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Am I admitting weakness?


alpinejunkie

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I have never been one to complain about how I feel. Usually in my life when I am sick or injured my nature has been to play it down and not let people on to what has happened or what I feel. I think that goes back to my youth, as it does for a lot of men. When I was young both playing sports around the neighborhood and in organized leagues I was always told to "Shake it off" or "Work it off" or "gut it out" or the ever popular "dig deep". I didn't know where I should have been digging or for what to dig but I knew if I showed weakness I'd loose my place in the pecking order of the neighborhood pack of boys and worse yet, God forbid, move heaven and earth so this never happens, I might have disappointed my Dad. There was no room to acknowledge an injury because the game, and life had to go on as if nothing had happened.

 

That sets up what I'm feeling now; or I guess I should say it sets ME up for what I'm feeling. Every time I go to the Doctor, which is way to often as far as I'm concerned, that could be seen as weakness to; I feel I'm complaining about a new problem. I feel demeaned and small sitting there telling my doctor, I feel dizzy, I always have headaches, I can't have bowel movements without huge doses of laxatives, the smallest problems confuse me, I spend much of the day nauseous, I am so fatigued and tired I have trouble walking upstairs to our bed to lie down.

 

Then come the phone calls from my disability insurance company. I don't know why but for some reason I'm embarrased that I get disability money for really doing nothing accept being different than I used to be. They call and make me go over all my problems. I have to explain to them what I can do what I can't do what help I need and on and on. I know that the reason for these calls is that they are looking for a reason to stop paying me. I feel guilty that I'm having to tell them how sick I am so that I can keep getting money. I want to say, yeah I'm nauseous but I can shake it off and get out there and work. Oh I can't process enough information to balance my checkbook but I can work through it and go back to engineering. No I can't make it through the day without naping and sometimes my muscles are so fatigued that I won't get up and walk across the room but no problem my employer will provide nap time and I'll gut it out and walk wherever I need to at work.

 

This whole thing of being disabled is a complete change of mind set for me. I have always believed disabled people deserved to be helped, they deserved even more than our society gives them. I have always been amazed at the courage, strength and commitment that disabled people show; even the ones that are having difficulty accepting their disability. The problem is I can't cut myself that same slack. I can't allow myself to be the one to show I need help, that wouldn't be "shaking it off" or "gutting it out". It isn't for anybody else but for me it is weakness and a disappointment. I read the stories on Stroke Net and I am awed by the people here. They are strong, I am not. They are brave, I am not. They work hard, I do not. They deserve all the help they can get, I do not. Why can't I give myself what I give to others?

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hey AJ:

 

I don't know what to say intelligently to this blog, I think I will leave it on Jean and Pam, though I think its ok to be disabled, maybe that is part of acceptance journey. I hated to be called disabled but what do you know I m now but that does not mean I m any less of Asha I was used to be, I feel I m now better Asha with compassionate view of the world and not doing any lip service any more

 

Asha

 

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Thanks Asha, you make a lot of sense to me. I am told that I need to get a lot of stuff out of my head, mostly emotions I haven't felt since my strokes. I don't know if I really expect people to respond to some of this stuff, if they do it is fine. I have a bunch of blog entries that are still draft that I'm not ready to publish. They are things I think I need to express but not ready to yet.

 

Thanks for the help you give me.

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Hi AJ

 

I know what it feels like to be constantly restating what disabilities Ray has and am glad it is me and not him who has to do it. I think he would feel exactly as you do"boys don't cry", "just get on with it","don't be a weakling" were all mantras he grew up on. So his response to doctors, health workers etc is "I'm fine thanks". Just as well I am sitting right there next to him and can state REALITY.

 

One of my mantras since Ray's strokes is "LIFE IS" because on any given day it is whatever I say it is. It can be good to others, bad to me. It is my REALITY. So don't ever be ashamed of your feelings , they are your "LIFE IS".

 

Sue.

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AJ,

 

 

OTHER THAN THE FACT YOU ARE A MAN AND I AM A WOMAN, ******WE SOUND LIKE WE WERE SEPARATED AT BIRTH************** NO KIDDING. I AM THE OLDEST OF THREE DAUGHTERS AND FOR SOME REASON I AM THE "BOY". PERFECTION AT EVERY CORNER IS EXPECTED.

 

 

DADDY WON HIS SPELLING BEE, I DID TOO. DADDY WAS A MARINE, I TRIED OUT FOR AND WON THE MARINE "TOYS FOR TOT'S" QUEEN. DADDY WON HIS LOCAL MATH TOURNAMENT, SO DID I. DADDY TOOK ME TO "FATHER AND SON" EVENTS ALL THE TIME. WHEN WE WOULD PAY TO ENTER, HE'D ALWAYS SAY, "I'M BRINGING MY DAUGHTER, SHE WAS SUPPOSED TO BE A BOY".

 

ON AND ON AND ON AND ON, YOU GET THE PICTURE. SPORTS TOO. I HAD TO BE THE BEST. IF I WAS INJURED, IT'S " SUCK IT UP" YOU'LL BE OK". "BE TOUGH". "LIFE ISN'T FAIR", DO IT YOURSELF" OR WORK HARDER" DON'T COMPLAIN". AD INFINTUM. BUT YOU UNDERSTAND ALL OF THIS.

 

 

UNTIL I MOVED LAST MONTH, I WORKED FOR DADDY AT HIS REAL ESTATE COMPANY FOR ABOUT 7 YEARS IN A BUSINESS THAT DOWN SOUTH IS MALE DOMINATED. I AM ONLY 5 FT 2 INCHES( BARELY) AND WHEN I WOULD SHOW UP AS THE "APPRAISER" I WOULD GET ALL KINDS OF LOOKS AND COMMENTS LIKE "I THOUGHT YOU WERE THE SECRETARY WHEN YOU MADE THE APPOINTMENT"

 

 

SINCE THE STROKE IN 12-03, I STILL GOT NO SLACK FROM HIM. DADDY WOULD SAY, " YOU CAN GET BETTER, EXERSIZE MORE, PLAY WORD AND MATH GAMES, IT WILL ALL COME BACK, YOU ARE STRONG, ETC. I FEEL YOUR PAIN. HOWEVER, AS MUCH AS I COULD QUALIFY, I DON'T HAVE THE GUTS TO GET DISABILTY. I STILL MAY APPLY NOW THAT I AM 6 HOURS FROM HOME. ******BUT****I WILL NEVER TELL DADDY IF I DO.

 

I WOULD BE A BIG DISSAPOINTMENT TO HIM AS HE WOULD SEE THIS AS WEAKNESS AND I AM NOT ALLOWED TO BE WEAK.

 

DADDY HAS HAD A HEART ATTACK, BLINDNESS( PART) FROM DIABETES AND IS 65 YEARS OLD AND STILL GETS UP AND GOES TO WORK EVERYDAY AND OWNS HIS OWN BUSINESS. HE EXPECTS NO LESS FROM ME. I FEEL WEAK, BUT ASHAMED. I KNOW HOW YOU FEEL BUT I GUESS IT'S PROBABLY WORSE FOR A MAN.

 

 

I DUNNO, BUT IT'S BAD ENOUGH BEING A GIRL.

 

GOTTA LOVE EM' THOUGH. I WOULD DIE FOR MY FATHER. I WOULD LITERALLY GIVE UP MY LIFE TO SAVE HIS.

 

LOVA YA'LL

KIM

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Kim,

 

I agree with you, especially this part...

 

"GOTTA LOVE EM' THOUGH. I WOULD DIE FOR MY FATHER. I WOULD LITERALLY GIVE UP MY LIFE TO SAVE HIS."

 

The funny thing is that about 5 years ago I realized one thing that has always bothered me. At that time I was 41 and in all my life my Dad NEVER said "I'm proud of you.". Now I look at him and just smile about it. I know he loves me, he dedicated his life to his kids. I just figure HE IS proud of me. Anyway ever since then I have tried to make a point of telling my kids when I'm proud of them. I don't lie to them but as they live their lives and do so many things I am truly proud of I figure my Dad must have felt the same but couldn't say it. Thanks for the response.

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Hey Sue,

 

You and your husband sound like me and my wife. She goes into EVERY doctor appointment I have. I can be so sick I'm dragging myself in and when the Dr. asks what the problem is I really don't know what to say. I usually do say... I'm fine. My awesome wife keeps me honest. Also my memory is so bad she has to go in. I can go to the Dr. in the morning and by afternoon I don't even remember being there.

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AJ,

 

DADDY NEVER TOLD ME HE WAS PROUD OF ME EITHER. ****BUT**** HE TOLD OTHER PEOPLE WHO TOLD ME. SO, I KNOW HE IS , BUT I JUST WISH *ONCE**** HE WOULD SAY IT. LIKE THEY SAY"WISH IN ONE HAND........... LOL.

 

 

THAT'S JUST DADDY. FUNNY THANG, HE BRAGS ON MY SISTERS ALL THE TIME. "KELLY DID THIS, KAREN DID THAT,.......... **** WHAT ABOUT KIM???????????????????????

 

 

MOTHER SAYS IT'S BECAUSE HE AND I ARE SO ALIKE AND HE WANTS ME TO BE STRONG LIKE HE. I ONLY SAW DADDY CRY ONCE, AT HIS FATHER'S FUNERAL IN 1974. HOWEVER, SINCE I MOVED 6 HOURS + AWAY AND LEFT HIS BUSINESS, MOTHER TOLD ME HE CRIED BECAUSE HE MISSED ME. I BALLED MY EYES OUT.( I AIN'T A CRYER EITHER)

 

 

I THINK MAYBE SOMETIMES OUR PARENTS SENSE THINGS ABOUT US AND TRY TO MAKE US STRONGER. I HAVE THE THICKEST SKIN OF ANY SOUTHERN GURL YOU'D EVER WANT TO SEE. OH, I "LOOK" ALL SWEET AND STUFF, BUT MESS WITH MY FAMILY OR A FRIEND AND THEY WILL SEE SPARKS FLY. LOL

 

 

I UNDERSTAND

 

 

KIM

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