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Direct TV a moment of luxury


ruthpill

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I am back. I just got the computer fixed. It had a virus, trojan horse..etc. 4 in 1 infection.

 

I finally relented and got direct TV. WIlliam is thrilled. He says that it his moment of luxury. We were using rabbit ears before. The transition to digital came when William was in the hospital. I didn't feel that he was ready for so much TV. But, he loves the history channel and Nova and etc. He just needs to learn how to play with the remote control.

 

We had an initial evaluation for the clinicial study at TIRR. William's blood pressure was high that day. So they want him to see his doctor and get a med change. We were just at the MD's 3 days ago. THe meds were just changed. It is funny but the BP ran high all day yesterday. This morning it is fine. I will continue to monitor the BP over the weekend and then call the Cardiologist and see what he wants to do. He will need to contact the clinical trial people. We shall wait and see.

 

The Clinical trial sound good. 5 days of therapy every week for 8 weeks. Very intense. I hope that this will get William up and onto a single tip cane. I told him that I would discontinue the water therapy for those 8 weeks. I don't want him too tired for the TIRR program.

 

William is excited about the Clinical trial. We saw the locomat (robotic machine). If he randomly gets into that part of the study it will be nice. The machine straps the leg and moves it mechanicaly. Not an electrical stimulus. You walk on a treadmill for the hour. Some participants end up walking for a mile.

 

I also got an electric wheel chair carrier for the truck. A friend helped me to attach it to the truck. Now, we can go out and William can ride around on the electric wheelchair.

 

Things are slowly progressing.

 

I work on Thanksgiving and haven't decided what William will do. I will only be gone for 6 hours.

 

I am glad about the progress that William is making and glad that his spirits are up.

 

We got the H1N1 vaccine this week.

 

 

 

 

 

 

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Ruth:

 

welcome back. I pray that william gets in the study & it helps him in his recovery. I never wanted to use cane & fought very hard with therapist to allow me walk unassisted. I am happy I did that today I walk unassisted. & best thing I did for my recovery was buy treadmill for our house. I made sure I walk on treadmill every day initially I used to walk at 1.2 mph for 5 mins. today I walk 30 mins for 4 mph (though it's very hard) but I keep on pushing myself. you will see william will progress well over the years.

 

Asha

 

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hi ruth, i too have direct TV and love it, the controller took me awhile to learn it too, but they go have a wealth of channels. or at least i do. i think donna uses the same equipment you described in her therapy now to increase function in her legs i hope the clinical trials help him in some way. good luck and keep us posted on how william is doing. have a happy thanksgiving. i bet william will watch tv while you are working, maybe some football games he will enjoy and the parade.

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