Lauren spent about 4-1/2 weeks in the nursing home getting skilled care. He came home on July 8. Medicare wouldn't continue to pay for his stay because he wasn't making enough progress. It was touch and go there for a while about whether I could bring him home at all. He required two to three people to transfer and he was not doing well in PT either. He always does so much better with me that I was unsure that what I was seeing at the nursing home would carry over to home. One day I asked if I could try to transfer him in and out of the car with the PT there. That seemed like a deal-breaker for me. If he was to be home, I needed to be able to get him to doctors and tests. She reluctantly agreed although I could tell she thought I was out of my mind. She brought out an extra therapist with her when we tried it. He did perfect! No problem at all. They just stood there in shock. Then we came into his room and I transferred him to the stool. Again, just like normal. They weren't even taking him into the bathroom. Just let him make a mess and they'll clean it up in the bed. Then I transferred him to bed by myself. All just fine. This is not a statement about how bad or incompetent they were. It showed us all how much better he does with me than with anyone else. He trusts me and is used to the cues I give. We have a routine he is comfortable with. That clinched it for me. I knew I could safely bring him home--at least for a while.
I am still taking it a day at a time. I don't honestly know how long I will be able to carry on but, for today, I can and I will. Since we got home he has already choked several times (big time scary for me). He took himself into the bedroom while I was napping on the couch and tried to get himself into bed, ending up on the floor. I can't budge him when he is down like that so I had to call 911 to get lift assistance. Thankfully, they are so kind about such things. We have PT coming in which helps keep him from getting weaker. I still feel very close to an edge but I figure every day I give him at home is one less day he has to endure away from his home. I'm going to give him every day I can. ~~Donna