• entries
    20
  • comments
    105
  • views
    15,726

A Bit More Independence and Perpetual Fatigue


LadyRose

1,093 views

On May 10th, my family and I went visiting some friends for the day. We left my wheelchair in the car. I sat in a chair at my friends' home (a leather recliner) and fell in love with it. The next day was Mother's Day, here in the USA, so my husband and son brought me to Bob's Furniture store to purchase for me, the same chair that our friends own! It wasn't delivered until the following Friday but now that it's here, I am so pleased; it's the best gift ever!

 

I am able to compute in the chair and nap in it too ( this is a bonus since I don't have to remove my AFO and shoes as I do when going to my bed -since I need those and my arm sling to walk, I'm saved 20-30 minutes of putting them all on again wnen my nap is done).

 

My husband has made some furniture positioning changes in our kitchen (the table moved away from the wall to the center of the room -allowing me to use it as a sort of launching zone from all things in the kitchen...sink...fridge...cabinets...stove...microwave...counter tops) which has enabled me a great deal more independence so, this along with the new chair (which allows me to sit in real furniture from which I can get up to standing very easily) means that I no longer need my wheelchair in the house. The wheelcair has now taken up residence in the trunk of my car.

 

I've been fairly pleased with my progress at home but I'm a bit annoyed that I also seem to have acquired a perpetual state of fatigue. My doctors have done labwork to check my thyroid, iron, vitamin D, etc, but all are normal; yet everyday I awaken tired, as if I hadn't slept at all. I linger in bed hoping to sleep more but can't always manage it. The thing that finally prompts me to get up is either hunger or the need to urinate. I know that it's normal to feel tired after a stroke but it's been 10 months since suffering the stroke (CVA) I'd expect to be past that tired phase by now.

7 Comments


Recommended Comments

Well Rose it could be many things or reasons for you feeling tired! I been checked for the same things, thyroid, vitamin D and others and all is OK but I can sleep from 7 PM to 8 AM and still be sleepy and tired. I figure it could be me carrying my paralyzed left side everywhere I go even to bed!! I get no help from that side at all..

 

Now I got 10 years since my stroke, a brain bleed so I figure my brain is just tired since it was affected first from or with the stroke!! Most of the time I use my scooter and other times my cane. When that side feel heavy my eyes are ready to rest and I can go to sleep and feel so rested after a little while!!

 

I guess I may never know the reasons or real cause of being sleepy anytime!!

Link to comment

Rose, my late husband Ray had massive fatigue issues from his first slight stroke in 1990. He did go back to work after six months but would come home, sit in his comfy chair and be instantly asleep. Nothing seemed to fix it but as years passed he did get some energy back and managed to stay out of bed longer. He still "hit the hay" at 8pm every night though which limited any social life we may have had before he stroked. We still managed to continue with a couple of organisations which had evening meetings but not late nights.

 

I love the chair for Mother's Day idea, great family present. And so another part of your life changes for the better, easier nap times, better access to the kitchen with the rearrangement. Enjoy your summer.

 

Sue.

Link to comment

well it sounds like you are able to do more in the car so your brain isn't quite up to speed with the new fun things you can do. Even if it may not seem like a huge change of activity, it is to your brain. Give it time to adjust to your new perspective. Your brain and body know life in the wheelchair. Let it get used to life in a fancy chair

Link to comment

Rose: just an example. My Bruce is five years post. We got out this morning: his therapy, picked up medications for the Cat: Bruce waited in the truck, Hair cuts and we took the long way home, Bruce loves his rides. Lots of fresh air. 4 hours out of the house. Bruce could barely get through lunch and he never misses a meal - LOL. He napped for 2 solid hours.

 

You just have to rest or nap when your body tells you it is time. And with that wonderful new recliner and less "fussing" time with the braces and clothing, you just need to plop down and close your eyes. Go with it and I promise you will find even more energy if you take frequent time outs. Debbie

Link to comment

Rose, you love that chair! great present. My dear, I am four years after Mr. Stroke, and I need my nap and rest. I have all the tests, and doctor said"brain need rest", so that is what I do. Go with the flow, enjoy your chair, and enjoy resting in it!

 

Yvonne

Link to comment

Strokes are not like 'injuries' where you feel bad and heal and back to normal. The brain has damage now, and the working parts are working harder to try to do more = exhaustion. Even our neighbor who had a mild stroke and can do nearly everything, still feels the exhaustion. Bob is 2 years after, and naps 2-4 hours a day, sleeping 10-12 at night.

Link to comment

Strokes are not like 'injuries' where you feel bad and heal and back to normal. The brain has damage now, and the working parts are working harder to try to do more = exhaustion. Even our neighbor who had a mild stroke and can do nearly everything, still feels the exhaustion. Bob is 2 years after, and naps 2-4 hours a day, sleeping 10-12 at night.

Thanks for this post...I do the same as your Bob. I sleep a full night or longer and often take 3-4 hour naps too.

Link to comment
Guest
Add a comment...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.