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another setback for Ray


swilkinson

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Must be that time of the year! We had about a week of rain, it flooded my phone junction box and on Thursday night my phone line started a loud buzzing noise and my Internet went down. So no Internet - no phone. On Saturday morning I was sitting in a stroke support meeting when a receptionist approached bearing a phone and it was news from the nursing home - Ray had had another collapse, maybe a stroke and was on his way by ambulance to Wyong Hospital. Wow! was that a blow!

 

So off I went to join him in the Accident and Emergency. Ray was semi conscious, unresponsive, seemed in a coma of some kind. The staff were hovering but didn't seem to be doing anything.eventually he got accessed and they decided he would stay in a general ward "for a few days" and told me to go home and catch some rest.

 

Well, Sunday he was similar to what he had been like when I left him on Saturday evening, the staff said he had aroused briefly but his heart rate was erratic, his breathing and blood work indicated an infection so they had started him on an antibiotic. He looked as if his face was swollen and he was having difficulty swallowing so only a drip to rehydrate him, nil by mouth. He seemed oblivious to my presence but did rouse for a couple of minutes and answer "yes" and "no to a couple of questions the nurses asked him.

 

I honestly thought this was the end. Ray lay mostly with his mouth open with somewhat laboured breathing and his heart monitor went off every few minutes. The staff showed much professionalism but once again we went through the "do not resuscitate" regulations. It seems each incident is treated separately and the protocols have to be restated. I looked at him and wondered if I should change my thoughts on peg feeding etc. On oxygen Ray looks a million dollars but looks can be deceiving. I knew this time he was really sick.

 

Today (Monday) he was responding, answering questions in some fashion, not really intelligently but trying to come up with some kind of answer. He was throwing his covers off and seemed very restless. I know he just hates to have an oxygen mask on. He said his left leg was "sore" and when I tried to reposition him he seemed not to be able to straighten his left leg. I am wondering if this is a new "deficit" or whether it is just too much effort to straighten it in his present state and that will resolve later.

 

The staff in the ward he is in are excellent. This time he is in a stroke assessment unit and they are treating him as if he has had an additional stroke. I have once again given them a timeline including all the previous strokes and as much of his medical history as I can remember. This time his doctor is a stroke specialist,who seems to know his stuff but hesitates to say he has had as stroke as it is not showing up on the CT scan. I would say he has had a stroke, all the indicators are there but once again not enough evidence. I asked the specialist what he was calling it and he said: "a lapse into unconsciousness of unknown origin"...I think that is a medical term meaning "I don't know".

 

So when I came home today my phone was working again and here I am. I have answered some of the messages, mostly from the people who were at the stroke meeting that I ran out of on Saturday morning and tomorrow I will answer the rest. For the next few days I will spend as much time as possible by Ray's side to once again act as his interpreter and answer all the questions he no longer knows the answer to. The nurse who did the mini mental asked him where he was and he answered: "Ourimbah Railways station". I guess the long glassed in corridor he could see out of his window could have looked like a train and may be the machine noises he could hear reminded him of a train...hard to say.

 

Tomorrow I hope to find him even better, more like the Ray of the last few weeks, maybe even able to sit up and take in some nourishing food. I am an optomist so I want him to go back to being able to propel himself around the nursing home, enjoy the concerts, go out on the bus, do all of the things he was doing last week. But also being a realist I am prepared to wait and see what the future does bring. I am just happy to have him still with me.

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Sue, I had been wondering why I didn't see you on the board, fearing you may have had another health emergency. I'm so sorry Ray has to go through so much again. You are so strong to be going through this so well. Hope things improve and I will pray for you both.

 

 

Julie

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Guest hostwill

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Sue,

I will keep you and Ray in my prayers.Stay strong, and get some rest. He is in very capable hands I believe.

-Will

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Sue: I am so sorry for Ray's set back. I can only imagine what you are going through, yet again. I pray it is an infection and the antibiotics seem to be working. So I will be waiting to hear from you and please take care.

Glad you are comfortable with his professional staff. Praying for both of you and the family, Debbie

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Sue, It does seem like you no sooner find your feet and they are pulled out from under you again. So sorry to hear of more problems for Ray. I do hope that they find that it is all infection and that you will soon see improvement. The strokes do sometimes take a few days to show up on the CT especially when his poor head has suffered so many. We do seem to second guess our decisions such as the PEG when difficulty hits. I allowed a PEG after Dick's first strokes and have determined not to do it again. But who knows what I will think when I sit in you seat. I am confident you will make the best choice for both of you. There is never one size fits all answers.

Hugs to you, Ruth

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Sue: I was so sorry to hear the unfortunate news about another set-back for Ray. He and you are both so strong I cannot possibly imagine how you do it. I had a PEG tube but, of course, that was right after my first bad stroke. I would think that comparing a current CT with the last CT should show if there is anything different which would rule in or out another stroke. Have you made a chronologial list of Ray's medical history to give to the doctors, hospitals, etc. and then you could update it as need be. It sure would save a lot of time and stress on your mind. I always carried a list of Jerry's meds with me and I do it with mine - keep an extra copy to give out and keep one for me. I will pray for both of you. The Lord is always with you even if you don't think he is. He is your refuge from the storms that come over us and will see you through to the end. God bless you; you certainly are an angel. Hugs, Leah

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