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Thanks


Susan M

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I am not sure why I started blogging other than some way to get out my feelings and feel safe around those who really get it. I did not expect people to read or comment. I received 3 comments to my most recent entry and was so grateful for them. I do not know you but I know you understand and won't be critical or judgemental. I copied your comments and will read them to Jackie today. I wish she could hear them right from you but this will more than do.

 

We had a "Family Meeting" today. WE got updates from her therapists and talked about her admission into the Long Term Care Unit. Speech and PT will continue and actually the PT was rather surprised to hear that Jackie managed to wheel herself from her room to the elevators this morning - so was her nurse who was thankful she found her before she got off the floor. Jackie, in her best Planet Aphasia language (that includes facial expressions) made it clear whe was leaving. She was wheeled back and the WatchMate attached to her wrist. I thought it was fabulous that she did this - but not happy why. She seemed agitated - I don't blame her for wanting to get out.

 

The admission to the Long Term Unit seems to be really bothering me. Just the sound of it and the thought of it - just plain all of it. How many conversations we have about not wanting to be placed in a nursing home. Regardless of temporary or not - it just feels awful to me. I feel helpess and that I should be doing something to bring her home. And it does not matter that I know that she still requires a high level of care - I heard it all this morning and I know it - it's the whole Nursing Home idea I guess. Just does not sit right with me. I believe she knows I am doing my best - I think she is doing her best too - that wheelchair escape attempt this morning was huge for her mobility! Go Jackie!

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Susan & Jackie:

 

I can't believe I am telling you this. I know Jackie will hate me for this. but this is the time to get as much as therapy you could get from insurance company. trust me it's in insurance company's benefit to send you home as fast as they could whether you are safe there or not. but important thing now and next 6 months is to get as much therapy you could to get back most of it such thar you can still have decent quality of life at home. I know I hated my family & my therapist sister-in-law to make me stay more time in hospital. but lot of small goals were achieved in the rehab hospital & later achiieved as outpatient therapy. but thrapy you get as in-patient is hugely different than what you get as an outpatient. so again don't think of this move as negative but view it as positive move to get back good quality in your rest of the happy years to come. Since you read this to Jackie I want to tell her Jackie life will be wonderful once again I promise you, but you will need to fight for it. maybe this song might inspire you to fight for your & sue's life. I use it this song for my fight against my stroke

 

Asha

 

 

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I'll be 5 years next month so let me say as Asha did before me, get ALL the therapy you can and when the insurance runs out try to find a gym, YMCA, or some place that has equipment you can use. I go to the senior citizen center and the military gym for free and use the equipment they have.

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Susan & Jackie:

 

I can't believe I am telling you this. I know Jackie will hate me for this. but this is the time to get as much as therapy you could get from insurance company. trust me it's in insurance company's benefit to send you home as fast as they could whether you are safe there or not. but important thing now and next 6 months is to get as much therapy you could to get back most of it such thar you can still have decent quality of life at home. I know I hated my family & my therapist sister-in-law to make me stay more time in hospital. but lot of small goals were achieved in the rehab hospital & later achiieved as outpatient therapy. but thrapy you get as in-patient is hugely different than what you get as an outpatient. so again don't think of this move as negative but view it as positive move to get back good quality in your rest of the happy years to come. Since you read this to Jackie I want to tell her Jackie life will be wonderful once again I promise you, but you will need to fight for it. maybe this song might inspire you to fight for your & sue's life. I use it this song for my fight against my stroke

 

Asha

 

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Perfect! Why didn't I think about this - get as much as you can! This is exactly what you should tell us and she won't hate you - she will listen to YOU - you KNOW. I can live with this - more than - makes sense. It's what we need to do to get the therapy. And the song - fabulous! That's on for todays entertainment!

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There will come a point in time when Jackie's therapy will come to a halt. I feel she should get and deserves to get all that she can. Each day of successful therapy and advances = a day closer to Jackie returning home with you.

 

I can empathize with her for trying to vacate the premises. She's getting anxious with the amount of time her recovery is taking. That is a natural and understandable reaction. Although hapens in a split second the recovery seems to take forever. You and she are receiving lessons in patience, patience, patience. Hang in there and please tell Jackie we're rootin for her.

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