Looks like the time has come
I know I have been silent lately. I've been doing a lot of reflecting and thinking. A few caregivers here have seen improvements in the cognitive status of their loved ones and seen functional gains, some small and others significant. I've wondered if I was somehow holding Lauren back and not giving him the freedom to succeed. Meanwhile, some cognitive gains and continued hospitalizations for UTI's and assorted problems. One day I am in the kitchen reading the paper. Lauren is in the living room watching TV--open concept home so I should have heard but didn't. He decided to roll himself into the bathroom and try to transfer himself to the toilet. Without applying the brakes on the wheelchair. Without getting help. I decided to check on him in the living room--not there. Went on in to the bedroom--not there. On into the bathroom--on the floor softly knocking to get my attention. Ambulance call to help get him up. He wasn't complaining of pain so we decided to keep him at home. Next morning, I can't even get him out of bed. Another ambulance call to transport him to ER. Compression fracture of the mid back. Another lecture from ER doc about keeping him at home. "We are going to admit him but they are going to have a serious talk with you about nursing home." Okay. Fine.
He has been in an inpatient rehab unit once again. This is the third or fourth rehab visit in three years. I think 4th. He is not making any gains at all. Just getting him to stand up is a major ordeal. They are using a hoyer lift to get him in and out of bed. Now, he will stand up for me but it is still much less functional than he has been. I have decided it is time for full time placement. It looks like he will get some additional rehab time in the nursing home unit before he moves to nursing home care. His needs are so complex both medically and physically and now I can't even trust him in the other room without me. I'm tired and just can't do any more.
I have found a new facility that I feel very good about. It is expensive but I think it will provide good care and opportunities for mental stimulation that I am happy to see. It is a sad time. I had so hoped to not be forced to come to this point but I don't see any viable alternatives right now. I sure hope he will adjust well to a new setting. ~~Donna
17 Comments
Recommended Comments