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Larry's colonoscopy (canceled)!


thejule1

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I thought I was so prepared for this test. I bought the Miralax and the Docolax pills and the 64 oz. of apple juice to mix with the Miralax. Larry was a real trooper through all of this and did not mind drinking all of the apple juice/Miralax mix. From 5:30 until 11:30 we were running to the bathroom every 15-20 min. It stopped at 11:30 and we thought we had it made. WRONG! He started again at 2 a.m. and I decided to call the Dr. as I was afraid he wasn't going to be ready for his test at 11 a.m. I said we followed the instructions to the letter and even did the 5 day prep of a low fiber diet. Where was this stuff coming from??? The Dr. asked if we had anymore of Miralax. I said "no, he used all of the 64 oz." She then said to take two more of the Ducolax pills and that he could drink 4 glasses of water until 4 a.m. I could hear Larry's stomach rattling in bed. Poor guy. He was so afraid that he started shaking. He didn't clear by 8 a.m. and they suggested two things. He could go 1 more day on clear liquids and then another round of the Miralax and he could come in the next afternoon for his colonoscopy, or he could reschedule. :head_hurts: I decided to cancel as I thought Larry would be dehydrated or passed out from exhaustion by then. I was exhausted also. It's funny because he never had this trouble before and I haven't had that much trouble either with this test. Anyway, this was a true test for a caregiver/wife and her spouse. Poor Larry. I don't know if I can make him go through this again. I can only know that I am not alone in this as Debbie/Bruce experienced this too. Thanks Debbie for your help.

 

Julie

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Julie, there are some procedures that turn out to be a nightmare, seems you have just been through one of them. I guess if the colonoscopy is important you will have to eventually reschedule. Maybe next time make plans for everything to be disposable to cut down on what you have to do.

 

I think you could consult someone about how to cope with the dehydration during the process. As it is a common test this problem must have arisen before.

 

Sue.

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Julie,

what a nightmare. They should have kept the appt. Larry was all ready clean. Why more miralax and ducolax?

I would be hrd pressed to do that again.

Ruth

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Jules: I thought about what we talked about and ran it by my co=workers. Based on your and my experience, it makes sense that the immobile, less motile stroke patient would require a more aggressive cleaning out protocol.

As you and I talked, these Docs only consider their own specialty. They do not look at the whole picture, let alone the caregiver who has to manage all this.

 

So you reschedule for a cooler time of year, you demand an aggressive protocol for the cleaning out and you want the appointment for the first thing in the morning. Yes, you will wait. This is, afterall, elective.

 

Here I am telling you to get the Cit of Mag, you make a special trip, get it and Doc orders more Miralax. For that I am so sorry. I only pray that he rested, hydrated and you both had good long naps.

 

You can be sure I will be writing to Bruce's GI about these very issues. Ridiculous! Best, Debbie

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Jules: I thought about what we talked about and ran it by my co=workers. Based on your and my experience, it makes sense that the immobile, less motile stroke patient would require a more aggressive cleaning out protocol.

As you and I talked, these Docs only consider their own specialty. They do not look at the whole picture, let alone the caregiver who has to manage all this.

 

So you reschedule for a cooler time of year, you demand an aggressive protocol for the cleaning out and you want the appointment for the first thing in the morning. Yes, you will wait. This is, afterall, elective.

 

Here I am telling you to get the Cit of Mag, you make a special trip, get it and Doc orders more Miralax. For that I am so sorry. I only pray that he rested, hydrated and you both had good long naps.

 

You can be sure I will be writing to Bruce's GI about these very issues. Ridiculous! Best, Debbie

Debbie, I talked to the GI Dr. today. Larry suggested he take some Immodium as he was still "running" this afternoon. She said that was okay. Isn't it funny that Larry has to be his own doctor. Ha! I did mention that Larry did not have this problem before with the prep but that he had a stroke last year. She said something like "yes, that would affect his motile" (I think she said) I thought "well, you knew he had the stroke". All this work and mess and didn't get the job done. I was so mad. We did go in later and get Larry's blood tests finished for the hematologist. I hope we can get back to normal now!

Thanks again for your help.

Julie

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Julie, I can't imagine! They wanted to give Dan a colonoscopy earlier this year because of his colitis. I didn't refuse but I did say really??? He's hemiplegic, can't get on and off the toilet on his own let alone hold it until he gets there. They suggested doing it as an inpatient procedure so I said go for it. It turned out that the colitis got the better of him before the colonoscopy ever became reality.

 

You might ask them about an inpatient procedure. It can never hurt to ask!

 

MJ

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