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on being me


swilkinson

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Somewhere in the last seven years Ray and I got blended. I don't know how it happened as we used to be very different individuals. We had separate jobs, separate cars, separate lifestyles. We kept different schedules, had separate bank accounts and made separate friends. Or maybe I should say colleagues as those I thought of then as friends are not our friends today. We have retained a couple but the rest are long gone.

 

Then Ray had the major strokes and our world for a while revolved around his medical needs, the hospital, then the rehab and when he came home the medical appointments and the in-house rehab. Now I was required to be his nursemaid, his driver, the housekeeper, the social secretary etc. Those of you who are caregivers will see where all this is going as you have been there. And I lost sight of the "me" I used to be.

 

I don't think it was anyone's fault, she just faded away. Her time and energy and focus in life was gone. There was little time to be just "Sue" or Susan" nor the career girl, the member of clubs,the member of executives on committees. I was still Mum, Granma, daughter and sometimes even had time to be a good friend. But most of my individual pursuits were given up in favour of Ray and his needs.

 

I don't think I realised how bad this had become until a past member here started to tell me I was "co-dependent". Now I don't think I ever was but I had assumed that the blended role that I had taken up when Ray became more in need of my services was the only role there would be for me now. And somewhere along the line I had lost the personality of the person that I was and was weakened because of that. The thought of the independence I had lost sometimes built up resentment, anxiety and even in some cases, anger. I had become almost solely Sue, caregiver to Ray and I was not entirely happy with that role.

 

My time on this board, reading , educating myself on strokes has shown me different approaches to caregiving. Even in extreme cases it is possible to be a caregiver and not actually lose your whole personality in the process. My time alone recently confirmed that I needed to look at this aspect of my life. I knew that away from Ray I felt a whole lot different about life, functioned differently and approached life differently. Also other people treated me differently, more like they used to when I was an independent working woman.

 

Now I have Ray back home I need to implement some changes so I don't lose this advantage. I can't let the strokes and Ray's poor health totally absorb my energies. I need to keep some in reserve for being simply myself. I don't have a workable plan to accomplish this yet, I am still working on it, but I hope now my life has turned the corner and there will be some new ways of looking at life in the time ahead of me. I don't want to think this will diminish my role as Ray's caregiver, just that I can be Ray's caregiver and still be myself.

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Sue,

 

This is a very insightful blog entry and you should be proud of yourself for the conclusions you've come to in the last paragraph. The Sue you were and want to be again is still there in the tightly closed box that you put her in after Ray's stroke and she's waiting for you to let her out again. The careiver role and co-exist with her. You just have to work harder at carving me-time out than you did before and as you said, it's not going to diminish your caregiver role at all. It will make you a better caregiver in fact because it will keep the depression and hopelessness at bay.

 

Jean

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Although I am not a caregiver nor needed care for an extended amount of time, I can still wholly relate to your blog, just in a different way.

 

I have lost myself as well. I was confident - walked with confidence, spoke with confidence, knew myself with confidence - until das stroke (I like to refer to it with an evil accent). I only wish I could break with it for a week or two so that I could find my lost me. What a great opportunity for you to reconnect with her and learn to keep her around. :Clap-Hands:

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Sue:

 

I like your blogs they come out very honest and sometime eye openers for survivor who sometime too much depend on their caregiver, though I don't feel I am 24X7 job to look after, but I need partner to run the household and to raise our child, Its real good thing you have decided for you as Jean says, make sure you follow through and don't loose in other prirority, you ccan be better caregiver while also living your life, I don't know how all the caregivers does it, I sure am glad to be survivor and not caregiver.

 

Asha

 

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Sue,

 

Now, girlfriend, when you accomplish your mission please bottle it and send it c.o.d. to me. I know exactly what you are saying and feeling. The resentment is the most difficult thing for me because I don't resent my husband but at times I surely do resent the situation.

 

I know the "old" Ann is in there. In time she will again be released. I am finding that a certain "firmness" is required for me to have any time to myself - but as time goes on, and I identify that need in myself the "firmness" isn't as difficult as it once was. And I know that the pouting is a normal attitude that goes away as quickly as it comes!

 

Thanks for your thoughts.

 

Love,

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