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day16 08.18.14


Cipeko

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Hello all,

 

Grandma had her nurse introduced to her on day 16, monday. The nurse seems to be a professional one as she wears her hospital dress at home, she's very disciplined, does not want more than 2 visitors at a time and only for 10mins, she said she will speak to my grandma most of the time,etc... Mom is at home now, she's arranging her own house routines, laundry, food,etc for dad and herself.

 

I've been through Sandy's message referencing Bob, been through the photos, videos. Amazed to see 2 PTs helping Bob to move his right leg, etc...hope grandma can get to those level of physiotherapy.

 

Well grandma can not swallow and that's why she is using the NG feed pipe through her nose, but we don't have a clue when it's going to be removed. Got to convince grandma to try and swallow more fruit juice, jam,etc... in order for her to get rid of this NG tube. I guess the reason the bloody hospital had discharged my grandma is that she can not swallow, and they had nothing to do...Guess we have to wait for grandma to get her swallowing to improve. What the nurse said is "if your grandma can not swallow the trial puree given to her, she can then have that food block her airway to her lungs, and then she can have a hard time breathing"...it sounds sensible...but the big question is, when is she going to be able to swallow ? and that can we keep trying to give her some table spoons of juice or yoghurt to see if she can improve her swallowing urge...

 

I guess the real PT can start after she can be fed by spoon? I will also get the MRIs on day 18 from the hospital and have a look at them myself. I have a feeling inside that the hospital did not give us enough information while they were discharging us...and that *beep* me off a little...

 

Anyway, patience...patience...little steps each day...

 

Healthy and happy days to you all,

 

Cheers,

 

Cagin

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Cagin, from what you say, it doesn't seem like they have given you much info on what she should be trying to swallow and not.    Liquids are usually a big no no for someone who can't swallow, because they can run right down to their lungs.   Can she make a cough, like when you clear your throat?   Many times, they can't.    They would have Bob put his fist to his mouth, like he was going to make a cough and imitate a cough for him and he would make a humming sound.   Better than nothing, but not a cough!   This is an important test, it means if they can cough then they can clear their throat of plegm - hmm... not spelling that right, but I don't want to dwell on that word, ha, ha.  Bob was able to take his pills by putting them one at a time in applesauce, not water.  

 

First make sure she is sitting up before putting anything in her mouth.   Bob will choke (still yet) if he even drinks cover and leaning back in the chair.   To tell the truth, I do too!   We both have to make a point to sit up and lean in a little.    At this stage, any liquid she gets should have thickening (like starch) so that it is not so water like.   But you say she has taken the 3 tsp without choking at all?    Be sure to mention this to them.    Sit her all the way up, legs down, not leaning back in the bed like a recliner, and try applesauce.

 

Did they not give you a list of foods / drinks to thicken and try?   

Read this:

http://www.ehow.com/about_5378646_swallowing-problems-after-stroke.html

 

Do you have something called BOOST or ENSURE there?    You can usually find it in the pharmacy part of the store.    You can pour a little of that into a small cup and freeze it just enough so that you can still get it on the spoon without having to stab it so hard.   That will more more nutrients.   You could try soft mashed potatoes with butter/margarine mixed in well (not pooled on top).   Custard.      I am a little more leary of dairy products because they can produce phlegm and would like to hear if she can cough to clear her throat.     Please tell if they gave her the swallow test and if she passed.    If the only reason she is not eating is taste, this will all be easier.   If she had no test or failed it, very much caution is needed.

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Hello Sandy, mom knows you now...I've translated what you've written down over here as a comment, and she's thanking you for every bits and pieces of information.  Today, day18, 08.20.14 we went to the hospital to see her doctor @ the neurology department, and she told us about how to decide if grandma can really swallow or not...we tried yogurt today, via a teaspoon and it was a success...grandma did great...thanks... Grandma can not clear her throat fully but can cough...the throat muscles are not working I need to read the link you've posted above...still couldn't read it...she did not have a swallow test, the the doctor the only test was to test and see...trial and error that is...=( oh, and we got her up but just leaning 90° in bed, not legs down...we must try that sometime but with the nose feeder pipe, it's really a pain to give her any position to be honest...thank god the nurse who started working in the daytime is a wonderful lady, full of energy...and she's strong...=) that's our luck I guess...

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coughing is great.    That is what you would do if something went down wrong, you would cough to try to get it out.   Be sure to buy the high calorie with sugar and fat yogurts and puddings.    The calories are what they need when eating so little.

 

At the time of Bob's stroke, I was vegetarian, and only fed him the highest quality of foods.    I was so sad to see him eating white mashed potatoes & gravy, -pure junk to me.    But high carbs for someone who wasn't eating.    Is your grandmother diabetic?

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