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in praise of Ray


swilkinson

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Ray and I sold raffle tickets in a giant Christmas stocking, at our local shopping centre today for our Lions Club. We have seven four hour "slots" to do this Wednesdays and Saturdays until 20th December.

 

One buyer, a slight acquaintance from years gone by complimented Ray. He said: "Buddy, you are doing what a lot of able bodied people never do, paying your way in society." I take that point. Ray IS doing what a lot of able bodied people don't think to do, working for others: the blind, the disabled kids, the other members of society who will benefit in some way from the money we raise.

 

It is not often I say this but I am so proud of Ray sometimes, despite his disabilities he still finds service to others satisfying. And I told him I was proud of him too.

 

Now I criticise Ray sometimes for the things he doesn't do. I know a lot of them relate to his disabilities, others to his dementia. His thought processing and memory loss mean he is not able to retain a list of things he has to do, so he might change his shirt but forget to shave, or shave but forget to comb his hair. It is up to me to make a thorough inspection of him before we leave home. This sometimes mean we need to change some of his garments at the last minute. Because of that we didn't get to our Lions meeting on time last night and so he sat at one end of the table and I sat at the other. This made it a bit awkward as I had to keep trotting back and forth to cut his meal, butter his bread roll,get him a drink, fetch a serviette, later a cup of tea etc.

 

One advantage for me was that I got to talk to someone other than Ray. And others got to talk to him. He used to belong to Lions for many years before his stroke and before I joined to be his helper. It is one of the places where he is treated almost as if he is "normal" and I try to make my help as unobtrusive as possible. Last night it became obvious to one of my table companions who said: "I never realised how much you have to do for Ray." For those of you who wonder why others don't help you with your survivor, that could be one of the reasons. It is almost as if by being unobtrusive we are hiding what has to be done from others and the fact that we could sometimes use a little help. But maybe it is better that way.

 

But this is a blog in praise of Ray for a change. So I want to say how proud I am that he still tries to function in society. I know many people would have given up a long time ago, maybe after the second, third or fourth stroke. But Ray does still try to keep going. He is uncommonly courteous and kind to the older folk we now mix with and got a warm compliment yesterday from one of the craft ladies who said how much she had missed him while he was in respite and how nice it was to "have him back with us again". He is now an accepted member of that group and a common opening of address from our "leader" is: "Now, listen up ladies, and Ray."

 

He is still very much occupied with reading. But he also likes to sit on the verandah and see the world go by. I posted a picture taken of the view looking down our street in the gallery. It looks as if it is very rural but is actually a bend in the road. It still gives him a lot of contentment to think that he built the verandah on the house himself. As a carpenter he built onto our house three times, making it from a tiny one bedroom "holiday cottage" into the three bedroom house with front verandah and back patio we live in now. It is not a new house in a rich neighbourhood, it is just the house we have lived in a good part of our married life and like us it is comfortable.

 

Ray is a good man. He was good to his parents. He was thoughtful of his brothers and sisters and still loves them and I am sure is puzzled sometimes that they rarely contact him. He always helped our neighbours and friends and never sought to get anything in return. He is much more likable than the rest of him family, well I think so anyway, and always did have a cheerful view of life. This has gone now, as has his ability to work, do carpentry etc. But I think the essential kindly nature is still there and can be glimpsed in the way he talks to small children, dogs and old ladies. I can understand our daughter praising him for his ability to smile, day in day out, in what must sometimes be a life that skirts the borders of depression.

 

Yeah :cheer: :cheer: :cheer: Ray.

 

 

 

 

8 Comments


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Sue:

 

it is very touching blog, I know you love Ray dearly, and sometime blog about your frustration with caregiving, and I appreciate that, cause lot of times us survivor don't realise that we are getting too dependent on our caregivers. It is amazing that Ray wants to do so much for others, that's big heart in him and I don't think anything to do with his disability, I am very happy for both of you, could you please hug Ray from me,

 

as I had told you my Dad suffered from Alzeimer, and our coping was way different than yours, I still feel guilty of not treating Dad's dementia as disease.

 

lots of love

Asha

 

 

 

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Sue,

 

I agree with Asha and I want to add that as much as our guys can frustrate us at times it's still easy to see that both Ray and Don handle their disabilities with as much grace as possible. Nice tribute you wrote here. I only wish that Ray could return the favor and I'm sure he would if he could.

 

Jean

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Sue your love and devotion come shining through. I know Ray appreciates all you do, he may not express it, but with his sweetness and kindness you know he is a happy person. I am sure he gets frustrated. It is so good that you look for ways to fulfill your lives.

 

God Bless, Bonnie

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Sue,

This was a wonderful tribute to Ray and the love that you share. We all get frustrated as caregivers, and sometimes venting here seems to be the only outlet we have to people who truely understand. We also truely understand the love behind our frustrastions, otherwise, why would we stay? For anyone who has not be a caregiver or survivor, this is a shining example of how the love you feel for someone can make the "decision" to give so much of ourselves by caregiving- a "non-decision".

 

Your American Daughter,

Kristen

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My hubby same as your 's was also a very good carpenter, and was very knowledgeble of all the other trades that were involved with a contractor's life... There was nothing that he wouldn't attempt to tackle and usually was successful.. Now he has a hard time dealing with the loss of his prior ability to accomplish anything he set his mind to do.. I have to try and help him see that he still can't do things like he would have done had he not had the stroke... Like measuring and keeping things square, this has caused a lot of problems in his attempts to try and regain what he lost. I try to do it with discretion but that is not always possible as in order to have a proper fit and things have to be fairly level and on square etc...You carpenters will know what I mean. He also had done so much for people and was a very giving person and now very few have returned the favor.. He still want's to do things for others but can not cause this ability has been taken away from him.. very sad and I also love him for how he tries when he is able to find something that he can do... I think that I will get him to make some Xmas goodies as he likes being in the kitchen.. Hope the weather warms up as there is lots os lites to put up but it is too cold now to be outside for very long.. Got love him for trying...

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Deenie, I visited a friend and her husband today, she was busy so he and I got to have a long talk. I told him how lonely Ray gets sometimes. He said:"I wish I could help but when I remember the way he used to be and see him as he is now it just makes me so angry. And then I just choke up and can't talk to him."

 

I guess some people can adjust to the person who our husbands have become and some people can't. Sure wish there was someone who could come up with an answer to this problem as I am sure your husband and mine would both like their old friends to come around and act the same as they used to.

 

Just encourage him to do what he can do and sometimes that does mean paying someone else to straighten it out. I wish early in the piece I had encouraged Ray to do some carpentry but right from coming out of hospital he said that was all in the past. Hasn't done more than look into what used to be his workshop since. Sad eh?

 

Sue.

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Deenie,

 

My dad was also a carpentar---not by trade, but as a hobby---he built our cottage, helped my brother build his house and did lots of remodeling over his life time.

 

Get your husband into building gingerbread houses and villages for all the holidays....and not just for Christmas. They don't need to be straight and all the candy choices they have to decorate with makes shopping for the houses fun as well. The baking and decorating days can stretch out as long or a little as you like. Try making a Candy Cane Lane for Christmas, Chocolate Village for Valentine's Day, Jelly Bean Beach Cottages for Easter, Fort Freedom for 4th of July, and Turkey Ridge Condos for Thanksgiving. the projects are fun your husband can give them away, too.

 

Jean

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Sue, what a truly lovely blog you wrote and how wonderful that Ray has this wonderful attitude and does things to help others less fortunate. Maybe some of those who see this will become ashamed of themselves and do some too.

 

I think what he does is wonderful and give him a big hug and kiss from me - well, you can pretend it's from you (an extra) but we'll know that that one is really from me. LOL

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