at the market. It's not that I can't do it, it's that I pay for it after in other ways
  8. Hi All I haven't blogged for ages, thought it was time for a quick update. I've been self funded for all my care and therapy since my stroke but with the shutdowns here in early 2020 I was forced into the realisation that I am not as independent as I thought I was. So I finally applied for government assistance with health, self care and therapy costs through our NDIS (National Disability Insurance Scheme). It's been a roller coaster over the last 14 months getting all the information together and the medical assessments done and then fighting with the bureaucrats who control the
  9. heathber

    Keep on celebrating! every milestone counts
  10. Hi Kelli, it's a bit scrambled but I think I follow what happened. Sounds like you had one of those moments where you hit the wall hard and people around you, who hadn't realised there is a wall, were surprised and got hit by the shrapnel. I totally get the acceptance thing, so many people think to accept is to give in, it isn't its a realisation that you are at peace with where you are and how you got there, it doesn't mean you stop working for more or better, but it does mean you stop beating yourself up. The beach or the bush is my Zen/recharge space, glad you got to the beach
  11. heathber


    We are all a work in progress right up to the end, no matter how unexpected or expected that end. But there is no harm in being prepared. If you don't find time to talk to your other half at least make a file of notes for her with all the relevant details like account and policy numbers and let her know where to find it. Fingers crossed she doesn't need it for a long time yet.
  12. heathber

    Hi Leah, nice to meet you, I don't think I've "talked" to you before, I've been on here since about 2012 so probably after your last time here. I do hope you can now slowly get back to some exercise (it certainly makes a huge difference for me, I went backwards for the first 6 months of 2020, because we were in lockdowns due to Covid) Once gyms and rehab opened up again I've regained most of those losses plus found some new skills, so while it will be harder with pain and lack of practice, don't give up completely. Hugs -Heather
  13. heathber

    LG cats can be great company and very affectionate if given the chance, yes right now there are too many of them, but could you maybe let one of them get close and be your special companion, until you feel ready to get Roscoe, given they are already there and needing your care anyway. Make the best of what is in front of you so to speak. Either way hugs and stay as positive as you can. -Heather
  14. heathber

    Yep thankfully I never got the semi regular migraines my Mum and sister lived with, and that they now control with the new daily preventative medications, mine where only a couple of times a year but it would wipe me out for a week. Current problems are not fun but in some ways easier to deal with (more predictable for a start)
  15. heathber

    I have no trouble believing a smell can make you feel sick, or that brain insult can "create" smells. Pre stroke I used to get migraines. Not just the bad headache lots of people think is a migraine. One of the ways to know a true migraine is that one or more of your main senses becomes hyper sensitive, that combined with gut hypostasis which really sucks and means oral medications don't work. The most common migraine hyper sensitivity is lights and noise, but I used to get taste and smell migraine. Thankfully my stroke seems to have "cured" my migraines, although it's not a cure I'd recommend