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Fall in New England


Ethyl17

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Last week at this time I blogged that Bruce and I were on the beach, in sweatshirts enjoying the 66 degree weather. Tonight, I have the AC on-77 degrees. We are back in a hot, humid, rainy pattern for another week or so.

 

Some much going on since Hurricane Irene several weeks back. I wrote tonight how I don't recognize a nice, normal routine until I get tossed out of it.

 

Our friend Barry, who stroked this summer is now home. His wife has arranged the first floor to accomodate the hospital bed and lift and had the BR renovated. Mary Beth reminded them that Bruce came home with a lift and with the help of PT, we were done with that in two weeks. Barry's wife is a PT, so I expect that will be true for them soon. He continues to go to the restaurant in the WC every day.

 

My darling Chris will return to work end of the week with the stipulation that it will be part time for a bit. She is spending the weekend at a lake here in Connecticut, gift from close friends which she needs and I only hope she will take full advantage of.

 

My Mary Beth hopefully will be able to visit for the weekend next week. Mary is back to work after two years, just three months ago and was handed OT week three until today. Her hubby was also on OT for three weekends, so they are financially comfortable going into a tough NE winter in New Hampshire. Takes so much pressure off.

 

Our Fox is still in the neighborhood, eluding Animal Control Warden. But Kira got her Rabies shot and is covered from Mange with her Flea Prevention medication. Just hates not being able to get out and torture the neighborhood dogs-lol. I do take her out on her leash, but not her favorite.

 

Work is crazy. Federal Government cuts Medicare 11% starting October 1 and my facility is trying to figure out how to cope. Poor Nurses and CNAs losing time and their jobs. I am expected to cover in whatever area needs me and I am fine with that. Makes the night go by quicker, keeps me on my toes. Trying hard to be supportive, but since I am not affected, think sometimes others think I am only being superficial. I have been here before, but the Newbies don't know that.

 

Bruce is fine. Cognitively he is doing great. Right there with me. Some short term memory issues and he continues to exercise with Jen and Leo, not with me tho. Told me yesterday "Oh, I don't have the energy" kinda funny because he is right there, but sad in that he won't try.

 

Both vehicles are now winterized and furnace to be cleaned and prepped next week. Tree crew due any day to finish up Irene clean up. Hope to try to get back to normal routine next week. Bruce could not swim this week because the hot water was messed up and the pool was too cool. He is so stiff. I try to get him to at least stand and stretch. No great progress on the Ditropan increase, but we continue to work on it daily.

 

For me, working on scheduling in some decent cleaning. I really don't like this messy house and Kira is shedding, getting her winter coat. Trying to do one hour daily of something here. Want to get back to a normal routine, just for Bruce mostly. So difficult trying to fit everything in. But as with all things Stroke, adjustment is par for the course.

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Fall in Texas is a bit different cause it's cool somewhat then near 100 again but through it all this months electric is just 276.20. That surprised me since last month was over 300 with all those 100 degree days and nights too.

Enjoy all you can up there cause the snow will probably be there soon. Take care of Bruce and tell the others hello from Texas. :big_grin:

Fred!

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I am not a caregiver. I am a survivor but I want to share with you something I think you might need to hear. I do not want pity but rather I want you to understand how important it is to take care of yourself too. I know we only know what you choose to share with us but quite frankly, I am worried about you and I care.

 

All of my strokes were had in Texas. My family was in Maryland. I was utterly alone. My first night in NICU, I couldn't talk, swallow, my right side was paralyzed and my lung capacity was greatly diminished--and I was a smoker whose lungs were trying to expel mucous from not smoking. and they had me lying flat because of administering the TPA and huge dose of plavix. So, I began choking but no one heard me or noticed. I rang the call bell and no one came. I struggled to sit myself upright hoping to clear my lungs myself but I couldn't. Finally someone came in for some other reason and squared me away. I realiized how vulnerable I was and how little anyone cared. I was scared.

 

The next morning I woke to a middle age nurse who stopped what she was doing the moment she saw my eyes were open. she softly touched my forearm and told me her name. She must have cared about all her patients but she made me feel like the only one. when I realized how compromised I was I wanted to give up but I quickly learned she was having none of that. she was there when I spoke my first clear words and when I moved my thumb--she was ecstatic--I was furious. I was trying to lift my whole arm! She realized how afraid I was and knew somehow I felt safe when she was there. They were short staffed and had been leaning on her to pull lots of overtime and she was caregiving for her mother. But she went and took overtime she refused and was there the entire 6 days I was in NICU--12 hours a day. I am very intuitive but even if I weren't I saw the toll it was taking on her. One day I asked to talk to her and tears flew the second I opened my mouth.

 

I sat there in my wheel chair looking at my dead arm and struggling to speak. I was so afraid she would end up like me if she didn't take time for herself. Just the thought ripped me in two. what if she hadnt been there? what if she wasnt there for the next person who was vulnerable and desperate?

 

I know you care deeply for all your loved ones and want the best care for them but part of that is making sure you take the best care of you. That seriously needs to be a priority. Please? Don't make me start crying again! Please take care of you too. Chronic illness doesnt care who needs you or how busy you are. You matter, Debbie.

 

Jamie

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Jaime: please, honey, I do not want to make you cry. Trust in that I have many fans here who check in with me on a daily basis, offering assurance, suggestions and advice. Ones who know. I also have wonderful neighbors, we all help each other. My fellow co-workers are right up the street and my darling sister.

 

I am a homebody. I like nothing more than whipping up a nice meal and keeping a lovely home and yard. I am a simple girl. Plus my Bruce is relatively easy next to some here. I nap every day when he does (a very early suggestion from our wonderful Host Sue). Bruce also goes to bed relatively early and while I must help transfer him at 5am (a farmer by upbringing) he waits patiently with his coffee, TV and reading, until I rise at 7am.

 

I am happiest with a hot shower, clean PJs and a good book. I allow myself Friday nights with no notepad or agenda.

 

As things progress and move forward, we here at Chez Sparks adjust as best we can. Thank you so much for your support and concern. I will heed your words. Debbie

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Thank you. I love cooking too.

 

No tears but just keep looking after you too.

 

I have to say, since my vision cuts showed up reading can be interesting and this gave me quite a start at first glance...

 

I am a simple girl

 

I thought it said single girl and I thought...

 

That is NOT what I meant! lol

 

:forgive_me?:

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