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Some days I just want to give up


caringfor5

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I know the title sounds harsh but I feel that way some days. Like today for instance. I was feeling pretty grumpy because I stayed up with Mike watching a movie until around 1:30 in the morning and the kids ended up getting me up at 7:00. So When I got Mike up I probably wasn't the nicest I could be. Basically when I'm feeling like this is when the little things get on my nerves. Like why can he not sit in the chair straight today but normally does. So I'm trying to wash his hair at the kitchen sink and having to remind him over and over to sit up straight so the water doesn't get all over the floor. Well he considers this b****ing as he puts it and so then we get into a fight about whether I have the right to b**** or not. Well I feel that its not b****ing but more like requesting. Our problem is though that these little fights turn into a full blown argument with him cussing at me and calling me every name in the book, he says the most foul things to me he trys to grab at me, he grabs my face and spits in it and its these times that I just feel like I can't take it anymore and that I've made a mistake bringing him home. I have shed more tears over this than anything else that has happened since he's been home and I think even more so than the stroke itself. Unfortunately most of the time my kids are here to witness this and that breaks my heart even more. And today there were people outside and it was a nice day so our windows were open and I'm sure that the whole street could here him. There were two deliverymen next door delivering our neighbors new washer and dryer, I can only imagine what they thought especially if the neighbor didn't tell them that the person who is screaming at the top of his lungs has had a brain injury.

 

It really just hurts more than anything whether its a brain injured person or not. Its not like he's just screaming, he is hateful and some of the things he says are just disgusting. I don't know maybe when we get him off of the paxil (which didn't help with this or anything else) then maybe he could be put on something different that will help with these outbursts. And its not just me that brings these on sometimes it other people or things and then I just end up in the line of fire. It just so happened that today it was triggered because of my grumpiness but that isn't always the case.

 

At least he hasn't done this in public.....yet.

 

Tina

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Tina:

 

I m really sorry for Mike's outburst, I am sure he is not doing on purpose, it must be assualt of his brain injury. I have read someplace frontlobe injury can make people do this kind of things. I know as it is things are hard on caregiver and top of that if person does not appreciate and does verbal abuse, it becomes more unbearable. I m sending you tons of virtual hugs. have you talked with his doctor about his outburst.

 

please hang in there, I know for sure without you caregivers I don't know where any one of us will be.

 

Asha

 

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I had my Mum here with me with mild dementia, she had outbursts like Mike and the caseworker who was in charge of her respite said not to fight every little battle. So if she didn't want to shower or have her hair washed let it go till tomorrow. Choose a time when she is calm and then say:"How about a nice shower and I'll put your favourite blouse on you and get something nice for dinner?" and that did seem to work.

 

With a brain injury there seems to be a "wind up handle" somewhere so the more anxious, uncomfortable, unable to perform the person gets the more abusive they become. I guess without being able to run away from the situation I might do that too. One way to approach it is to prepare Mike well in advance for what is going to happen, like washing his hair, so he is ready to co-operate.Don't do anything you know might cause him to start this behaviour when your children are around. And remember Mike will have good days and bad days and in response so will you!

 

All caregivers think at some time that they have made a mistake in bringing the person home instead of putting them into a care facility. I know I do. And keeping them home through the ups and downs takes its toll. It is a situation I review every day. And after seven years I can say: "so far, so good".

 

Hang in there, you will have better days when being with Mike wipes out all other considerations.

 

(((hugs))) from Sue.

 

 

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I can't add anythingo to Sue's excellent and practical advice but I can throw in some extra hugs. My heart goes out to you.

 

:friends: :friends: :friends:

 

Jean

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hi I know what you are talking about as we have the same situation here and as you say it gets worse when they are tired or yourself yourself is out of sorts....we have a communication problem in that he sometimes thinks he is doing things the right way and they are backwards. I find I have to try and explain things in advance which sometimes works better than others, I wish I could pinpoint the reason he does this but also am at a loss as to what really triggers the irrational behavior... a child you can send to their room or give them a swat and they will usually get the picture... I think it has something to do with taking away their independence as they see it.. and maybe they can't see how they can gain control.. I have cried many a tear and also have thought of and alternative and then I put myself in his shoes and say no I can not do it ....I read a lot and hope to find the answer soon as it is very frustating for us both as we did everything together and never had to ask for help or hire help...lots of hugs

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Thanks everyone,

 

I really don't think he wants to react the way he does but it sure doesn't make it feel any better. I have talked to his doctor about this before but the last time he was at the neurologist I told them it was getting better, which it was but now the progress with this seems to be going backwards. Mike was apologetic about a half an hour or so later so at least I can say that when it does happen we both say we're sorry and we move on.

 

Tina

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Tina,

 

I know this is going to sound oh so trite...but.....water can be mopped up. I've learned alot of other things can be mopped up, too. I can sure identify with you when you say that things get a little more difficult when you are tired. You are doing exactly what I do - you are stopping to think about how you would act had the roles been reversed. When Bill would go into the bathroom in the middle of the night and I'd hear him going to the bathroom - but not because I heard it hitting the water in the toilet - I'd become so frustrated. In my blurry-eyed stupor I found myself becoming very irritated - and full of remorse over my attitude toward something he had no real control over. All I could offer in the aftemath was a hug and a kiss and an "I'm sorry, honey."

 

There is a verse in the Bible that says "a soft voice turns away wrath". I think that's so true. It's just great that you both can acknowledge the rough spots, apologize and move on. After all, that's what it's all about - moving forward.

 

Sometimes we do just have to raise the white flag and "give up" for the moment. That doesn't necessarily mean I've given up on our situation - I have just decided I'm not going to win every battle along the way!!

 

Warm wishes :hug:

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I don't think I was descriptive enough in my entry because it wasn't really about the water or even my attitude. It was more about Mikes reaction. I guess what I should have said was that Mike says I am "b*******" I feel like I am requesting. Basically if he is in a mood I can not say anything more than once without it being considered nagging or b*******. And in order to not "set him off" I would basically have to walk on egg shells for the rest of my life or just plain not open my mouth about anything. Its not a matter of him getting mad at me or me getting mad at him. Its the things that he says that bother me and thank God I can over look it later. If I held a grudge for all the things that he has said it would be a very miserable house around here because the things he says to me are the most awful things I have ever had said to me.

 

Tina

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Tina,

 

"Sticks and stones can break your bones but words can never hurt you." Well, as adults we all know that that childhood phrase is a bunch of BULL, don't we. Words do hurt, even when you consider the source. They hurt a lot.

 

I hope you find the answer to your husband's out-bursts in the form of a different medication. Keep the pressure up on with his doctor. Be perfectly honest and graphic with him or her about the violent nature of your husband's out-bursts including things like him spitting in your face. You might want to ask to speak to the doctor out of ear shot of your husband so you can express yourself more fully.

 

:friends: Jean

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Sorry I missed this sweetie...been lost in my own pain these days! I'm sorry about these outbursts...hopefully you can find some meds to help with this.

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