How old is your son??

Patty: please, you are so angry but more important I think you are exhausted. I'm a caregiver and I do not accomplish what you did today on ANY given day. People will step back as you recover. You already know this. I sit sometimes and think "just give him a half hour". But people are who they are and we must be greatful for what we do receive. You need some "ME" time. We hear this alot as caregivers, but not so much with suvivors. And I do not mean taking a nap or quick rest. I'm talking about a bath, reading or listening to your music, taking a walk or just sitting in the yard. I think is must be toughest on the kids, they are too young to have learned how to step up to the plate in most cases. Anyone as exhausted as you seem is going to get emotional - and that is not stroke related, its just too tired to cope. End of the day is worst for me as well, 4 o'clock seems to be my witching hour and most of our difficulties start right about then (no kidding), day is not over, there's still so much that has to be done and even after 1/2 hour nap I'm cooked. Try to spread out some of your chores, maybe don't change the linens on the same day you have to vaccuum. And as I know from Bruce just today, some days are just "bad" days. He was exhausted all day and only had one hour OT-very little walking, only 1/2 hour speech, no swimming. So try to recognize those days when you are just not up to snuff and let some stuff slide. Please take care. While I only have words to help you out, just know someone is listening. Debbie

You do so much. I cannot believe that you can do that much work. My husband, William , is exhausted just from a 30 minute workout. I presume that you are doing so well that people are forgetting that you have deficits that you are trying to overcome.

In a way that is good. you are doing spectacturaly well.

People are people they get involved with themselves and forget about others. Especially longterm problems. People are good for the immediate shortterm needs, but they want to go on. Only the most special people are around for the long run.

You are doing so well. I am very proud of you.

Keep it up. I will be here to cheer you on.

I wish that I could be there to help you.

Ruth

YOU PEOPLE ARE WONDERFUL!!! PATTY

Patty, I guess you didn't approve my comment to you. "It says your comment will not show up until the Blog owner has approved it." Unless you forgot to make the election?

patty i totally understand what you are saying. it angers me at times too. after our strokes, we work so dam hard to get better and get back as much as we can. others think we should be the way we were before stroke and we know it doesn't work like that. i too get those comments and reactions when i ask something of them, god knows, i hate to even ask anymore. i try to hold my temper back and believe me at times i fail to control it, ive learned to stay calm and let it go and remember the person doesn't have a clue what we deal with daily. i wanted to complement you on your very busy day. geez if i did all that. i would be down for a nap for hours. i think you have come really far in your recovery and i am happy for you. you give survivors a good example of how hard it is but you do it and keep going. thankyou for your blog today. it really hit home for me.

Patty,

I am impressed that you can do that much in one day. You are the woman! I understand how you are feeling. After my stroke, I took about two weeks off work (I should have taken a bunch more). People thought that I should be doing all the things I used to do, the way I used to do them. When I would ask for help or suggest that things had changed, you would have thought I was making a revolutionary statement. People don't get it. Hang in there..!