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Hard Revelations


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In a perfect world I would be well justified to gripe about the unfairness of it all but we know this isn't a perfect world so it would only be and has only been a waste of energy that I have little of to start with. It doesn't seem right that I can't even expect to be granted accommodations that most people take for granted but instead of waiting for fairness, I know it will not change until I change it.

 

I guess I've known that all along but I let my limitations blind me. I can't change the situation right away but I can start making changes to the barriers that have stood in my way up to now. Progress is going to be slow and I know I'll have to watch out for discouragement and the urge to throw my hands up and quit but I've had enough--I'm getting out of this mess (that sounded better in my head than it does in black and white) one small step at a time and once I do I'm never looking back.

 

This week has been spent rearranging my room so that I can spend most of my time in there. In the past, it would have taken perhaps a day to get it done but this isn't the past. It's time to turn the page. One page at a time I'll get through this chapter and hopefully start a new one.

 

I expect some resistance from family as I make changes that upset their apple carts but it is what it is and they're all adults and will have to accept that things are changing for good.

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Jaime: if it is a hunker down period, boy I certainly understand that. But if you are reacting to a specific issue that disturbs you, why not dissect the issue.

 

However, when you are done with your room, I could sure use some help here with my room-LOL. My sister and niece rearranged my guest bedroom-office, post stroke to set up a nice quiet area for me to deal with the finances, insurances, keep paperwork secure from strangers in the house and even an intercom to Bruce while I am working! I hate it! Yes, everything is neat and organized, but I find I just pick up the piles and bring them down to the main house and work on the bed! There are still reminders that that room was set up for my Poker. I had just gone pro and set up the corporation. Maybe if I just remove all that stuff, I could work comfortably there.

 

Let me know what peace you find because I could sure use the suggestions. Take care, honey. Debbie

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People shouldn't leave their apple carts in your way if they expect them to remain upright. You have that look about you.

(((hug)))

Lisa

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Oh yeah...right! Debbie, I'd love to help but at my speed your room would be ready sometime around the year 2022! :)

 

Its more than "hunker down" period" but I don't want to talk about that part for multiple reasons. I already broke the big picture down into "working steps" but I talk about those when I get to them.

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People shouldn't leave their apple carts in your way if they expect them to remain upright. You have that look about you.(((hug)))Lisa

 

It's odd, you're not the first to notice that! :) Thanks for the smile.

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Jamie,

I have been reading your blogs. Boy, I can sure relate to the "crowd" thing. I too could be the life of the party, but nowadays that is harder to do. Not only the sensory overload thing, but I have dysarthria and get worn out talking. My biggest problem with all of this is my husband's fondness for our hosting large parties. He understands the physical tiredness I get, but can't (or won't) acknowledge the mental fatigue and just seems to think I am just not paying attention or don't want the party for some perverse reason. So I do the party thing since he feels my stroke has affected him as much as me( I do know it has affected how we do things), but I help mow the acreage, garden, take care of the house,cook,work part-time at home,grocery shop, drive etc.I justbget worn out easily. Don't know if its the stroke or the meds. And Jamie, I like the thought of your fixing up your bedroom. I don't know what all is happening in your life, but its good to have a "sanctuary"of your own.And you still have a great sense of humor and are a beautiful and articulate writer. BTW, hubby and I did get to Annapolis last month. And wouldn't you know, it was the Croquet match between St. John's College and the Naval Academy, so tons of people. Whew. But it was good to see our neighbors there and eat out. I love going there and wonder if I will ever again feel comfortable making the trip myself. If you ever get to Annapolis, if our house there isn't rented, you are welcome to stay there. We have off street parking and are in the historic district and are close to everything. Take care and hang in there.

Bev

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