Considering Us all Lucky
I read a post today about one fellow getting a new PT and how much difference it made. I got me thinking about my hubby's unfortunate experience with stroke.
First of all, he was having strokes and didn't know it, said nothing, and got worse for who knows how long before it was finally diagnosed because of another injury.
Once he was diagnosed, nothing was done for him...no meds (not even aspirin), no therapy, no followup - just "quit working and take it easy"! He retired on disability and that was that. I tried to learn about strokes online but, could have used better information.
His doctor worried about a harmless lump and never addressed the stroke issue. She even commented about his weight loss but, did nothing. When he had control problems, she waved it off as nothing. I had to research the problem and ask her for a prescription for external catheters. He lost all the muscle he had built up working with his body (construction) over the years and was emaciated looking. I encouraged him to drink more fluids because he was dehydrating and made sure he ate plenty of good food. I encouraged mental activity but, he wasn't interested. He kept getting worse, anyway.
I cared for him alone - with no help - for 5 years and did everything that had to be done that he used to do. It was stressful and I started having nosebleeds. Finally, I had a really bad bleed and was taken to the hospital for care. Charlie panicked while I was gone and tried to drive to the hospital; he wrecked the car. The police grilled me while I was in the ER being treated - my nosebleed lasted 10 hours.
He was taken to a good hospital but, mainly they treated him for a broken hip. He was transferred to a nursing home where he was fed pureed foods (he had lost his dentures in the wreck) which he decorated the room with. They did not give him enough fluids so, he dehydrated rapidly. He had no short term memory so, I had to explain everything to him...accident, hip, teeth. The doctor felt he could not return home because of the stress on me and I think he knew it (somehow) because he became depressed. Two months after the accident he died.
Knowledge, proper medical treatment, and help taking care of him would have made such a difference for both of us. I can only advise that if your physician or therapist doesn't seem right for you - find a new one quick.
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