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HostTracy

Staff - Stroke Support
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Everything posted by HostTracy

  1. Hello everyone I just wanted to invite everyone to come and join in at Room #2 Stroke Survivior Chat. I will be hosting Mondays and Wednesdays from 3-4 EST! 🙂
  2. HostTracy

    1. When I had my stroke/symptoms: Serious Central Vertigo 24/7 for many months. Daily nausea, vomiting. Nystagmus (both eyes). Severe sensory overload. Severe PBA. Severe Post Stroke Fatigue (slept 80% of the time, only up to use a potty chair and to try to eat something at first then after a couple of months to the bathroom and up about 5 minutes at a time a few times a day. Aphasia. Severe lasting headache daily. Severe defecit in proprioception. Ataxia, dysmetria of movement, thought, emotions, everything. Unable to stand or sit upright or hold my balance. Movements were very slow, fingers didn't grasp right, intentional tremor, my voice became a whisper, wrote very small and could only do for a short time and it was chicken scratch, speech slurred, couldn't follow verbal or written directions very well at all (got them out of order or forgot them or left some out or just didn't see it). Lots of Cognitive issues, defecits in executive function, trouble with metalinguistics, visual spatial issues, trouble with mood regulation, issues with working memory, everything in my world moved even if it was stationary (at least that is what my brain decided). Cerebellar Cognitive Affectice Syndrome. Cerebellar Stroke Syndrome. Psychiatric issues. Severe anxiety with panic disorder. OMG too much...my brain hurts. 2. Most defecits and symptoms have improved a lot especially the 1st 6 months. The nystagmus went away. I was not diagnosed during my acute stroke even though I was rushed to the hospital by ambulance (2 months BEFORE diagnosis and any treatment or therapy OT, PT and ST.). I had a very rare stroke. Today on most days I can walk, talk, use all 4 limbs, drive and maybe just looking at me you might never know. Every defecit except Nystagmus is still there but I have learned to compensate many. My defecits change daily or even several times daily. I have good days, bad days. Anything that stresses or tires me will increase my defecits and their severity. I still have a lot of Psychiatric issues and see my Psychiatrist every other month and have Cognitive Behavior Therapy weekly. 3. A little over 4 years ago... 7/5/15. 4. Massive Bilateral Cerebellar Embolic Infarction in the PICA region. (Posterior Inferior Cerebellar Artery). Mark I'm not sure if this makes sense and I'm too tired to reread it because I wrote a book lol. 🤓 Say hello to my little brain. 😒
  3. New mattress, headboard, curtains, pillow shams and accent pillows! I love it! 😊
  4. http://www.strokechat.net/
  5. HostTracy

    Haha Will I might can accomodate that! I'm sorta surprised too lol and thank you very much. I think I did pretty good myself...serene - yes that is what I was trying for and my body loves it! Im looking I know I have a picture somewherelol!
  6. Deigh send Kelli an email and I bet she can answer your questions. 🙂
  7. HostTracy

    🙌🏻🙌🏻🙌🏻🙌🏻 Sounds wonderful!
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    Art From My High School Years

    I dearly loved art In many genres and mediums. I took 3 years of art in high school and 1 in college. These are at least 30 years old!
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  23. Such a very good way to think. Love, happy, enough starts with you. You are the key! 🗝️🗝️❤️
  24. HostTracy

    Alan I feel that it is very normal to carry sad feelings and you miss things you enjoyed before and either enjoy differently or possibly can't enjoy now. I feel like it is a healthy part of grief. Mindfulness can be very positive going forward. 🙂. Happy Strokeaversary! 🤗
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