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I'm resigning from this job


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Not a good day today. The physiotherapist came and gave Ray a tape with some exercises, sat him down and did some of them with him and then did an assessment - and that's it! She's not coming back!

Why?? Because Ray's answered every question: "Yes", "Fine", "Can do." etc. According to him he can do all the exercises and doesn't need the help. I didn't actually hear all the answers as I had Tori and kept her busy so I only heard the tail end when she told me Ray was doing just fine and if he did the exercises on the tape every day would not need any more help.

AS IF!!! Part of Ray's trouble is denial, he hardly ever, according to him, has incontinence, has a fall, has need of help (well probably not because I do everything for him), in fact one would wonder to listen to him why he doesn't just pack up and go back to work. But the reality is so different. He is slow, has no use of his left hand,drags his left leg, cannot walk without the stick, needs a wheelchair for distances is often unbalanced in his walking. He has trouble with incontinence at regular intervals, has difficulty with small tasks and answers "I don't know" to most questions. But the physiotherapist said he is just fine!!

I blew my stack with all the discretion I could manage with a four year old on the premises. I've waited for twelve weeks for a physio and that is all we got!!

What can I do in the face of Ray's denials? I said that we got the physio in to improve his balance and now he will have to work on that himself. I can only do so much, I'll take him through the exercises on the tape but as for the quality of what we do, I just can't be the judge of that. And Ray usually doesn't stick to exercising for long. And unless he gets back to at least his pre-May fitness I can't risk taking on another holiday. He is just not safe to travel with just one person to look after him. At least here I can call on Trevor or a neighbour to help me if he falls down. And it is fortunate that so far none of the falls have resulted in broken bones.

SO I have said we will start to look at local respite facilities (mostly annexed to nursing homes, without rehab) so I can have a break a week at a time, maybe a week every three months. It will cost us but I will use that time to recoup my energy. Six years and two months with only three days break twice a year, it has been a struggle and I am not sure how much longer I will be able to do it. Just now I feel like handing in my resignation.

As the saying goes: Denial is not a river in Egypt.

4 Comments


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Sue,

 

Don always answered everything with "yes" or "fine" too unless I challenge it....it's part of his speech deficiencies, not a denial in his case. What I do when he's around medical people and I can't be with him in the room---like Monday when he got a Cat scan---is tell them all ahead of time to not to go by Don's words, but to look for his body language. Would this approach work for you and Ray? Lots of the therapies, nurses, etc., are young and inexperienced or they take the lazy way out. However, I can see if Ray is in denial, then you can lead a horse to water but you can't make him drink. Tough problem, Sue!

 

Jean

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What I don't get is WHY do these doctor's nurses and therapists take the answers for a person with BRAIN DAMAGE at face value?

 

And I don't know if it's a "man thing", "competitive thing" or just an effect of the damage, but why do our survivors always feel if the pass a therapist/doctor's asessment test-even by cheating- that they've won something? As long as the doctor says "You're doing fine", even if the doctor is saying it because they have not been told the whole story, then our survivors think they must really be fine because the doctor said so!!! UGH!

 

Ya Love Em-

-Wish Ya Could Choke Em. smile.gif

 

Kristen

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Sue:

 

I also think in US all these PT,OT is governed by insurance, its nothing to do with what patient says or does it, if patient does not show changes from week to week basis, your therapy ends, nothing is forever, you can guide patient, as jean says you can bring horse to lake, bu can't make it drink, I know yu are in tough situation, maybe ray minght be depressed, also get him to read some spiritual books, for me having hope on higher power helped me there r few books which I like to read are

1. path through suffering elisabeth elliot

2. ripple effect - betty j. eadie

3. embraced by light - betty j. eadie

 

good luck

 

Asha

 

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Thanks all. I see it as three fold.

Ray likes to please the nurses etc, to be a "good boy" so if they say :"can you?" he says:"Yes" meaning he's willing, not that it is achievable. Included in this is the thought that somehow this is a game that you need so many "yes" scores to win. This was really obvious during his three months rehab originally.

Ray has trouble formulating speech more now (dementia?) so he uses easy answers instead of long explanations. This leaves the health professional without some of the information they need to do the assessment. Usually I let him answer and then fill in the gaps. But I was busy with Tori.

The system we have means those who complain the most get the most attention, rehab etc. So easy-going guys like Ray get very little. The physio may have overlooked that if she had asked the right questions but he was sitting, gently smiling and saying"I'm fine." so I guess that is the end of that.

If you ask the wrong questions and get the wrong answers you, make the wrong decisions.We've all seen that happen in many aspects of our health systems haven't we?

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