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From: Vision problems


SassyBetsy

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My prism glasses supposedly help me a bit according to the PT that makes a study of my eye jumpiness but I am having trouble tracking in reading and it is blurry on top of it. No insurance for eye therapy but the PT says she can show me some home exercises which is what I will end up doing anyway is doing exercises at home. I had to read something aloud in class the other night and it was my worst nightmare. For someone who gave workshops, I have always been a fool public speaker with the biggest stage fright ever. It is so scary to me so I guess that is why I did it. One day I expected to enjoy it. I felt the same way about some relationships actually but that is another story. But there I was reading from a paper and my eyes were blurring out and I couldn't keep my place on the page. Like a car I took in the shop regularly once, this only happens in real life and not when an expert is watching. I wondered if my nerves were doing it to me. I have a brain damage in the area of eye movement so it is to be expected I was told which just made me cry which didn't help the vision improve. But I still go to class and pretend that I belong and that I am normal and that even if some buzzard comes and plucks my eyes out I am going to write this dang dissertation. Yessss I need to have some computer program to help me write or to read things but I just had a print out and wanted to read it myself. So this is what I did: While I was reading and then suddenly I lost my place and realized I couldn't see anything but these jumbled words no letters really without spaces and what did that say, well so then I just made it up lol! I didn't want to stop and admit that I couldn't read my paper because suddenly someone removed all the spaces in between the words and even between the lines and that the letters, words, and lines were moving on the page even and sometimes I could read it and it was normal and sometimes I found my place-at least I think that was the place. Did anyone notice or did I sound like I was on drugs ok so that was the wrong thing to say because I am on pain killers and make an addict look reasonable but did I get away with it? I don't know but I just tried and maybe I added some good ad lib in there but maybe I sounded repetitive when I found my place and read again. I don't remember how it went up there but I never do because reading in front of the class which is prob seven or eight is like a stadium full of people to me so I never relax or remember so not any concern over memory here. I was like this before. I have always sounded like Dorie in Nemo. I derail as a natural part of my speaking lol so I don't know how to gauge any speech probs here. My mind races though and my speech sounds different that it used to but that doesn't silence me but it worries my vanity. You know how it is that when an accent is there or some slow speech then everyone thinks you are not as smart and what if it is discovered that I am not smart after all LOL! But the reading was scary and why is it happening now. Well they calmly said Gaba which helps with the pain and I am quite engaged to right now for better or worse has a side effect that has to do with vision. Once again I think of how if I would just stay home and rest on the couch I wouldn't have so many problems. As it is I beg to go out like a middle schooler grounded. It isn't like I don't know that I am not functioning like I used to but I just want to plow through as if I am and pretend it doesn't matter. That is scary though and makes me cry and complain so people say don't do that anymore and I say why not because it was fun and I enjoyed it and I sound like a nutball to them. But the vision thing worries me. Am I going to lose my sight and is that where the problem in the brain is and am I going to be like this or worse and I raise my hands to the sky above and say please don't take that which I enjoy so much away not with everything else that is gone today please not this. As IF my voice is heard. Is it? I haven't been able to read right since that night so I wonder what is happening and I know I am on higher Gaba but I keep looking for is it this or that but honestly it is hit and miss. One time I see ok and another time I have to stop reading.

 

It is complete cowardice. Fear of losing what I love to do and fear of losing a huge part of myself identity and what would I do without sight. I would happily bargain my walking thing for my sight and what is this nuttiness about trading one thing for another I always do that. AS IF. My PT is so wonderful and she said I had these jumpingbean eyes and so she did that maneuver to fix it and I waited for a miracle but here I am still having vision probs and balance probs. I won't be driving the coast this weekend folks. I wanted to believe in this therapy and maybe it will take a few more and do the other side too.

 

I learned that peppermint essential oil is good for the dizziness nausea I get in the car and just sometimes whenever no reason. PT put some on a tissue and it helped me. The room is big and has so much stuff in it and looking around it made me sick to my stomache. I said ok I am going to sound crazy but this room makes me sick. I had thought that the last time and I was afraid to mention it because it didn't seem reasonable, must be something I ate or didn't eat with the meds or maybe I am getting a cold or maybe any other reason than my thought that coming in this room started nausea going. But as soon as I just blurted it out then she said that it common for stroke and vestibular and that there is a reason behind it and she explained it. I feel like a child afraid to ask or say things I don't know anything or some visitor totally clueless or just a complete idiot. And when it is a common reasonable thing I am so wanting to just hug her. And what a nice treatment to sit and smell peppermint. except it makes me want to eat one and preferably the chocolate covered mints over hard candy but either will do but noooo blood sugar thing again oh righto but smelling is really nice. Who knew. I didn't imagine and I am lacking in the appreciation of essential oils. I will read up later when I can see right. So I will get some as soon as I can get to the local health food store or any grocery store. The one store I went to didn't have peppermint. A handkerchief is preferable to a tissue. LOL so I just had this image of me holding a hanky to my face and I decided that maybe I need a fan and a feathered hat to complete the look. I don't recall seeing any sold in stores but honestly haven't ever looked. I recall my father using them always and I have some I inherited from my grandmother actually and where would those be and how long to be able to hunt for that box. Ordering online might be faster. I hate not being able to rummage through stuff. It is always like christmas finding those packed away things. But I found that peppermint soothed my soul too. So mindfulness existential sitting and smelling peppermint and wait are you talking to me? If only the cell phone had an aromatherapy app now wouldn't that be a nice invention just add essential oils here and smell away LOL. Anyway I am going to do it the old fashioned way and put it on a hanky if I can get a hanky. I was warned that essential oils are pricy. I way them for a couple of bucks which may be pricy in context but I could do that. It wasn't peppermint and tea tree oil was about 11 bucks which is still ok for me so wonder if essential oils have a better to best quality hierarchy. I would appreciate any tips and all.

 

I am in such a brain fog when I take Gaba 900 mg at night but the nights are when the pain just gets a party started. Lower dose doesn't help the pain and doesn't put me floating through my own thoughts like a visitor. So in addition to not reading well I must choose between pain or being high. I don't see the joy in being high. I f ind it terrifying actually so I have never been an experimenter or an addict. I don't like feeling floaty and disconnected. I feel as out of balance mentally as I am physically when I walk. I am never in danger of addiction without the pain because I hate taking this stuff. But I love the pain relief from the meds and I have no conversation with the docs yet about anything else but it is early on in the stroke timeline they say.

 

I lost the point of what and why I write LOL just another brain foggy transcendent moment of being lost in the moment of this experience and I pray my craziness this time is another oh yeah common and explainable. Thank you for wading through this.

 

 

 

Source: Vision problems

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Betsy, well at least your vision problem hasn't stopped you from writing quite eloquently. And since it hasn't been all that long since you had your stroke I would think there is still time for healing to correct the vision problems. If not, I am sure you will adapt. You seem the adaptable type.

In my wife's early post-stroke days she had problems following lines of type in a book, magazine or newspaper. We provided her with a straight edge so that she could read, which she always enjoyed very much. Slowly that problem began to disappear without us really even noticing. Today she has no trouble reading and that straight edge has been discarded.

Here's to healing.

Ron

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Hi Betsy,

Re: Public Speaking:

I was drafted into the armed service at the age of 18 during WW11. At the  time, I was given the option of joining the marines or the navy. I stated I wanted the army infantry, as my brother was a patrol leader fighting his way through the Pacific and I was anxious to seek revenge at the enemy.. So in true army fashion,I was placed in the air force. I made several attempts to transfer to the infantry, but settled for being scheduled for training as a gunner and radio man in the B29 buildup for an attack on the cities of Japan.

Japan surrendered on the same day I completed basic training and I was considered surplus personnel to be discharged after serving 18 months. This left me feeling frustrated and inferior as I guided seasoned veterans through the discharge process on their return to the U.S.

Following my discharge, I returned to my high school to gain my diploma. It was in my English class that I raised my hand, as the first volunteer, to read my essay at the head of the class. My confidence collapsed as I struggled through the reading with a shaky voice and hands, squeezing out words painfully after prolonged gaps. I was completely humiliated in front of a class of returned veterans, many of whom fought overseas for as long as five years. The teacher gave me an A plus, aloud. Rather than accepting this as encouragement, I took it for the pity of my stage fright episode. The title of my essay was,”How to Overcome Shyness.” F.or the next 19 years, I never spoke up in classes or meetings.

Upon receiving a promotion to officer in charge of a bank loan department, I was expected to give monthly reports before the board of trustees and other bank officials. I was faced with a dilemma, should I refuse the promotion or leave the job. I learned the bank would pay the tuition for Dale Carnegie's speaking course. I was assured at the registration when I half jokingly stated that I was afraid I might faint in front of the class, with the retort of “Don't worry, the instructor has two able bodied assistants who will catch you”.

To my surprise, I was awarded a Carnegie pen for the best speaker of the session. Soon after, I was elected class president What was anticipated as a dreaded experience (It is said that the fear of public speaking exceeds the fear of death by many) became challenging and fun, boosting my confidence considerably.

However, I was left feeling frustrated. A Carnegie class is excellent to overcome the initial fear of speaking, as the class is comprised of others with the same problem, thereby offering empathy and encouragement. But now that I overcame the initial fear, I wanted constructive criticism and analysis.

It wasn't until a few years later that I chanced upon an article in a local paper seeking members for a Toastmasters' club. I had no idea what to expect when I attended my first meeting, but soon realized

this is exactly what I was seeking. A dinner evening of good fellowship with analysis, constructive criticism, educational materials and 40 planned speeches ranging from 3 minutes and progressing to 20.

When one succeeds in making his/her 40th speech, that person is qualified as an Able Toastmaster. I gained considerable confidence and became an activist in business and civic circles, serving as a trustee on several boards and making speech engagements as well as founding Toastmaster clubs and a Kiwanis club. I taught a course on communications at the American Banking Institute (actually the emphasis was on public speaking, but not publicized to invite students fearful of speaking publicly).

I incorporated elements of Dale Carnegie, Toastmasters and the “Person Centered Approach” which I was trained for by the late Dr. Carl Rogers, famed psychologist. The results were highly successful with all students making excellent strides.

I apologize for going on at great length about speaking accomplishments. I hope I don't sound too boastful about what was decades in my past. I am far from that person today with age and post stroke taking their toll. Certainly, if I were to face a group today, with shaking voice and hands my first words would probably be,”I forgot what I wanted to say!.”

So much for me. What I am leading to is “YOU” I think you should change your user name to “Plucky Betsy.” I am sorry you suffered a stroke at such an early age. You obviously have a very high IQ and a mind that trips over it's self with so much to say. Nervousness when speaking before groups is a given. Toastmasters has a saying, “We all have butterflies in our stomachs, but Toastmasters teaches them to fly in formation.”

If you have a Toastmasters club in your vicinity, it may not be a bad idea to visit as a guest. In an introductory talk, reveal your plight and desire not to be floored by your setbacks. I know in my past that members are a very supportive group and believe they will continue to be so today. I believe you have a lot to offer and if your condition allows, the experience may not only be growthful, but therapeutic.

Thank you for your kind words in reply to my prior posts. I was unable to respond at the time and am unable to retrieve it as I wanted to comment on an interesting point you made.

Regards,

AJ

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Thank you Ron for holding up hope for me to grab onto.

 

AJ I am so impressed with your life so far and I thank you for taking the time to encourage me. I would sing the national anthem if I could just hop in the car and drive to the stadium and walk up the podium. No that's a complete lie and I would take being shot at dawn over singing that.

 

I am impressed you trained with Dr Carl Rogers because he is one of my idols.

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Hi Betsy,

 

Glad to hear you are familiar with Carl Rogers, but not too surprised. You mentioned that you held workshops, what type?

 

Carl ( he preferred being called by first name without title) was a brilliant, extraordinary  being, humble and spiritual. I was fortunate to have participated in several "Person Centered" encounter groups in the early seventies, through the Center For Interpersonal Growth, founded by Curtis Graf, Phd. I was honored to be on staff with Carl on two occasions.and completed a two year program, sponsored by the Center.

 

My experience through Carl, led me to facilitate groups within my bank composed of members representing the various departments and levels from tellers to president. This was a daring attempt at the time for such a conservative setting, (Carl warned me that it might be very risky) . However, I had the president's support as he wanted to improve communications within the bank.. The results were very satisfactory. The president even allowed for payment of my two year tuition for the Center and stated that my communication groups could be extended beyond Long Island and throughout the State. Sadly,as the result of a merger, the groups were discontinued..

 

The Person Centered concept could bring peace and understanding to the world, if only greed and ideology would allow it.

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Supposedly, elderly people dwell on past memories. I have not, as past episodes feel like they occurred to another person. It surprises me that some of my past arose to the surface in reaction to your posts. Upon examining the reason, I concluded that your openness, inquisitiveness and free association style of your writing, brought to mind that period between my mid-forties to mid-fifties when I experienced considerable growth. Thus my remark that your appreciation of Carl Rogers did not surprise me.

 

While I momentarily enjoyed the reminiscence, a cold awakening echoed in my mind, excerpted out of context from the Beetles' "Yesterday," the phrase,"I am not half the man I used to be!" To draw comparisons with the past may bring some solace to some, but it just intensifies my feeling of loss and makes it more difficult to accept my house-bound isolation.

 

I sense a drive in you that will turn water into wine or anyway, lemonade out of the lemon that was served you. Go girl!

AJ

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Dear AJ,

we are all half the man we used to be at some point for even before I had the stroke I was surrounded by those half my age which isn't so flattering for us women anyway and now I would gladly take that half and now feel I am a fourth the man I used to be. Ok that is corney but it is just that we feel loss all along this journey of self-growth and finding the joy takes some doing. All I know is that you may be housebound now but thanks to the internet your words and spirit soar on wings and such limitlessness is experienced just through a shared understanding and that is the gift I received from you and all those who have kindly replied to my message in a blog.

 

I am truly sorry if it caused you pain. I am sorry that it feels like it was a past belonging to someone else because it is experiences worth recalling and reclaiming. wow impressive. It is part of the tradeoff though that in return we find it hard to live up to the next step, hard to let go of the past and when we do we kinda hold on to things better left to soaring and eliminate all trace of things we would benefit from knowing.I am envious that you have the memories. I thought I would get more time and make more and then I feel selfish for saying so because I have had a good run too here but I am not ready to be finished though. 

Don't be sad because even from the chair in front of the internet you are a mighty force and I bet that when it is all tallied you are double the man you used to be.

 

PS. Just did some work with at-risk teens  or some internship work and stuff like that. easy stuff and I always found doing it in real life less stressful than doing a class presentation in front of peers even when they are supportive and nice. LOL.

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