Staff - Stroke Support
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Everything posted by HostTracy

  1. Hi guys!!! Chat will begin in 4 minutes!
  2. HostTracy

    Just a little update since my visit to the Orthopedic Specialist last Friday. Dr. Byram seemed to understand where my pain was coming from... He was really good at reproducing it! 😳 Diagnosis: Scapular dyskinesia, empinged shoulder, and cervical radiculitis. So off of Meloxicam and onto (larger than I've ever taken) steroids and starting a 2 month at least PT with suggestion from Dr. Byram for dry needling. Ha I found that interesting since it was a discussion here. I go next Wednesday to my intake appt for PT. I will be on these steroids for 12 days (thankfully I'm past 5). I have been just d
  3. HostTracy

    BTW I'm having some increased anxiety, depression and anger this week. Baby Bella (the kitten who found me) just went into heat for the first time and Kitty and I are beside ourselves! 🙀 Also, after my trip to the Orthopedic specialist yesterday and after getting 3 diagnosis that I can't remember... I am now on a steroid dose pack for 12 DAYS!!! 😭 I haven't slept all night and the darn kitten is now asleep after a whole night if CRAZY! Time for an extra Xanax today.
  4. HostTracy

    Willis I think we all have felt kindred in this thread and yes God bless all of my family and friends... They do their best and I have always said "I'm glad they don't get me. If they did then I know they have been on this beast of a journey too and I wish that on no one". I find all of my survivor kindred spirits a blessing. I just know many times exactly how they feel. It's an unspoken knowledge and it's an automatic bonus that I can share with others. Pay it forward. So Carrie you hang in there! You have A LOT of support right here...we've got you (OK we get you 😉).
  5. HostTracy

    Carrie!!! 🥳🥳🥳🥳🥳🥳 It's really a good feeling taking those important steps. Occasionally, it might be just a step into my living room to my recliner haha but a step is a step and an accomplishment! OK so your step is monumental compared to that so a super accomplishment! Woo hoo!!!
  6. HostTracy

    Heather lol I was already thinking of it's infinite possibilities to send a message. When I had my cane I too got a sense of this is my space and if you encroach upon it then the wrath of the of the stick is waiting to say hello. (Now, I am not and never have been one to pass out cruelty. No I'm not going to bop little Johnny over the head. It is more about how it affected my confidence. Funny how an object can foster that in someone). Last but not least, curbs, automatic doors, wide stairs with just one rail, a crowd, a crowd of walkers, crossing the road and parking lots, and those pesky tin
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    Kevin, I love reading your updates! You are so inspirational! 🙂
  8. HostTracy

    Heather... Yes ma'am! I also think it is a wonderful idea to wear a face shield and having a Dr. note. I have read that a face shield is great for barrier protection. Sue, I'm sweating just listening to your coming summer! 😥 That one thing (breathing while wearing a mask) has been the absolute most difficult for me. I can even get dizzy. As much as I can I avoid it. So I try to make a really good need list together before I go out on an adventure so I can get everything fir a while in one go. Good luck to you! You might consider the face shield idea (even if you alternate to catch your breath)
  9. HostTracy

    I agree with Heather. Disability payments are a blessing. That being said, it only helps very minimal. I'm still not so good at it after 5 years :(. My mom keeps my back pay from disability in a separate savings that she can transfer to my account if needed but it will only last so long. I know in the future I will have to supplement my disability. This is a very ominous feeling fact. After my stroke I am left with severe anxiety disorder with panic attacks, PBA (brain damage - emotional lability and pretty severe), Cerebellar Cognitive Affectice Syndrome (so I have a multitude of Cognitive de
  10. HostTracy

    Quote: Mick Jagger: "Time is on my side". That's the one thing that has consistently helped mood and function. Paul... Yes!
  11. HostTracy

    HA HA Kelli and Sue I just told Hailey today wearing my mask is a good way for me to feel a bit better about allowing myself out while corona lazy. No one can really tell who it is lol. So hair in a super messy bun or needing a wash, no make-up, really laid back comfy clothes I might normally save for inside. It's possible it is a false sense of security but it works for me! Now, my glasses fogging and the literal sauna going on in there is 100% a downfall. I make quick trips and have been known to remove my mask for a few minutes because I feel like I can't breath (I think it's my asthma....a
  12. HostTracy

    Thank you guys. I'm intent on making the right choice for baby Bella. I been way more heart broken before and I survived! Besides Kitty and I are 2 peas in a pod... We like to cuddle, we like to nap, and we like the quiet life. I'm missing her snuggles... Bella has sort of decided my chair and in my lap are her go to places and Kitty will start to come sit with me and then she sees the kitten and turns back around! 😢
  13. HostTracy

    Carrie I hear you. I really do. I've been right there! When I had my stroke I was THE bread winner for myself, my bf and my daughter. In a moment I went from do it all to - I need help with everything. It was a very hard life lesson to learn that others might not know or understand the truth of that fact. I had to ask for help... It was not easy 😑 I too felt I was letting everyone down. My bf found a good job and my daughter who went to college FT and worked FT figured out how to get us by. My daughter was basically turning over her whole check to help. (I have very little memory but once I be
  14. HostTracy

    Asha I certainly have been in those moments where I'm stuck in a hole. Truth is it does feel yucky. I have over time learned to be kinder to myself and allow myself to be human and make mistakes without getting angry with myself. I realized that we all have our ups and downs and trust me I screw up! A lot! I'm not perfect at it but I know it helps me like myself a lot more (and probably others like me better too haha). It's so true... Tomorrow is a new fresh day. Look to your God for comfort (he is a merciful God) and apologize to someone who may have been in "the line of fire". It will help y
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    Heather me too! Been 2-3 months now every day. Doc says we'll put you on Meloxicam (NSAID) and well minor relief that disappeared once the course of meds were done... and exacerbated tummy issues to boot! 😣 I am praying there is an actual diagnosis based on more than just "here take this". I'll let you know.
  16. HostTracy

    Hi Carrie... I wanted to let you know that many others including myself struggle with post stroke depression and anxiety. I guess I didn't have too much choice but to treat with medication. Just due to the area my stroke was in I am left with a severe anxiety disorder with panic attacks and ongoing PBA. One, well two of the best things I have done for myself is having a wonderful Psychiatrist and a wonderful therapist. I see my Psychiatrist every other month and my therapist each week via video chat. I too had/have serious dizziness. My advice is to work closely with your Doctors openly and ho
  17. HostTracy

    Janelle you always put a smile on my face... Thank you! I'm excited even if a bit unsure. I hope that things falling into place holds true... I will make the best of it no matter! Baby Bella is so sweet. I'm pretty sure I have decided to let her be adopted. I have spoken to a really nice lady from our local shelter. She reassured me Bella would be safe. They spay/neuter, give all shots, give full health care, micro chip each dog or cat (if ever lost and found you can find the pets owner this way)... Then she will be out for adoption. As I sit here writing this my heart still tugs.
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    Thank you Asha. 🙂 It's OK. I know 100% you have your heart in the right place. I get frustrated all the time and I chose to let that go and feel peace in my heart too. Otherwise I'd be a lot less happy and way more negative. Trust me I don't say that toward you at all... It's been 5 years and well I've learned to be OK with me even when others can't "get" the invisible stuff. I'm glad you and some others don't deal with that! We are all different and we have all had struggles. None of us have gotten to where we are the easy way... It's just different. Thank you for being you and for not comple
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    I have severe executive function defecits from my stroke. I 100% relate. My therapist and I work each week to help me find solutions to get along. My Psychiatrist says I have basically ADHD on speed. I have to plan to plan lol and have alarms to remind me of everything (many). My life involves mechanical planning (I have to write a plan never can even get one in my head) and I am lucky that doing so aloows me to accomplish some. So very frustrating. My hope is to work from home as well one day to supplement my disability. I wish I could answer your question and I can imagine how complex the di
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    My heart goes out to you and your family Mike. Prayers that your brother comes home soon and that you can spend as much time as possible together as a family. ❤️
  21. HostTracy

    I am fascinated by this entire thread! First, Alan I'm glad you are finding some helpful treatments. I'm headed to an Orthopedic Specialist in a week due to pain, soreness, even sensation changes under my left shoulder blade and heck I 've had weird pain from front under ribs, under my arm pit, and my shoulder as well. Not sure what it is althoughmy PCP thinks it could be musculoskeletal around whole left ribcage and shoulder blade. Feeling positive hope for feeling better reading your story. (I dont have issues with spasticity I don't think but the nature of my stroke in the cerebellum affect
  22. HostTracy

    I am so thankful and grateful for you too Asha. You've been there for my chat times when I have missed them at times. I know you certainly have pulled my weight when I've had those not so good days...just because you are so consistantly in chat. That definately is above and beyond in my book too and am so grateful for you (I bet all the chatters are too)! Your heart is always positive and I have felt since I joined here that you were an asset to so many. Sue, Asha talks all the time in chat about the different areas of Strokenetwork and how the blog has been wonderful for her and encourages ne
  23. HostTracy

    🤗 OH my goodness even German chit chat is giving me the feels! I am using Duolingo to try and learn Gaelic (a dying language but my maiden name is supposedly Gaelic so why not!). Sue the time we've spent in chat has just been completely a pleasure! I am so so happy you are climbing up the rabbit hole...its a tough climb but the view is breathtaking. Your artistic abilities have just blossomed over the past months and I have truly enjoyed your work! You have been and are such a positive influence for me. It was you that inspired me to pick up my paintbrush again after 30 years of not picking on
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    So very true Heather!
  25. HostTracy

    Thank you Heather! I am trying my very best!