Made it through the first 2 evaluations for a clinical trial
Entry posted by scottm
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After filling out a clinical trial eligibility form quite some time back, the phone rang about a month ago. Took awhile to grasp who was calling but apparently my questionnaire had made it through several selection criteria to make it to a trial team at University of California at San Francisco. Did a phone interview and they said I was a preliminary match for the trial. My medical records and imagery went off to them and today I got notified that I met the criteria to continue the evaluation. Sometime in the next week I'll get a list of the local hospitals who perform the next level of tests including redoing all the MRI's and CT scans. I've done my homework and this study is FDA approved as a phase 2 trial, phase 1 showed some improvement for the study patients motor control.
Of course everything has a downside, this study involves "minor" brain surgery where they drill a hole and inject specially crafted stem cells into the areas around the injured areas in my brain. The stem cells then help those sections create new pathways restoring some function. I'm not completely sold yet, still have questions and top on my list is some level of assurance that there is no Flowers for Algernon scenario at the end.
I'll update this when I have more info.
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