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how much do we blame "the stroke"?


swilkinson

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Having time to yourself is a bad idea for me. Because I start to think about all sorts of things. When Ray is here I am too busy to think and so I just live minute-to-minute, day-to-day as all full-time caregivers do. I am including here all who caregive someone who lives with them and sometimes lives close by as a good friend cares for her mum and lives with her husband and runs two households instead of one, that woman NEVER sleeps.

 

I was talking to a friend on the phone last night and she is running her husband's business for a week while he is away fishing. This is his reward for letting her go to Scotland alone earlier in the year to visit her grandchildren. They couldn't afford for both of them to go so just she went. There are a lot of trade-offs like that in marriage. We were talking about landing in Heathrow and I immediately thought how much I would like to travel but can't "because Ray has had strokes". See? Everything comes back to that , doesn't it? Ray has had strokes so poor me can't do any of the things I want to do!

 

It is so simple to blame it all on "the stroke". My house is untidy because I look after a person who has had a stroke. My furniture is old because... My health is declining because....My clothes are old and daggy because... Hang on here, where is MY responsibility in all of this? Everyone has 24 hour days and everyone, to a certain extent, governs how they use it. A person caring for a stroke survivor just has to be more careful with their time to allow for some of the other events to take place.

 

As a full-time caregiver I need to put time management skills into practice. I need to have a look at my life and see where I can take advantage of the time I have to do some of the things I want to do. For instance I complain that I never go to the movies. But since the place that hired the movies in my local shopping centre moved and I have to drive another ten minutes to get movies I don't rent movies either. This is not about the stroke, this is about ME. I could plan that into my shopping trip, pick up movies, do the shopping. Not that hard to do.

 

And I need to practice trade-offs. I could get the son who drops his daughter off to have a visit with Granma to pick up my fruit and vegs while he is on the way back to pick her up as he drives past the shop I usually use. It is a matter of putting some of the ideas I used to use when I worked outside the home into fixing up some of the wasted experiences here. And like Sarah (space1) maybe I can barter some of the things I have for some of the things I need. I just have to have time to think about it.

 

I can think this way when I have time to myself but can't think at all when most of my activities are governed by knee-jerk reactions to the current crisis. Mostly I just don't have time to sit down and sort things out. By the end of this week I need to have not a "to do" list but a list of how to do things better.

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Amazing what happens when we slow down and take care of ourselves...our mind opens up to many new possibilities. Meditation does that for me...forced time to just reflect on myself and let the musing in my mind come to the surface!

 

Great ideas, Sue...I hope it works for you! You have my support if you want to brainstorm!!

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Hi Sue - I think Mel posted this expression - that I quickly copied when I ran across it and now and have on my computer:

 

Your life will always be, to a large extent, what you make it.

Your life is yours, you own it and what you make it, is purely up to you.

Others may support you in your aspirations, but, in the end, it's your creation. You are your one and only boss, and with that awareness comes a special responsibility.

Once you accept this responsibility and stop waiting around for others to make you happy, you will become unstoppable. Your life will change, all because of you.

So, turn on the green light and GO!

 

copyright -Meditations for women. All rights reserved.

 

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Karen I believe what you have posted up to the event of marriage. That is because I do believe that "the two shall become one flesh" as it said in my marriage ceremony. So Ray and I are one, so what happens to him, happens to me, or to a part of me. Therefor what I do also becomes of importance from the aspect of how it affects him. Our lives will be what WE make them together.

 

So I do not believe that "you are your one and only boss" applies here. I don't wait for others to make me happy, nor do I expect to have to make others happy, but I do expect that I will uphold my side of the marriage vows even if Ray is unable to uphold his. To me our partnership is maybe 80/20 now but that doesn't matter as long as together we make up the 100%.

 

Now how do I turn what I believe into what I do every day? Hey! this is so easy to say, so hard to do.

 

Sue.

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Sue,

 

Great blog! I've heard a saying - my head is a terrible place for me to be alone....I can overthink, overrationalize, overdefend every aspect of my life.

 

I think we are of the same generation, influenced greatly by our parents when it comes to the marriage thing. I was told long ago that as long as each partner feels as though they are giving 80% in the marriage, in reality it is probably about 50% and we are about on target. Now, that is in a marriage with two healthy partners I think. In our situation, as caregivers we are naturally probably contributing about 80% to the maintenaince of our situation - a choice we've made.

 

When I really stop to think about it, unless and until I'm willing to take full responsibility for the way I am I'll always blame the way I am on something or someone else - unfairly. I think that's what the part about being my own boss means. I have to first be responsible to me before I can be responsible to another. Again, it's a choice I make.

 

I agree with you about the marriage being a covenant that transcends health issues. I don't think that God intends for us to lose ourselves in all of this though - and that's what it's easy for us to do. As with you, the words are the easy part. All of my "will do's" fade quickly in the face of the many caregiving responsiblities when Bill comes home. As long as I know it's a choice I make for myself, and not a situation "caused by" an outside circumstance I think I'll be ok. Using my husband's health as an excuse for me not doing the things I should be doing for myself is easy to do, but when I see it in print it really isn't fair to me - or him.

 

I often think about what would happen to him if I get sick - and usually, when he goes in the hospital I have a day where I just can't get out of bed - exhaustion, I know.

 

Love,

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