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Ethyl17

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We have three October birthdays in my family; sister Mary Beth, her daughter Melissa and nephew John Mike's. We have been setting a weekend aside each October to celebrate the birthdays, but also the end of summer. We don't get together as much in the winter, so this is always fun. And this weekend could not have been more perfect! Saturday was 74 degrees, so we were able to celebrate in my brother John's yard - set up perfect for Bruce. John does lobsters for the birthday kids, but we all get a taste and brother Michael did the grilling.

 

With our schedule for this week, Bruce and I did errands Saturday morning and then headed down to John's. Bruce and I slept until 7 am on Sunday - LOL. He woke up with a start, sun shining in the room and says "Ethyl, it is 7am." "I said, Bruce it is Sunday, honey, it is OK." Those old habits. Girls left about noon and then we did clean up and laundry, groceries and food for the week.

 

Since Bruce had Botox appointment Wednesday, Monday was my double at work, plus I had financial advisor. I got home at noon and Erma says Bruce took a call. Well finally nailing it down, financial advisor had cancelled and girls from Bruce's work were coming for dinner on Tuesday. I explained to Bruce that it was all well and good that he wants to stay alone, but he needed to take responsibility. He has a pad and pen and needs to use them. Tuesday we had errands - bank, pharmacy and then home to prep for the girls. Then I went back to work.

 

Work is crazy. New computer system. My co-workers have to concentrate on the Federal paperwork requirements, leaving me alone to do the patient paperwork and interviews. I am totally re-writing a library that I could have done comfortably before the new system came up. But Administration had no clue, so now I am stuck trying to keep to required dates and getting this library in order.

 

So Wednesday, the Botox appointment and WHAM, right upside my head. Bruce now has contractures and I have posted that.

 

Today Bruce had to start 2 mg Zanaflex in the morning. I know what the Doctor is thinking. This medication zonks him and it is a low dose, so we tried it. I had gotten up early so I could fit in a shower and in 30 minutes after taking his pills, he was dozing in his WC when I came down. Now I have safety issues leaving him alone. Bruce assured me that he would stay at his table until Cathy got here. Now the Doctor is thinking, loosen him up in the morning and work those muscles. Except I am not home in the mornings, Bruce will not do it with the caregivers or by himself. So I am medicating him, zonking him with no outcome for Bruce.

 

Today we went to BJs for Halloween candy. Who is better than Bruce? I do not push him and he was all over that store in his WC, he loves the free samples - LOL. I even called him back at one point to look at some flannel pants for hanging out. And again, I have to stop myself because he has me thinking like him. Warm comfy clothes for sitting in a WC and channel surfing. Have I become so tired and frustrated that I am allowing this, thinking it is OK? We came home and again I am on 90, trying to set up for tomorrow and figure out what needs to be done if this hurricane hits.

 

So much to think about. And I know Bruce is upset. I am willing to cut down at work or even take another leave, but what he is willing to do? When his PCP had a discussion with him about his weight, he took that to heart. Weigh in on Wednesday and he has lost five pounds. And he has done this himself. Bruce does not feel hunger or fullness, but one thing from his up-bringing is leaving nothing on his plate. So after talking to the Doctor, he began noticing my portion control and cutting down himself.

 

This reminds me of the early weeks post-stroke. Way too many things on the agenda-how does that happen? I fell asleep at 3pm, just out of pure exhaustion. Fortunately it was a left-over dinner night. Kira is still having constipation issues.

 

So, no, I am not avoiding the big issues. Just trying to get through this hectic week, intact. I am thinking about the real issue here and what has to be done about it. I know Bruce is still processing and tomorrow we will have to do Monday errands that we probably won't be able to do on Monday. He loves getting out. Then big time discussions this weekend. Any advice welcome and will let you all know. Debbie

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>So Wednesday, the Botox appointment and WHAM, right upside my head

 

-what upside your head? Did he have a seizure and you got hit in the head?

 

>even called him back at one point to look at some flannel pants for hanging out. And again, I have to stop myself because he has me thinking like him. Warm comfy clothes for sitting in a WC and channel surfing.

 

-huh? You don't have to have a stroke to think like that! I would not consider the season without warm comfy clothes to channel surf in! I mean, we don't want to never do anything but sit around and channel surf, but there is a place for it. If it is all being dressed and ready and go, go, go, then there is no time to decompress and stress will build up. (typed while still wearing my pajamas, 11am)

 

The world is spinnning, too fast, here too, try to get a foot hold on it somewhere, so that you can catch a breath!

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Debbie,

You are racing!! that was me. But, now, I am trying to get my head around all of this time that i have.

 

I hated to hear about the contracture. Yes, If only Bruce would work with the caregiver and let her stretch out that shortened muscle.

 

I have fallen asleep out of complete exhaustion. It is a warning to let you know that you are pushing beyond the body's capacity.

 

 

Who, knows. Perhaps you need to spend more time at home.

 

I can tell you that Wiliam is so happy that I am at home. He does alot more therapy because i am at home.

 

He goes to the pool every day just because he knows that it makes me very happy. He is slolwy progressing. But, it is back and forth. Somedays he is confused. But, he is more comfortable with me around.

 

I must admit that i am still getting used to the fact. I am anxious and cannot seem to find enough to fill up my time. Mind you, I do not want to clean the house.

 

But, as most people have told me. It will probably take 1 month to get used to this new aspect of my life. The newest chapter to my life.

 

Please take care of yourse. William stressed that I really need to take care of myself. He is so right.

 

Ruth

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Debbie, maybe tell him the only way you will let him stay alone while on the zanaflex is if he lets the caregivers help him with stretching to work on that contracted muscle?? Maybe a little bribery will work. LOL It is great news that he is recognizing the need to practice portion control and is starting to do this himself and has already lost five pounds. That is super progress for him!

 

I feel pretty silly trying to think of some advice to give from ME to YOU. You are usually the advice-giver. I think you have always been super with prioritizing and getting everything taken care of. I am sure that with some much needed rest that is exactly what you will do again. Good luck and don't wear yourself out!!!

 

Dena

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If that's the Doctor's thinking, it may not be a bad thought. But something I learned in my early days on the medi-go-round. With some meds it is imperative to take them in the morning, or evening or whenever the doctor prescribes. I was on a med once that snowed me under but worked like a champ for the reason I was on it. One day I was telling the doc I hated the med and wanted to come off it because what's the sense feeling good if I was going to be zonked out and miss it! He told me to stop taking it in the morning and take it, instead, at bedtime, Problem solved! I slept like a log (which has always been a problem for me) and the sleepiness was worn off by morning but the good effects of the drug were still keeping me afloat.

 

Ask the doc if that would work for you? If Bruce will absolutely not give an inch and let the caregivers help, maybe he'll take a pill for them sleep off the drowsies so he's bright-eyed and bushy tailed for you to work him over... work him out!

 

Ask the doc and as long as time of dosing doesn't matter, use the side effects to your advantage. Good luck.

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