I put the following in the CPS forum. I wanted to add it to my blog because maybe even others without CPS can relate or offer me some coping strategies. Thanks for reading.

I am in a five star rehab center/nursing home. A nurse came in and wanted to know why I am on so much pain medication I replied because I have central pain syndrome from stroke. She said she saw lots of stroke people who never were on this much medication. I said because not all have CPS. She hung on to the bone saying that She never saw someone on this much medication and still not relieved. I said I was under the care of a pain center in the large reputable teaching/ research hospital and my doc is a pain management specialist who is an expert. The nurse said I was being defensive and misunderstanding her. I said what should I understand because it sounds like you think I am on too much meds so I am explaining why. Plus I know this "nurse" is still in a program at community college/joint university program because she told me so. Anyway I listened to her saying she is not familiar with this and then in the next breath saying she knew all about cps.

Whewee.

Bottom line is she is of the opinion I take too many drugs. I am not sure what agenda. Concern. Disgust. Judgment. I refrained from joking I am a legal drug addict because I wonder if that is her point.

She said she wanted to learn more about cps but when I suggested google,she said she did not need that.

What kind of conversation was this?

I explained this is a guinea pig stage where they were trying different drugs,combos,to see what helps me. I said I do not know why all of these meds do not help yet and I do not like being on drugs,and never took them before stroke. She said she was not implying I did.

Ok my head was spinning and I really need a pain pill she brought me. I wonder what is her beef really. I was shaking and needed to refocus reframe. Was she another one calling me an addict. She kept taking about in her experience,which seems like not so much. Was she doubting my pain in all those "I know you have pain but..." statements.

This is a forgettable conversation. But an example of dealing with the ignorant who will stay so.

1 user(s) are reading this topic

1 members, 0 guests, 0 anonymous users

SassyBetsy

StrokeNet Message Board → Stroke Survivor → Central Pain Syndrome → CPS DiscussionPrivacy PolicyBoard Guidelines ·

Use Mobile Version Change Theme Mark Community Read Help

Community Forum Software by IP.Board 3.4.6

Licensed to: The Stroke Network, Inc.