From: Vision problems
My prism glasses supposedly help me a bit according to the PT that makes a study of my eye jumpiness but I am having trouble tracking in reading and it is blurry on top of it. No insurance for eye therapy but the PT says she can show me some home exercises which is what I will end up doing anyway is doing exercises at home. I had to read something aloud in class the other night and it was my worst nightmare. For someone who gave workshops, I have always been a fool public speaker with the biggest stage fright ever. It is so scary to me so I guess that is why I did it. One day I expected to enjoy it. I felt the same way about some relationships actually but that is another story. But there I was reading from a paper and my eyes were blurring out and I couldn't keep my place on the page. Like a car I took in the shop regularly once, this only happens in real life and not when an expert is watching. I wondered if my nerves were doing it to me. I have a brain damage in the area of eye movement so it is to be expected I was told which just made me cry which didn't help the vision improve. But I still go to class and pretend that I belong and that I am normal and that even if some buzzard comes and plucks my eyes out I am going to write this dang dissertation. Yessss I need to have some computer program to help me write or to read things but I just had a print out and wanted to read it myself. So this is what I did: While I was reading and then suddenly I lost my place and realized I couldn't see anything but these jumbled words no letters really without spaces and what did that say, well so then I just made it up lol! I didn't want to stop and admit that I couldn't read my paper because suddenly someone removed all the spaces in between the words and even between the lines and that the letters, words, and lines were moving on the page even and sometimes I could read it and it was normal and sometimes I found my place-at least I think that was the place. Did anyone notice or did I sound like I was on drugs ok so that was the wrong thing to say because I am on pain killers and make an addict look reasonable but did I get away with it? I don't know but I just tried and maybe I added some good ad lib in there but maybe I sounded repetitive when I found my place and read again. I don't remember how it went up there but I never do because reading in front of the class which is prob seven or eight is like a stadium full of people to me so I never relax or remember so not any concern over memory here. I was like this before. I have always sounded like Dorie in Nemo. I derail as a natural part of my speaking lol so I don't know how to gauge any speech probs here. My mind races though and my speech sounds different that it used to but that doesn't silence me but it worries my vanity. You know how it is that when an accent is there or some slow speech then everyone thinks you are not as smart and what if it is discovered that I am not smart after all LOL! But the reading was scary and why is it happening now. Well they calmly said Gaba which helps with the pain and I am quite engaged to right now for better or worse has a side effect that has to do with vision. Once again I think of how if I would just stay home and rest on the couch I wouldn't have so many problems. As it is I beg to go out like a middle schooler grounded. It isn't like I don't know that I am not functioning like I used to but I just want to plow through as if I am and pretend it doesn't matter. That is scary though and makes me cry and complain so people say don't do that anymore and I say why not because it was fun and I enjoyed it and I sound like a nutball to them. But the vision thing worries me. Am I going to lose my sight and is that where the problem in the brain is and am I going to be like this or worse and I raise my hands to the sky above and say please don't take that which I enjoy so much away not with everything else that is gone today please not this. As IF my voice is heard. Is it? I haven't been able to read right since that night so I wonder what is happening and I know I am on higher Gaba but I keep looking for is it this or that but honestly it is hit and miss. One time I see ok and another time I have to stop reading.
It is complete cowardice. Fear of losing what I love to do and fear of losing a huge part of myself identity and what would I do without sight. I would happily bargain my walking thing for my sight and what is this nuttiness about trading one thing for another I always do that. AS IF. My PT is so wonderful and she said I had these jumpingbean eyes and so she did that maneuver to fix it and I waited for a miracle but here I am still having vision probs and balance probs. I won't be driving the coast this weekend folks. I wanted to believe in this therapy and maybe it will take a few more and do the other side too.
I learned that peppermint essential oil is good for the dizziness nausea I get in the car and just sometimes whenever no reason. PT put some on a tissue and it helped me. The room is big and has so much stuff in it and looking around it made me sick to my stomache. I said ok I am going to sound crazy but this room makes me sick. I had thought that the last time and I was afraid to mention it because it didn't seem reasonable, must be something I ate or didn't eat with the meds or maybe I am getting a cold or maybe any other reason than my thought that coming in this room started nausea going. But as soon as I just blurted it out then she said that it common for stroke and vestibular and that there is a reason behind it and she explained it. I feel like a child afraid to ask or say things I don't know anything or some visitor totally clueless or just a complete idiot. And when it is a common reasonable thing I am so wanting to just hug her. And what a nice treatment to sit and smell peppermint. except it makes me want to eat one and preferably the chocolate covered mints over hard candy but either will do but noooo blood sugar thing again oh righto but smelling is really nice. Who knew. I didn't imagine and I am lacking in the appreciation of essential oils. I will read up later when I can see right. So I will get some as soon as I can get to the local health food store or any grocery store. The one store I went to didn't have peppermint. A handkerchief is preferable to a tissue. LOL so I just had this image of me holding a hanky to my face and I decided that maybe I need a fan and a feathered hat to complete the look. I don't recall seeing any sold in stores but honestly haven't ever looked. I recall my father using them always and I have some I inherited from my grandmother actually and where would those be and how long to be able to hunt for that box. Ordering online might be faster. I hate not being able to rummage through stuff. It is always like christmas finding those packed away things. But I found that peppermint soothed my soul too. So mindfulness existential sitting and smelling peppermint and wait are you talking to me? If only the cell phone had an aromatherapy app now wouldn't that be a nice invention just add essential oils here and smell away LOL. Anyway I am going to do it the old fashioned way and put it on a hanky if I can get a hanky. I was warned that essential oils are pricy. I way them for a couple of bucks which may be pricy in context but I could do that. It wasn't peppermint and tea tree oil was about 11 bucks which is still ok for me so wonder if essential oils have a better to best quality hierarchy. I would appreciate any tips and all.
I am in such a brain fog when I take Gaba 900 mg at night but the nights are when the pain just gets a party started. Lower dose doesn't help the pain and doesn't put me floating through my own thoughts like a visitor. So in addition to not reading well I must choose between pain or being high. I don't see the joy in being high. I f ind it terrifying actually so I have never been an experimenter or an addict. I don't like feeling floaty and disconnected. I feel as out of balance mentally as I am physically when I walk. I am never in danger of addiction without the pain because I hate taking this stuff. But I love the pain relief from the meds and I have no conversation with the docs yet about anything else but it is early on in the stroke timeline they say.
I lost the point of what and why I write LOL just another brain foggy transcendent moment of being lost in the moment of this experience and I pray my craziness this time is another oh yeah common and explainable. Thank you for wading through this.
Source: Vision problems
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