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Ray and his many health problems


swilkinson

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I’ve just had a few days away with friends. The holiday was booked at the beginning of this year and if Ray had been home he would have gone into respite for a week or so in order for me to go. It was a seaside resort with cabins, caravan sites and tent sites about two hours up the coast from here on a beautiful bay. Our club mainly took the cabin option but some brought their own vans.

 

Trevor said all would be well as he would monitor my messages, collect my mail etc. I left several contact numbers and also advised the nursing home staff that my son would pass on a message if they needed me. Seemed like a plan but that was not how it worked out.

 

Apparently Ray had a seizure on Monday, which adds up to one a week for four weeks, and then a "turn" on Wednesday which is when the staff started leaving messages on my answering machine. No calls to my son at all.

 

So today I went in to the nursing home to try and sort it out. The staff nurse said the doctor said the "turn" may have been a slight heart attack and so the doctor wants Ray to have a heart monitor for a 24 hour test. I am not sure he will leave all the wires attached as when he was in hospital he pulled out both the catheter and the canella.

 

I didn't feel up to arguing after a three hour drive so said I would think about it over the weekend and discuss it on Monday. He is not a candidate for a defibrillator or pacemaker so I don't know what the monitoring will achieve apart from confusion and frustration on his part and probably mine if I have to sit by his bed for 24 hours!

 

It was great to get away and not think about the problems I left behind at home, to sleep in, visit with club members in the other cabins, have a BBQ under the stars, walk on the beach and enjoy good company, with not a care in the world. It was hard to come back and find Ray's health and his care is still as much of a problem as when I went away.

 

It was a little daunting being “Sue alone” as with this particular group Ray and I have shared a lot of friendships. They have been very supportive to us over a lot of years. We have spent a few weekends away with them and also been to conventions with some of them and enjoyed their company over a 28 year period. Not as much over the past few years of course as Ray has not been as mobile or able to happily change environments.

 

I shared a cabin with a couple and another woman who was recently widowed. We got along just fine. The majority of members remember Ray back in his best years so that clouds the issue of my putting him into a nursing home. I think they can accept that he is sick but maybe not see how sick. I could see some looking at me across the room and nodding to me rather than coming over and talking to me. It is a hard adjustment to make, I know that.

 

I had some time to think while I was away. My widowed friend and I discussed some of the hazards of being a woman on her own. Of course a lot of the common ones, like doing the things the “man of the house” usually does I have faced up to anyway. There is still more for me to do as I am still the person responsible for Mum and Ray. She acknowledged that and that I still have a lot of decisions to make on Ray’s behalf. Her husband died of cancer so she did nurse him and knows some of what I am going through.

 

I know some of the other club members relate to what I do for Mum as they too have looked after aged parents, both at home and in a care facility. It seems common to find among the caring population people in service clubs, who are practical by nature and fit into that category somehow.

 

The male half of our club members belonged to a service club called Apex, now almost defunct, that helped out in rural communities, their service work included establishing in some small towns community based care facilities and sponsoring help for disabled people so they have giving hearts. Just seems harder for them accept when it is one of their own that needs the care but we are all ageing and will be there ourselves one day.

 

I am glad I had the break, sad it did not work out for Ray, a bit anxious about what I should do for him to ensure his care need are met appropriately.

 

PS Lucas fell off a jousting pillow at his school fete last Sunday and has broken his left forearm. He has it in a fiberglass cast and is okay with that. He has gone away with his Mum and Trev this weekend to some friends in the country. I have my fingers crossed that he will not do anything foolish while he is away!

7 Comments


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Overall I think things went good considering Ray's conditions and you had a chance to catch a breather of fresh air and concerns to let go and enjoy the moments. All care givers need breaks and time to breathe fresh air.

Fred!

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Sue,

I cannot imagine the changes that you are going thru.

 

What a terrible turn for Ray. You are right what will the the 24 heart rate monitor accomplish.?

 

I am glad to hear that you had a get away.

 

Please take your time and think things over carefully... You are doing a wonderful job of caring for your MUM and Ray.

 

Ruth

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Sue,

 

My prayers are with you and Ray!!!! Im sorry he is having so many troubles.....You definetly deserve a break from all your worries. GOD BLESS

 

Dyan

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Sue I am sorry Ray is still so very ill and going through so much trauma. I hope he can start to feel better. I am glad you had a chance to have some time for yourself. The BarBQ and the area you were in sounds great. I'm sure it was nice to have a "breather".

Take care. I will keep you and Ray in my prayers.

 

Julie

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Sue: first off sorry for Lucas! My Dad would have said Scallywag-lol. One thing at his age it is "cool" to have a cast and he can't really hurt it again while he is in it-lol. Fortunately they heal fast at his age.

 

I wish the nursing home had followed the changed protocol while you were away. I would get so frustrated with nurses not reading, or looking; I would put a full page note on the front of a patient's chart, laminated and duct taped. It is hard enough for families to schedule respite time and have good back up plans without the SNF messing up.

 

The monitor they are suggesting for Ray-called a Holter, here-is an on-going EKG of the 24 hours. It records no matter what he is doing, as opposed to a regular EKG which is done at rest. The hopeful outcome is to locate an irregular rhythm. It is the least invasive method of monitoring the heart action and if something is found, can lead the Doctors to further studies to determine what part of the heart is acting up. I had a Doctor tell me recently that she over 15 years never got any solid results from one until just this week. So she was saying she was glad she still continued to order them. The leads are pretty benign. Ray may not even realize they are on him. However the recorder is about the size of a large transistor radio and is heavy. It makes the pockets of a johnnycoat sag. That may be a problem.

 

Personally I would give it a shot. If he takes it off, no harm done really. And honey, it is up to the nurses to assure it is on him. It may show something that a simple medication can help straighten out. I do so wish they could get his seizures under control.

 

Your trip sounds amazing and in a way, I am glad you were not called away. You were so looking forward to it, so needed it and it sure sounds like it was just perfect and restful. Glad you had some time to talk with friends and also to get some time away from all of this stroke stuff. Yes, we still have to come home and face the music. I think the location was perfect, sounds like the agenda and accomodations were well planned and fun and you had time for yourself, also a great plus.

 

Welcome back. We sure missed you but I was so hoping it was wonderful. Debbie

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Sue

 

So glad that you got away and had some rest, good food and company, you sure did need that.

Go with what your heart tells you to do with Ray's care but I do agree with Deb to try and see what happens. Hopefully it is just a med problem if not you will know more than you do right now. I believe that knowledge it power.

As always you and Ray are in my prayers and I think about you daily and send you long distant hugs.

Take care and hope to see you in chat Sally :hug:

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