• entries
  • comments
  • views

at a good place



Wow it has been a while since I last blogged. I guess it's been a mixture of me being busy and not really feel like blogging about the crap going on or how I felt. Where do I start? Well a few days after my last entry, I had another seizure. It was really bad. It wasnt in my sleep. I was awake. When the aura came, I thought it was anxiety so I told myself I was ok but the next thing I knew it felt like I had been dreaming and my boyfriend was asking me if I was okay. I didn't know who he was, who I was, what day it was or anything.


After that, I couldn't really take it. It's like the "devil" seen that I was determined not to left the seizure in my sleep bring me down so he sent something worse. I still have to touch my hand anytime my left side starts to feel weird to make sure it's not about to start jerking and a seizure. I got really depressed again but Im doing better now. I started yoga at the Y and try to do mindfulness and meditation so I will just live in the present, dont get depressed over the past, and dont worry about the future.


The people from the sleep clinic never scheduled my sleep study. It's been a little harder for me to fall asleep and stay asleep. I got off the seroquel that was making me gain weight and I stopped the hydroxyzine since it was not really helping nighttime anxiety. My psychiatrist tried to start me on lithium but it was making me eat more as well so I only took it one time. Im going to let him know at our appointment this week. I pray that taking the tegratol is keeping me from having anymore seizures.


I know doctors prescribe meds to help but with my chronic constipation and recent memory loss, I don't want to be taking more meds than I need. I also started PT and OT again. My insurance only approved me for the month of September. Im trying to work on my balance, going up steps with no rail, walking in shoes without my AFO, and straightening my elbow and wrist.


I feel like Im in a good place right now. No matter what happens, I know it will pass. I have gotten depressed and cried for no reason but I cheered up and felt fine. I no longer want to die. Life can be a beautiful gift once you realize it isn't just suffering.


Recommended Comments

Sounds like you are on the right path. Congratulations on making the mental adjustment.  I hope you can reduce your meds, just be careful about making changes without discussing with the doctor.

Link to comment

Katrina, as always know that a lot of us are reading what you write and cheering you on.  You have been through so much but you seem to land in a good place from time to time.  I hope it continues to be good for you for a while now.  (((Hugs)))

Link to comment



I m so happy to read this blog you are handling it right way I guess your boyfriend is good influence on you, I remember from your past blogs u r handling your seizure very mature and spiritual way. I can see u r heading towards end of tunnel where lhappiness and light is waiting for u. Congrats



Link to comment

Finding the right med combo can be frustrating trial and error time.

Seizures are tough to live with and so be proud of how you are surviving.

You are in my prayers.

Have fun in therapy and travel in hope on your journey.

Link to comment
Add a comment...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.