Hope
It has been a very positive weekend. In making choices as to my time here and at work, think I really know the answer (thank you Nancy, took a while, but it did finally sink in - LOL).
Saturday was a beautiful day, finally after all the rain. Bruce read almost all day while home - again me being in the house. We loaded up the truck with the donation stuff and went for a ride and lunch out at the reservoir. Today was busy. We had a big shop. No we don't need it, but he loves going and does so well with his coupons. Tomorrow is PT-OT evaluations, so we had a lot to do after lunch and nap. Estim, needed to work on his flower boxes, laundry, we did dinner and weekly meal prep, then shower, weekly pill box refill. Yes, it takes twice as long, but the alternative is TV channel surfing, but after the "Daylight" conversation, obviously more work is needed as to cognitive recovery. I am convinced that he will lose it if we don't get back on track and he has told me he can not do it himself. So we will get some new routines into place.
Colleen, he made your Chicken Curry tonight. I let him use the Food Processor, so it is a bit less chunky than you would probably suggest, but he loves that thing and that will be dinner Tuesday night. He'll need to make your Hummus on Tuesday - he does so love it.
An interesting thing came up on Saturday, that I would like to share. Bruce's Botox was last Monday, so Saturday was day six. This is early for Bruce's dose to kick, but probably. While he was Estimming, he complained of shoulder pain. This is new. Even when he was sub-luxed, he did not complain of pain. I suggested he stop the Estim, but he refused. Now, Bruce Estims every single day. He does his own settings and after I place the pads, he takes over. I don't worry about the knee - anything helps, but since the arm-hand has moved so rarely after the stroke, didn't think much of it. Can't hurt certainly. So this was interesting. Of course I checked everything out and Bruce said he would consider an Xray.I offered to put on his sling - no go. Best news is that he has his OT evaluation on Monday.
The amazing thing, and this is where I may have hope: This arm-hand has hung off the side of his body for 4+ years. OT re-evals often, as you all know. There are days he never even thinks of it: hanging off the bed, the WC. I have to remind him to put it in his lap for safety. We tried using it to hold things down, carry things; just to remind him it is there. But he never developed a system, so it is just there.
But it has been so strange to see his interaction with the arm this weekend. He is working it constantly. I know it is pain (?feeling) and I know he is trying to resove it. All those exercises OT taught him that I thought went in one ear and out the other. Stretching, weight bearing, even putting it on the table. Just the knowledge that he knows it still exists and is part of him.
I told Julie tonight it is strange to find hope again. If it is acute, Bruce knows to tell me. But in my heart I am thinking this may be positive. I may crash by this time tomorrow, but for now, it is nice to know I can still have hope. Debbie
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