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sunnier days


swilkinson

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I've been moping for a few days. I am still trying to come to terms with what is happening with Ray and the fact that the days of he and I living together are over. When I sit beside his wheelchair in the courtyard at the nursing home some days we could be back here sitting together on the front verandah as we used to do. But then I look at him and I can see the changes, the pouting lips, the dribbling, the increasingly vacant look. All signs that more brain damage has happened.

 

I try to do something with him most visits. I get there before lunchtime and help by cutting up his food. Then we go to some activity if there is one or I take him back out to the courtyard and read to him. I am reading one of the James Herriot books about the life of an English Vet, one in the series : "All creatures great and small". It is funny but typical of life in a country town with the Vet tackling the animal ailments of the neighobouring farms.

 

On Thursday I took Ray for a stroll in the wheelchair. Just down the road a bit from the home is a pharmacy with an ice cream freezer chest. We stopped and I bought him a cup (bucket?) 97% fat free, and got a spoon to feed him with. We found some shade and I sat on a park bench nearby. I put the first spoonful in his mouth - fine. Put the second spoonful in his mouth and he coughed, spluttered and choked. He made so much noise the pharmacist rushed over to us to see if he could do anything. Ray calmed down after a while and had the rest of the icecream that was mostly melted by then. I guess if he had died you could say he was "killed by kindness".

 

I will do it again but take a thickened drink too next time and a face washer and a whole bag of other equipment. Reminds me of taking the kids to the shops, same procedure I guess. Apart from that he seemed fine. I left him playing 8 number bingo with an aide. He still likes to be involved in something like that, I think it reminds him of his Camp Breakaway days.

 

I only got to see Mum once last week, on Monday, but visited her again today. Mum is stable, sleeping mostly but still opening her mouth for food which is what is keeping her alive I guess. I still visit her by her bed and when she is in the big comfy chair I take her to one of the lounge rooms or activities room. I figure she can hear better than she can see and still likes to be around people.

 

She will kick her feet if she hears music so today I took her to the big lounge room at the hostel end of her building to hear a choir of local school children. These were about 30 10-12 year olds singing a program for nursing homes as they visit three in a week and then come back in four weeks time to do their Christmas program. They came around and said "hello" to the residents at half way break which was a nice idea. I loved their rendition of "Light a Candle" sweet voices and sincere faces and that glow that kids have about them. It was good to be there and Mum's feet kicked along with the music.

 

Ray has the halter monitor on today so I will get the results later in the week. It will show if he still has the arrhythmia or if it is Atrial Fibrillation now. I hope the results simply mean a change in medication as I am sure he is unsuitable for an operation. I know the young doctor he has now wants to do what is best for him but his extensive stroke damage, his age and current conditions also need to be taken into consideration. I would hate for him to die on the operating table.

 

It is hot today. I will have to keep cool and do my housework and yardwork early in the morning and in the cool of the evening. I intend to enjoy this summer. Trev and Edie and Lucas went to the beach for a BBQ Saturday afternoon and met up with Edie's sister and her family. I didn't go as I wanted to ring my daughter about 6pm.I spoke to my dauughter and she told me her husband has gone to see his mother as she has some health probems. It will be the fourth anniversary of Craig's Dad's death today so I guess that is one of the reasons for the panic attacks she is having. With that in the back of my mind I hate to burden Shirley with my troubles so said very little about what is going on for me. It is easy for us to keep on looking for sympathy when we should be looking for the silver lining of the storm clouds of life instead.

 

Sue.

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Sue thanks for saying 'It is easy for us to keep on looking for sympathy when we should be looking for the silver lining of the storm clouds of life instead.' -I have to remember that for myself

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Sue, I love reading your posts and especially hearing about your WARM weather there. I have to say our foliage is nice to see though. There is a bright yellow leaved tree as I look out across our neighbors yard. Also, nearby a tree with beautiful bright purple red leaves. My Japanese Maple is turning orange and the burning bushes are all bright red. Still I know winter is just a short time around.

 

It's nice to know you can do things for Ray and that he still enjoys Bingo and getting out. I know it must be hard for you also. Even though Larry has not had the health issues Ray has, I look at him and photos taken recently and see a much thinner, older man. It is heartbreaking.

You do a lot for your Ray and mum and they are grateful I am sure.

 

Take care and see you in chat.

 

Julie

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Posted

Sue,

 

My thoughts and prayers are with you. You have a lot of sadness and seem to be doing ok at coping. Remember to take care of yourself as well as Ray and your Mom.

 

Lin

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Sue: the adjustment to your new life just takes time, as you know. You've been here before. I am touched by the grace and dignity you show in doing all of this. I only hope I will show the same if it happens here.

 

Your reaction and concern for Shirley and her family problems reminds me of my current problems with Mary Beth. I find I am doing the same thing, holding back on adding more burden to her life. But, it is not so much sympathy seeking, but rather a fill for the loneliness. Something to fill that hole in my heart.

 

Enjoy your time now with Ray and Mum. I know that they both enjoy their outings and activities, even though they can't voice their appreciation, you feel it. And know in your heart it is worth it. You can rest at night with a smile, knowing they are warm, safe and comfortable.

 

Hopefully the monitor will show something and there will be easy help offered.

 

Our weather here in Connecticut is just perfect. I do so love our Autumns. I have been forced to clean up the yard. This is work I love and do so miss it. Bruce has been so accepting of my other direction. Altho I think I may have liked to be with Trev and Edie for a bit-lol.

 

I have not tried reading aloud to Bruce. He always had his nose in something, piles everywhere of stuff to be read, but now just seems to skim. I know he has to reread to remember where he was, but maybe I will try that. He has the lost manuscript of David Foster Wallace, in book form. Wallace is a tough read, but maybe I should give it a shot. Would make a nice winter project. Thank you for mentioning that.

 

Good week Honey. Please take care. Rest, take a nice walk. Work that stress, baby! Prayers to all of you and big hugs. Debbie

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Sue,

I absolutely love the james Herriot series. I have read them all.

 

You are still so busy with your Mum and Ray. I am glad to hear that Ray loves to get out and get involved with others. And your Mum,,,tapping her feet to music. I can just see it.

 

You are doing so well. Take is easy and have a good week.

 

Ruth

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