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who's the pushy one?


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As a caregiver I sometimes have to be in the right about things. Even while I am asserting what I think is right in a situation, sometimes over and over and in a loud voice, a small voice in the back of my head says:"but what about their rights?"

Because of Ray' disabilities it is easier for me if we follow a routine. Sometimes when I say:"Come on mate, it's time to get ready." he rolls his eyes and I can see that he doesn't want to go out. I guess in the days when I could leave him safely on his own, in his able bodied days, I would just have said :"Well, if you don't want to come I will go by myself." and I would have slammed the door behind me. But now that I can't leave him on his own, I can't do that. So whether the appointment is for me or for him we both get to go.

Since the physiotherapist's visit last week I have been concerned with getting Ray to do the walking she wants him to do. Here as in the US the amount of therapy of various forms you get depends on seeing results, so if Ray doesn't do the practice and doesn't show improvement he will be seen as incapable of improving and the therapy will be discontinued. And I am banking on him recovering his balance, improving his walking and generally being able to walk further so it improves our chances of having another successful trip away (my need).

And so I begin to be pushy. Reminding him of his need to do the exercises, reminding that he hasn't done his exercises. (anybody with me here?)saying in a loud voice that it is about ** time he did the exercises. I do stop short of threatening him but I feel like doing that too.

Am I just a bit pushy? I guess so. But I do love him and I do want to see him get better, or at least back to where he was prior to this last stroke.

Please.

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Sue,

 

It's a fine line we walk and it's really easy to step over it. I know and have experienced exactly what you're talking about. Every aspect of our lives is affected by whether or not our guys improve and it's hard to see those therapies sessions disappear. But I think they get tired of them, too, and don't understand that once they're out of the therapy system it's almost impossible to get back in. Even though I don't mind taking Don with me, I also miss going places on my own too.

 

Jean

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as both a survivor and a caregiver, i know that depressiona and apathy can affect one's recovery after a stroke or TBI, and that even if that depression/apathy is patrially biologically mediated, it needs to be dealt with if one is going to recover to best that one can. when i stroked, i pushed myself no matter how tired, depressed, or apathetic i felt, and i believe that my self-pushiness was and is a major factor in my recovery.

 

shortly after the accident, when John was settling into an apathetic mind frame of, 'i can never go back to work, i am going on disability', which was reinforced by his then neurologist, i told him, 'i have seen a lot of people go on social security after an accident, and it's not a pretty picture. you are not doing that. you are going back to work.' he is now back to work for six months. i'm not saying that every survivor can go back to work; i'm just saying that John could, but was so apathetic that he was willing to accept the doc's misguided recommendations.

 

my dad, who is paralyzed, is currently very angry and depressed and doesn't want to do his exercises so he can speak more clearly and swallow better. i tell him that if he continues to be depressed, i will call his doctor and get him back on antidepressants. that typically gets him to do his exercises,at least for a few days.

 

therefore, i'm all for being pushy. i just wish that i could be helpfully pushy without being condenscending and/or obnoxioius all of the time instead of just some of the time.

 

sandy cloud9.gif

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