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day 7 & 8


Cipeko

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Hello all,

 

Day7-8 with my grandma in the hospital was great! I've seen her move her right foot at the night of day7, she also can move her left arm quite freely and can raise it to full extent now but we are still keeping her left arm tied to the hospital bed in case she wants to remove her nose feeder pipe. She also farted, yawned, listened to me reading short stories to her with her eyes open, and had even waved to her visitors on day8. She followed my father from 10m keeping constant eye contact to her bedside and tried to make a sound, but the feed pipe and her not having her dental prosthesis did not let that happen, it's too early to say anything about her speech I guess.

 

The hospital neurology department now says that they have nothing to do as my grandma's situation is stablized. Day9 will be a monday, that is tomorrow, the physiotherapy department will have a look at my grandma's status and may transfer her tomorrow to their own ward. This might give us some time to set her a suitable environment at home as the hospital is trying to push her towards discharge. We as a family will try and purchase everything as the government will support my grandma's equipment up to some extent, 50-60% the total price I believe. I asked the doctors in detail of what the attack was, MRI scan showed ? And they said it was an ischemic one, leaving the left brain lobe with a greater than 2/3 rd bleeding and that they could not start the trombolytic treatment since the bleeding was larger than 1/3 of the brain lobe and that my grandma was over 80yrs of age, which meant a serious life risk. I also investigated some medical statistics in north america (Canada and USA) on strokes happening to over 80 yr olds. I will share the links to those studies in case anyone needs those.

 

I also started reading the stroke-caregiver handbook on this forum, and it's amazing to read bright ideas. Thanks everyone for following up on my blog on my grandma's fight and your support. I will join the chat on wednesday to meet some of the members of the site.

 

Day9 will be a new start to a week. My mom is tired, she did not sleep when sitting overnight by my grandma's bedside, nurses kept coming to check on my grandma's indicators, fever, urine level, excreta, serums, etc every 2 hrs. Her Na(sodium) levels were down and that's why she kept on a sleep dominant time on day7 and 8. They installed an IV of a new Na based serum.

 

Her face looks more alive, her eyes looked more lively to me, and I made her listen to 4-5 songs of turkish classical music, which she loves, she fell asleep as she was listening to the music. Later in the day she had nearly 15 visitors from the family, I think we need to install some rules on her visitors, like;

1. 2 at a time

2. one person talks at a time

3. no negative feelings shown to her face

4. talk to her, don't just stare to her eyes and look sad, etc...

 

I enjoy my time with her now, but I need to learn how to change her dipers, how to make her lean on one side every 2 hrs, cream her shoulder, etc... I and mom has a lot to learn from the hospital's caretakers =). Besides we can not all do this as a fulltime job, as it really destroys us mentally, when I stay in the hospital for more than 14hrs, I come home feeling sleepy. =( Mom is pushing her limits, I've got to stop her do that, as this is a very long haul process.

 

Love to all out there, whoever reads this, I pray for more health to everyone. Tomorrow is another day, another hope for us all.

 

Cagin

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hi cagin :

 

welcome to wonderful and therapeutic world of blogging, first few years are hardest after stroke & ofcourse first few weeks are worst one when you are dealing with so many changes & uncertainities. Though from my own personal experience worst is over now its time to regain & reclaiming her life back. I feel when stroke happens its like wildfire in jungle, it destroys lot of trees in the fire, but once everything settles down & smoke clears, you start getting clear picture of destruction and start building your new life.I feel stroke affects whole family. caregiver plays very important role in the beginning. they are not only survivor's medical advocate, caretaker but also cheerleader. though with stroke good thing is that once damage is done its done & every new day brings in small step towards great recovery, don't discount those small steps al those small steps add up to create your beautiful new life & new normal.

 

 

Asha

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Hi Cagin, good to see you blogging, that is a good way to express your feelings about what is happening, keep up with the things that are happening to your grandmother and find some help from others that have been in the same situation.

 

As you have already found there are a lot of people to support you here and welcome you to the Blog Community.

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Cagin: one day at a time and baby steps. Grandmother is making a great recovery.

 

But you are correct, time to get Mom to step back a bit and you also. Just learning all that you will have to do for Grandmother is draining, not to mention the equipment, house set up, appointments etc.

 

One thing I will share that worked for Bruce in the early days when everyone was visiting ( that will calm down, I promise) was one person talks and one topic. Everyone has to be on the same page or no visiting. Grandmother can not multitask at this point, nor can she follow two or three lines of conversation. I would post the topic of the day in Bruce's room, because so many spelled me off in the early days. As long as they stuck to the rules, I could take some time off. His best buddies from out of time, who called all the time, understood and just stuck with one subject. It is much better now, of course, but think about that.

 

Please do come often and update us as you can. Thank you for taking the time. I know you must be exhausted. And yes, please do consider our Caregiver chats. Debbie

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